Bad news

Posted by Leonard @jakedduck1, Jul 24, 2020

Well I was at Costco today mainly to buy water and a pie because I saw a post that John,
@johnnishop was talking about on the Neuropathy section. I haven’t been thinking of anything else except getting a pie at Costco but they only sell pies from September to December. The lady said they ended up throwing them all out. I told her she should’ve giving me a call. But that’s not the point of my story
I was doing fine for about 10 minutes then the back of my neck started hurting really bad and I felt weak I didn’t think I could make it back out to my car. On my way home I had double vision which I occasionally have. I stopped at my neurologist office which was a mistake and I saw him and he believes that I had a focal aware seizure in Costco. Although I suppose that is possible I don’t really believe that’s what happened. After 13,000+ seizures I pretty much know when I have a seizure not Tonic-Clonic seizures but focal seizures pretty much for sure, Especially Focal Aware seizures. He wouldn’t let me drive home. Now I’m wondering if he’s going to yank my drivers license again. I just paid $3100 to get my car fixed and I’m certainly not gonna let it just sit again and deteriorate. He can’t prove I had a seizure and I can’t prove that I didn’t and of course the motor vehicle department is going to believe him over me. So now I have to find a rheumatologist and see if there’s arthritis in my neck and if it could’ve possibly caused the issue at Costco. The symptoms that I had at Costco could have certainly been a seizure manifestation.
I was going to ask him for an EEG to see if there was any focal activity but that would only give him more ammunition to prove his case.
I imagine he will yank my license again but whatever happens will happen, no need to stress about it.
Jake

Interested in more discussions like this? Go to the Epilepsy & Seizures group.

@maggiek
I agree about going to the neurologist probably not the smartest move on my part. All of the rheumatologists I’ve gone to have passed on or retired so tomorrow morning I’ll have to start that search. Even if it was a seizure it was just an aura (Focal Aware seizure) no biggie.
Jake

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@maggiek

I certainly have made an independent way of life for myselkf! I lived in a rural area in Pennsylvania. I needed my independence and I lived too close to my mother to get any. Twenty two years ago I moved to the city of Baltimore all on my own for the sake of independence and other factors. Now I have a new life and I can utilize my independence in many ways. MY WAY

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@jakedduck1

Today I am more convinced than ever I didn’t have a seizure yesterday at Costco.
Today I am very dizzy and can hardly walk. used my cane to walk out to the car to take some grocery bags out and I fell down four times And staggered all over the place. My neighbor came over and asked me what was wrong I wish I had known what to tell him but he took my bags and put them in the car and helped me back into the house and here I sit. Anybody ever have similar symptoms? If so what did you do about it or what did the doctor say it might be. If it is any type of epilepsy it must be nonconvulsive status epilepticus which I don’t think is really likely. In 13,000 seizures I have never had these symptoms ever before which of course doesn’t mean it’s not possible now but I still think it’s unlikely.
Jake

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Hi Jake, just read your text. This really worries me… Hope you are feeling better & I hope you went to see the doctor. May not be epilepsy related. Thinking about you will lift you up..

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Hi, Jake,
I am so sorry that all this happened. Epilepsy is a drag. Thinking of you with positive thoughts.
Pam Stewart

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@caseybach
Thank you
I’m getting a bit worried about it too. I fell down at least 11 times today and haven’t been up very much at all I don’t mind the falling down but the only tragedy was I broke two candy dishes. People familiar with me know that’s the worst disaster that could ever happen although I was able to rescue the candy, what a relief, so it wasn’t a total loss. One day I fell outside and a neighbor came over and help me back in the house but today nobody saw me and I didn’t I couldn’t get up so I crawled in on my hands and knees. There is a type of epilepsy associated with Epilepsy, also dizziness can be a precursor of a seizure but I don’t think that’s happening but who knows. It doesn’t seem reasonable to me since it goes on for days that it’s some type of seizure activity unless it’s Nonconvulsive Status Epilepticus which I never had. I’ve only had convulsive status.
Oh well maybe I’ll just let the doctors guess what what it might be. My kidney doc wants a ct Thursday. With all these test everybody’s been ordering I feel like I have Munchhausen syndrome, lol.
Jake

