1. < MAC & Bronchiectasis

Average sputum measurement from one nebulizing treatment 7% saline

Posted by healthybon @healthybon, Sep 20, 2023

I am wondering how much on the average you all cough up during one nebulizing treatment using 7 % saline. Approximately! Thks for the info. Bon.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

dlynn1210 | @dlynn1210 | Sep 26, 2023
In reply to @healthybon "Courtyard by Marriott Cherry Creek is fairly close to the hospital. We rented a car from..." + (show)
@healthybon

Courtyard by Marriott Cherry Creek is fairly close to the hospital. We rented a car from enterprise at the airport. We were very glad we did because otherwise it would cost a fortune to take cabs and you really can’t count on them to get you there on time. We bought a little vacuum cleaner to vacuum the hotel room every day because it was very dusty.

Jump to this post

Thank you much - gives us a place to start!

REPLY
healthybon | @healthybon | Sep 26, 2023
In reply to @lilianna "dlyn1210 how long after you registered and had an interview with a nurse did you wait..." + (show)
@lilianna

dlyn1210
how long after you registered and had an interview with a nurse did you wait for scheduling the actual appointment. I registered in JUne and noone called me since then; i did call and the person told me they were ready to schedule me but only for DEc 21 to dec 29? and they are closed for three days also during this time; i also wander what doctors will be there during the holiday time?

Jump to this post

What dr did they assign to you?

REPLY
1 reply
maritomi | @maritomi | Sep 26, 2023
In reply to @sueinmn "Bon - Have you considered adding guaifenesin (plain Mucinex 600mg LA) or NAC (Nacetyl cysteine 600mg..." + (show)
@sueinmn

Bon - Have you considered adding guaifenesin (plain Mucinex 600mg LA) or NAC (Nacetyl cysteine 600mg twice a day) to help thin your mucus? I need to use BOTH to get anything up otherwise it stays stuck in my airways.
I probably only expectorate 1 tsp a day unless...I skip the saline for more than 2 days, it is allergy season, I have a cold or I am getting sick with a respiratory infection.

With that comes my reminder - I have been "stable" for 45 months, and have reached the point where I use my long-acting inhaler twice a day, do airway clearance every day, but only use saline every 2-3 days (3X/week) and only neb levalbuterol or other meds if I have a cold or exacerbation. When that happens I up saline to daily, airway clearance twice a day, and add the drugs if it doesn't begin to clear in 2 days.

So far this year I have only had ONE exacerbation - my personal best record in at least 10 years - even before I was diagnosed in 2018!

Remember, each of us is different. When I was (very) sick with MAC, I probably had 4 oz or more of mucus every day.
Sue

Jump to this post

I have a question. Being new to MAC the ID Dr and the pulmonologist both agreed to put me on 7% saline using a nebulizer. I thought this was what air way clearance is. But reading this blog it sounds like air way clearance and nebulizing with saline are two separate things. The pulmonologist also recommended I use a Vest. I also had a lot of mucus come up when I first started nebulizing but not so much now. That must be a good thing.
Thank you for this blog. It has been so helpful. I don't feel so alone in all this.

REPLY
2 replies
reneemc | @reneemc | Sep 27, 2023
In reply to @irenea8 "Initially my pulmo said the same thing about 3% vs 7% and the studies but I..." + (show)
@irenea8

Initially my pulmo said the same thing about 3% vs 7% and the studies but I tried the 7% anyway and it made a big difference as I recall. Now he recommends 7% so perhaps others told him that it does make a difference.

Jump to this post

What is a trusted brand to purchase the 7% through Amazon?

REPLY
2 replies
healthybon | @healthybon | Sep 27, 2023
In reply to @reneemc "What is a trusted brand to purchase the 7% through Amazon?" + (show)
@reneemc

What is a trusted brand to purchase the 7% through Amazon?

Jump to this post

i use Base Laboratories........they usually get delivered from Amazon next day..pretty quickly.....7%

REPLY
1 reply
irenea8 | @irenea8 | Sep 27, 2023
In reply to @reneemc "What is a trusted brand to purchase the 7% through Amazon?" + (show)
@reneemc

What is a trusted brand to purchase the 7% through Amazon?

Jump to this post

i have ordered the one from NAVEH PHARMA but I see it costs more than the Base Labs one.

REPLY
dlynn1210 | @dlynn1210 | Sep 29, 2023
In reply to @maritomi "I have a question. Being new to MAC the ID Dr and the pulmonologist both agreed..." + (show)
@maritomi

I have a question. Being new to MAC the ID Dr and the pulmonologist both agreed to put me on 7% saline using a nebulizer. I thought this was what air way clearance is. But reading this blog it sounds like air way clearance and nebulizing with saline are two separate things. The pulmonologist also recommended I use a Vest. I also had a lot of mucus come up when I first started nebulizing but not so much now. That must be a good thing.
Thank you for this blog. It has been so helpful. I don't feel so alone in all this.

Jump to this post

Airway clearance is whatever you do to get mucous out of our lungs. That is accomplished by nebulizing saline solution and using the vest. My pulmonologist prescribed 3% but so many on here talk about 7%. When I asked him about 7% he said he had no problem prescribing it. I found that 7% works much better than 3%. I use 7% in the morning but 3% in the late afternoon - otherwise coughing keeps me awake.

REPLY
dlynn1210 | @dlynn1210 | Sep 29, 2023
In reply to @healthybon "i use Base Laboratories........they usually get delivered from Amazon next day..pretty quickly.....7%" + (show)
@healthybon

i use Base Laboratories........they usually get delivered from Amazon next day..pretty quickly.....7%

Jump to this post

I buy the same saline from Base Laboratories on Amazon.

REPLY
dlynn1210 | @dlynn1210 | Sep 29, 2023
In reply to @maritomi "I have a question. Being new to MAC the ID Dr and the pulmonologist both agreed..." + (show)
@maritomi

I have a question. Being new to MAC the ID Dr and the pulmonologist both agreed to put me on 7% saline using a nebulizer. I thought this was what air way clearance is. But reading this blog it sounds like air way clearance and nebulizing with saline are two separate things. The pulmonologist also recommended I use a Vest. I also had a lot of mucus come up when I first started nebulizing but not so much now. That must be a good thing.
Thank you for this blog. It has been so helpful. I don't feel so alone in all this.

Jump to this post

I know it helped me knowing there are others going through the same.

REPLY
dlynn1210 | @dlynn1210 | Sep 29, 2023
In reply to @healthybon "What dr did they assign to you?" + (show)
@healthybon

What dr did they assign to you?

Jump to this post

Dr. Ferrara. My Ambassador is Cyndi.

REPLY
View MoreView Less
Please sign in or register to post a reply.