Hello @luserm1 - Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease - polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I'm trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question - Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.
Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.
@johnbishop John what is the normal levels for ana? Because the last time was taken was 11.3 I was just always doctors that it was high. And are they suppose to be checked often? And as I see that was the last test results.
Hello @luserm1 - Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease - polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I'm trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question - Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.
Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.
I know for liver there is little substitute for Milk Thistle which if you were diagnosis of cirrhosis in Germany or Japan..... the doctors would give you a prescription for 'Milk Thistle' .....
Hello @luserm1 - Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease - polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I'm trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question - Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.
Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.
I have a question about Prednisone and dosage.... when I arrived at the ER with what they thought was Polymalgia Rheumatica (PMR) They gave me a high dosage shot of Prednisone 100mg I believe, then another 20 about 8 hrs later.... An hour or two after the last pill I stood up on my own 5 times.... I told this to my girlfriend who is an MD she suggested I consider an aggressive attack on this by going high dosage 80mg for three days.... 70 for three on down until I was on only 10mg.... withing 4 days of the regimen I recovered fully enough to stand unaided for the next month.... My question is this.... If I would have stayed at 20 a day instead of the increased dosage, would I be able to stand on my own now or would I have been stuck at not being to stand unaided???? Do or have people plateaued in recovery by staying at a minimum dosage??? Or does this just represent normal and I would have eventually been able to stand/lift my arms over my shoulders??? I have a sense the aggressive use of the steroid over a small period of time it was the right course and if I did not try that..... I would have been stuck at that place waiting for healing to come....
Hello @luserm1 - Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease - polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I'm trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question - Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.
Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.
Hi @reagan1mc -- I was first diagnosed with PMR back in 2007 and could barely stand up and had to use a walker to get to my appointment with the rheumatologist. He diagnosed the PMR and put me on 20 mg prednisone. I filled the prescription that morning after the appointment and took the first 20 mg dose just before lunch. I had a second appointment that afternoon with the rheumatologist and much to my amazement no longer needed the walker to get around. It took me 3 years to taper off of prednisone, the last 6 months going between 1 mg to 1/2 mg back and forth until I finally was able to be off of the prednisone and still function OK. The PMR stayed in remission for 6 years and came back in 2016. I was put back on 20 mg prednisone and am not down to 2 mg a day hoping to be off of it in another month or two. I think everyone is a little different which is what my rheumatologist told me also. I don't think you are ever cured of polymyalgia rheumatica. The prednisone just controls the inflammation and hopefully it goes back into remission.
I do think it's important to keep being as active as possible without overdoing it. Your questions are ones a lot of us have had and I think there are a myriad of answers due to us all being affected a little differently by the disease. I'm have no medical training or experience but it's my understanding is that the goal is to start at the lowest dosage of the prednisone that controls the pain from the PMR and then tapering down the dosage on a schedule of some sort to see if you can function at a lower dosage until you can finally get off of the prednisone.
Have you met with a rheumatologist? It would be a good set of questions for a rheumatologist.
Our daughter was just diagnosed at 17yrs old. We’ve just begun understanding what this is and what it means for her self-care, lifestyle, and long-term treatment. How has this chronic illness impacted you?
Hello @autohepa321 -- Welcome to Connect. Thank you for advocating for your daughter. The best thing you can do is learn as much as you can about her health condition and learn what others with similar symptoms and conditions have experienced. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following existing discussion on autoimmune hepatitis where it will receive move visibility.
Our daughter was just diagnosed at 17yrs old. We’ve just begun understanding what this is and what it means for her self-care, lifestyle, and long-term treatment. How has this chronic illness impacted you?
Hi @autohepa321 I wanted to join @johnbishop in welcoming you to Connect. You may have noticed I moved your post to the discussion John suggested, so that you can connect with others who had similar experience. Simply click VIEW & REPLY in your email notification to get to your post.
How have you been doing helping your daughter handle this diagnosis?
@luserm1 - I was once diagnosed with autoimmune hepatitis by my GI after completing many blood tests for various liver diseases. I do not have the other issues that you describe.
My liver function numbers were not normal was why I had to undergo the testing. When I began treatment for autoimmune hepatitis (AIH), I was also treated with prednisone. I seem to recall that there were liver biopsies involved, also. When my GI was not convinced that I had AIH ( because no positive results were coming from prednisone treatment) he referred me to the next level of care - liver specialist. Additional test was able to determine the accurate diagnosis.
Your GI is doing the right thing to make the referral for you to be seen by liver specialist.