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@pamelastewart5
Thank you for your positive thoughts. I don’t really care what it might be I just don’t want it to be a reoccurrence of epilepsy. Like you say it is indeed a drag!!!
Jake

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I was just wondering if it could have been another episode of Episodic ataxia which I had once before but then I was only able to walk around in a circle always going to the left. Had no balance problem then. Not much protein I suppose in guessing what it could be although doctors often don’t know for sure either so you never know when they know or when they’re guessing. I suppose the important thing is that it happened and now it’s better.
Jake

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@jakedduck1

I was just wondering if it could have been another episode of Episodic ataxia which I had once before but then I was only able to walk around in a circle always going to the left. Had no balance problem then. Not much protein I suppose in guessing what it could be although doctors often don’t know for sure either so you never know when they know or when they’re guessing. I suppose the important thing is that it happened and now it’s better.
Jake

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Jake.

This occurrence has been very upsetting to you. You are letting it bother you too much! You must think more positive and calm down.
We must realize things happen in lfe, they happen. You have no control over what has occurred. Things will eventually change for the better. We must have patience.
See a rheumatologist to rule things out.

Take care,
Laurie

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@isittll
I’m not obsessed about it I’m just concerned about what caused it. I believe that’s reasonable. A rheumatologist isn’t going to be able to answer all my questions but he may be able to rule out one or two. Even if I knew exactly what it was I may not be able to do anything about it the future but even so I’d like to know. Who knows perhaps it was something that could be treated. Maybe it was something that could’ve been prevented. Fortunately I’m not the kind of person who believes every word that comes out of a medical person’s mouth, if I were I’d have been dead long before now. Just the fact that someone is a doctor doesn’t make them right and I have proven that numerous times in and out of court. You’re right sometimes things do change but not always for the better and I want to know why. I’m much better today. I haven’t fallen and my balance is much better, I still sway some when I walk but that’s my normal. I’m a very big believer that a person has to deal with whatever bumps come along in the road of life. If something happens it happens you have to deal with it but I don’t believe in ignoring things in the hope things will always get better.
Thanks for writing take care,
Jake

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@mxyzptlk32

@jakedduck1

Hi Jake,

I hate the stigma thing. I have a personality which is pointed inward so for the most part I am oblivious to the outside world. Perhaps I have not experienced it either. Hard to tell with me. If I had noticed it there would have probably been a small war, perhaps a skirmish.

Anyway back to the stigma thing. I would like to see if we can get that changed. I think we need to be the first to change. There is no way I can expect others to look at me differently if I don't.

Many believe epileptics are prophets (please see the scientific article I previously posted) and I have decided to work that angle. The ability to prophesize is like a superpower and when I prefix my name with "The Prophet" it just sounds more impressive. Try it Jake. With great fan fare let me introduce The Prophet Jake D. Duck. Jake D. Duck has prophesized the rising of the sun and the appearance of the moon. He has predicted the stock market will go up and then down. Folks, he is a prophet for the ages.

I can spin almost anything. My boss once told me Mxy you are wordy, without missing a beat I said I prefer thorough but I cannot argue with you. Instead of I may lose my license perhaps, I decided not to drive for I have "seen" a great collision which I do not want to exasperate, would be better.

At any rate The Prophet Mxyzptlk has a bit more zing than Mxy. Wishing you the best.

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You’re A Peach Mxy! I’m so very happy I found my way here.

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Sorry to hear that! Keep us posted!

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Hi, Jake, You may have already considered this, but could the dizziness be a side effect from your medication? My son had dizziness as a side effect of some of his early meds.
Pam

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