BAD Withdrawal Symptoms from Stopping CARVEDILOL Abruptly

Posted by VynSkye @vynskye, Jun 25 4:28am

Hi everyone 😊God bless all of you & all of us.

I am very glad to come across this discussion group regarding our withdrawal of the Carvedilol.

I am 46m, I am on Carvedilol 3.125mg (twice /day) after my PFA ablation for my cold drink heart Afib. On this medication (together with blood thinner : Eliquis) for about 7 weeks from 4th May - 17th Jun (stopped cold turkey)

It was all fine at first, then the bad starting on the 2nd-3rd week, i started having lots of side effects such as high anxiety, nose conjection, fatique, dizzliness (to the point I do not have the confident to drive). My doc told me to stop Carvedilol on the 17th Jun immediately. And thats when it opens the whole new level of hell... .. .

After about 12 hours stopping the Carve, I start to experience weird unusual nervousness feeling with short of breath. At first I just thought that it is due to my lack of sleep.

The next day, I felt even worst, I am feeling so nervous, anxious and started taking lots of deep breaths, restlessness, cold hands and feets. And that's when I have to go to an ER. I stayed there under observation for 4 days:

Check include:
Blood tests for troponin, thyroid : normal
Heart Holter for 72 hours : normal

During my stay at the hospital, I noticed that there is some heart rate spike (+10 to 20bpm) when I change my sleep position. Thats scary.

Every morning since, I woke up by my adrenaline surge, feeling extreme nervous, trembling, cold hands and feets, depress.

Today is my 9th day since stopping Carvedilol, I am still not feeling 100% better, still having some nervouness and anxiety, certainly better that the 1st 7 days. Still no confident to drive yet. I hope all this hell feeling will goes away soon!

To aid my sleep, I took 3mg Melatonin, magnesium glycinate 200mg and chamomile tea. I did a 15min mediation before bed which helps too.

Anyone here have the similar experience? Anyone got out of this Cavedilol's hell effects? Any tips to face this better?

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

Why did your doctor take you off Carvedilol without replacing it with something else?
Are you keeping him current on what you're going thru?

My cardiologist had me on Carvedilol 12.5mg, twice a day, for 25 years and I suspect it may have caused high blood pressure over the years, resulting in an aortic aneurysm. I am now on 3.125 mg twice a day with another cardiologist. Its helping to stabilize my blood pressure and aneurysm.

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Profile picture for ewei6911 @ewei6911

Why did your doctor take you off Carvedilol without replacing it with something else?
Are you keeping him current on what you're going thru?

My cardiologist had me on Carvedilol 12.5mg, twice a day, for 25 years and I suspect it may have caused high blood pressure over the years, resulting in an aortic aneurysm. I am now on 3.125 mg twice a day with another cardiologist. Its helping to stabilize my blood pressure and aneurysm.

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@ewei6911

Doctors suspect that I have allergy towards BetaBlocker. They did not replace with other meds as my heart rate and blood pressure are stable throughout my 3 days stay there.

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I’m having similar symptoms after my cardiologist abruptly stopped my carvedilol a week ago. Have been back to the ER twice with lightheaded spells. Blood pressure ok but very anxious and even trouble with coordination as i walk around the house.
Any suggestions on how to get through this?

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Profile picture for jodo @jodo

I’m having similar symptoms after my cardiologist abruptly stopped my carvedilol a week ago. Have been back to the ER twice with lightheaded spells. Blood pressure ok but very anxious and even trouble with coordination as i walk around the house.
Any suggestions on how to get through this?

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@jodo You will feel anxious and heighten nervousness, lightheaded for the next 1 week or 2 before it start eases down. These feeling can be quite scary and concerning but no worries, all these will get better.

During my withdrawal, I went for morning walk first thing in the morning, get hydrate. Meditate everytime I feel anxious / nervous for at least 15mins, set a nice soothing music and focusing only on breathing "4 seconds in and 6 seconds out"

Try to stay away those that may trigger or make you anxious or nervous. Try to engage releaxing activities which you like.

Chamomile tea and magnesium glycinate supplement to aid my sleep.

REPLY
Profile picture for VynSkye @vynskye

@jodo You will feel anxious and heighten nervousness, lightheaded for the next 1 week or 2 before it start eases down. These feeling can be quite scary and concerning but no worries, all these will get better.

During my withdrawal, I went for morning walk first thing in the morning, get hydrate. Meditate everytime I feel anxious / nervous for at least 15mins, set a nice soothing music and focusing only on breathing "4 seconds in and 6 seconds out"

Try to stay away those that may trigger or make you anxious or nervous. Try to engage releaxing activities which you like.

Chamomile tea and magnesium glycinate supplement to aid my sleep.

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@vynskye thanks for your suggestions. Good reminders to meditate and monitor slow breathing. I had a very good day yesterday but this morning I was so lightheaded that I afraid to walk outside with friends so just paced in the house. It seems like a good day is followed by a scary one. My cardiologist’s nurse thought I was making up my symptoms!

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Profile picture for jodo @jodo

@vynskye thanks for your suggestions. Good reminders to meditate and monitor slow breathing. I had a very good day yesterday but this morning I was so lightheaded that I afraid to walk outside with friends so just paced in the house. It seems like a good day is followed by a scary one. My cardiologist’s nurse thought I was making up my symptoms!

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@jodo you weren’t making up the symptoms. Your cardiologist should’ve known that you were not supposed to stop that pill that way. I tried the same thing and went to into a tail spin the next day having a bad episode very high heart rate.. It took me five weeks to wean off of it completely they say you have to watch out for rebound. I’ve been off of it about six weeks now same thing happened now I’m went into a tail spin. They say coming off that pill could give you a heart attack I said great. I will keep you in prayer hang in there take it slow. You have to dose down slowly if you’re taking three a day or two a day come down to one a day and stay at that for as long as your body can tolerate until your body tolerates it once your body tolerates just one a day then you can think about stopping altogether, but give yourself at least a week in between lowering doses. It’s a horrible medicine for those of us who can’t handle it. Best of luck to you God bless you.

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I was only taking one a day because I overreact my body overacts to meds due to my rheumatoid arthritis and other pre-existing conditions. It is the pill from hell it’s the smallest pill I’ve ever seen in my life and I can’t believe something so small could do so much damage I told my doctor that I had swelling above the knee after a week on it and he said that’s not possible went to the pharmacist and she said it is a rare but serious side effect. You need to come off that pill well my doctor insisted I stay on it so I foolishly did because the heart episodes were so bad back in April. I was visiting 220 bpm sometimes. I will keep you in prayer. Hang in there. I am out of power and I will catch up with this later and tell you how I did it even though I was only on one pill it took me five weeks to completely wean off and be in the safety zone

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Beta blockers are notorious for withdrawal side effects. So sorry for your experience. Coming from someone who is hypersensitive to a lot of medications, try some Lemon Balm tea. I have used it for anxiety at night…it has a mild calming effect so you can sleep.

Keep us posted…sending a digital hug 🤗.

VaniaG

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The cardiologist in the hospital stopped my 12.5 Coreg beta blocker abruptly as it was causing me to be lightheaded. No tapering. It’s been 10 days of feeling stressed and unsteady. I’m functioning but struggling.

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