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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@jessie1990 I do not have lung carcinoids, but my carcinoids were in the digestive tract. My surgeries were in 2003, 2005, and then again in 2016. The lung CT that I had in January did not show any carcinoids.
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2 Reactions@hopeful33250 oh sorry thought it was lung carcinoids do you still get regular scans
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2 Reactions@jessie1990 No scans for the digestive tract tumors, instead I get upper endoscopies on an every other year basis.
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2 Reactions@hopeful33250 oh that's great I thought I'd get scans every 3 months then 6 months but I'm not been scanned for 6 months even though I had surgery on 5th of Dec I have to wait till 10th of July for check up and scan
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2 Reactions@jessie1990 You should take that as a good thing. No one has a great concern over anything bad happening post surgery.
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2 Reactions@tomrennie I no just worried about recurrence
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1 Reaction@jessie1990
That is a natural concern for all of us! Right after my surgeries, the endoscopies were yearly, but as time passed and there were no recurrences, the intervals between check-ups shortened. It is all good news!
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2 Reactions@hopeful33250 was all your surgeries for recurrence
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1 Reaction@jessie1990 The last two surgeries (2005 and 2016) were for recurrences. My first surgery was in 2003. We Zebras are tough!
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2 Reactions@hopeful33250 so you have been all clear for 10 years with no recurrence
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