Connect
Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
Like
Helpful
HugInterested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Connect
@nannybb so confusing Wednesday night when I was in hospital lung nurse came to me said hi jessica we spoke on the phone a few times it's nice to meet you In person she said what I have is noting to worry about the reason 2 lobes were removed Is because of where the tumor was sitting it was in a very awkward place I just need regular scans..... yes tomorrow is my last day 🙌 I have no clue I no there is 29 on outside and there's like a stitch at the bottom where the big scar is under it they put another hole small one with 3 staples I think that was made to remove the lower lobe and the big cut was to remove the middle lobe ❤️
@jessie1990 Jess, if you don't mind, could you ask tomorrow is you have any staples on the inside of you, and if so, what they are made of? I would really appreciate it. I'm just wondering, because my doctor was vague about the staples in me, and I think that is part of my problem. If you have them on the inside and you have no problems, then that makes me doubt my doctor even more as to what the heck he did. If you don't want yo ask, I'll understand. 😉
-
Like -
Helpful -
Hug
1 Reaction@nannybb yes course I will no problem 🥰