Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30 1:48pm

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Zebra | @californiazebra | Nov 14 12:34pm

In reply to @jessie1990 "@nannybb orange rain and wind warning 😳" + (show)

@jessie1990
Stay safe!

Zebra | @californiazebra | Nov 14 12:39pm

In reply to @tomrennie "@californiazebra I really don't feel any different. I am thinking that maybe it is something from..." + (show)

@tomrennie
When they first discovered my 50+ lung nodules in 2008, one of the benign guesses was that maybe I had had Valley fever and they were left behind from that. I disagreed because they were very slow growing and if they were from a past illness they shouldn’t still be growing. I hope your doctor has good news for you.

nannybb | @nannybb | Nov 14 1:03pm

In reply to @jessie1990 "@nannybb orange rain and wind warning 😳" + (show)

@jessie1990 "Orange rain"?

nannybb | @nannybb | Nov 14 1:05pm

🤣 That was terse. Thank you. It shows up twice on my feed.

nannybb | @nannybb | Nov 14 1:16pm

In reply to @californiazebra "@jessie1990 We are also getting ready to enjoy several days of rain!! I just parked my..." + (show)

@californiazebra I love a good rain. When I first moved to Fl. the difference between there and Oregon was significant. I also am weird, in that I miss thunder. Hope your rainbow appears 🌈

jessie1990 | @jessie1990 | Nov 14 1:19pm

In reply to @californiazebra "@jessie1990 We are also getting ready to enjoy several days of rain!! I just parked my..." + (show)

@californiazebra california wow 😊 really would love to see that place and new York where home alone was filmed my favourite film of all time 🥰 along with mighty joe young... lion king snow white and seven drawfs I have loads favourite old tike classics 😊 squirrels are so cute 🥰 my aunt has a house in uk belong to dukes of Dutches she has a big forest out her back wit alot of wild life deer rabbits squirrels yes lot of floods here also and santa is in the city tonight turning on the Xmas lights here in Cork and the weather is miserable really wanted to take my little girl in 🥹 but it's a cosy night with Xmas movies instead 😀

jessie1990 | @jessie1990 | Nov 14 1:36pm

In reply to @nannybb "@jessie1990 "Orange rain"?" + (show)

@nannybb we have warnings here for weather its either yellow orange or red warnings red been more severe but now we are orange rain warning means really heavy rain winds and floods

ggiinnaa | @ggiinnaa | Nov 14 2:21pm

In reply to @nannybb "@tomrennie Yes. My GP referred me to one when the tumor began growing. I looked up..." + (show)

@nannybb oh my word!!!! I am sending love during this difficult period. I do not know what comes next because I am not there yet but.., carcinoids are slow growing so do not make rushed decisions. There is time. Talk to a friend and find support and a real carcinoid doctor! Googled carcinoid lung cancer and find an expert.

nannybb | @nannybb | Nov 14 2:30pm

That is exactly what I did. This doctor that denied my referral from my GP, is an expert here in the Portland area at OSHU. I have already been operated on once, (May) and have not been released back to work because of the pain issue. I wanted another opinion because the original surgeon is not being very helpful.
And if I have growth in the other 3 at some point, I want a NETs specialist.