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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@jessie1990 Jess, if you don't mind, could you ask tomorrow is you have any staples on the inside of you, and if so, what they are made of? I would really appreciate it. I'm just wondering, because my doctor was vague about the staples in me, and I think that is part of my problem. If you have them on the inside and you have no problems, then that makes me doubt my doctor even more as to what the heck he did. If you don't want yo ask, I'll understand. 😉
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2 Reactions@nannybb yes course I will no problem 🥰
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1 Reaction@nannybb today at 3 I get staples out I will let you no as soon as I'm home 🥰
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2 Reactions@jessie1990 Thank you Sweet girl! 🙏🙏🙏
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2 Reactions@nannybb hi 😊so I had no staples on inside but I did have a few stitches that also got removed today abit of relief
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2 Reactions@jessie1990 Hallelujah! I hope you are finally able to sleep better. I'm so glad you have zero staples on the inside. I'm thinking that may be my problem. Jess, I also hope you have a great holiday with your friends and special family. Thank you so much for asking them about the staples. I really appreciate it.💕
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1 Reaction@nannybb was able to sleep on my side last night I had a good sleep still very irritating though to be honest but nurse said its healing good all bruising is gone... I also hope you have a fantastic Christmas sweetie... ur very welcome anything to help ☺️ ❤️❤️
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1 Reaction@nannybb how often do you get check ups after tumor was removed
@jessie1990 Well, because I have started with a new doctor, he does not want to see me again for 3 months from the 1st visit. He said he will be closely checking not only my lungs, but my liver. Most cancers have a path they travel if it metastasizes. (Liver than bones for carcinoid tumors) At this point though, this new doctor, after looking at the pathology report, is questioning if I even had carcinoid tumor. If I didn't, that means the 1st surgeon operated for nothing and I have been in horrible pain for 5 months for nothing. So, I really don't know for my case. Most likely for you, it will be every 3 months for the first year post-op, then every year thereafter. That is what I was told by the 1st surgeon. Because your surgery was so invasive, I'm praying they got it all. 🙏
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1 Reaction@nannybb I've some gathering of blood vessels on my liver they said its noting to worry about I've been told that on July when they done mri did you get biopys before you got surgery to say it was carcinoid tumor