I hope you are feeling well. Let me know if you have any questions for me.
Rosemary
I am diagnosed AIH.I wait for a liver transplant from the Nebraska Medical Hospital in Omaha.Nebraska.Dont have to tell you how rough this is.Its been about 3years I lived with.I know just about every test that could be given.Its so wonderful this site is here.I wanted to know after 3liver biopsys and living on Ritalin predisone and lactolose.I was told there was not very much people like me.Thank you for the site and is there someone who takes something similar ?I meant to write Rifaxin.
I meant to say Rifaxin.Water pills.140mgs of spironlactone and 4×a day of lactalose.Helps you go bathroom.Thats where good and bad days come in.The doctor tells me my immune system is basically shot so they keep me on 500mgs of ciprofloxacin.Did this disease ever just calm down?They say it's something not very much people have?When did it first show up.Sorry for so many questions!Doctors say everyone is different.we will learn as we go along.?
Connect
Connect
Like
Helpful
Hug
@johnbishop John what is the normal levels for ana? Because the last time was taken was 11.3 I was just always doctors that it was high. And are they suppose to be checked often? And as I see that was the last test results.
-
Like -
Helpful -
Hug
1 ReactionHi Lisa (@techi) -- that's a great question but I don't really know the answer. I did find a reference values for the ANA test and some information on interpretation of the test on the Mayo Clinic website:
https://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/9026
John
-
Like -
Helpful -
Hug
3 ReactionsI know for liver there is little substitute for Milk Thistle which if you were diagnosis of cirrhosis in Germany or Japan..... the doctors would give you a prescription for 'Milk Thistle' .....
I have a question about Prednisone and dosage.... when I arrived at the ER with what they thought was Polymalgia Rheumatica (PMR) They gave me a high dosage shot of Prednisone 100mg I believe, then another 20 about 8 hrs later.... An hour or two after the last pill I stood up on my own 5 times.... I told this to my girlfriend who is an MD she suggested I consider an aggressive attack on this by going high dosage 80mg for three days.... 70 for three on down until I was on only 10mg.... withing 4 days of the regimen I recovered fully enough to stand unaided for the next month.... My question is this.... If I would have stayed at 20 a day instead of the increased dosage, would I be able to stand on my own now or would I have been stuck at not being to stand unaided???? Do or have people plateaued in recovery by staying at a minimum dosage??? Or does this just represent normal and I would have eventually been able to stand/lift my arms over my shoulders??? I have a sense the aggressive use of the steroid over a small period of time it was the right course and if I did not try that..... I would have been stuck at that place waiting for healing to come....
-
Like -
Helpful -
Hug
1 ReactionHi @reagan1mc -- I was first diagnosed with PMR back in 2007 and could barely stand up and had to use a walker to get to my appointment with the rheumatologist. He diagnosed the PMR and put me on 20 mg prednisone. I filled the prescription that morning after the appointment and took the first 20 mg dose just before lunch. I had a second appointment that afternoon with the rheumatologist and much to my amazement no longer needed the walker to get around. It took me 3 years to taper off of prednisone, the last 6 months going between 1 mg to 1/2 mg back and forth until I finally was able to be off of the prednisone and still function OK. The PMR stayed in remission for 6 years and came back in 2016. I was put back on 20 mg prednisone and am not down to 2 mg a day hoping to be off of it in another month or two. I think everyone is a little different which is what my rheumatologist told me also. I don't think you are ever cured of polymyalgia rheumatica. The prednisone just controls the inflammation and hopefully it goes back into remission.
I do think it's important to keep being as active as possible without overdoing it. Your questions are ones a lot of us have had and I think there are a myriad of answers due to us all being affected a little differently by the disease. I'm have no medical training or experience but it's my understanding is that the goal is to start at the lowest dosage of the prednisone that controls the pain from the PMR and then tapering down the dosage on a schedule of some sort to see if you can function at a lower dosage until you can finally get off of the prednisone.
Have you met with a rheumatologist? It would be a good set of questions for a rheumatologist.
Hope you find some answers.
John
-
Like -
Helpful -
Hug
2 ReactionsHello @autohepa321 -- Welcome to Connect. Thank you for advocating for your daughter. The best thing you can do is learn as much as you can about her health condition and learn what others with similar symptoms and conditions have experienced. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following existing discussion on autoimmune hepatitis where it will receive move visibility.
> Groups > Autoimmune Diseases > Autoimmune hepatitis*
-- https://connect.mayoclinic.org/discussion/autoimmune-hepatitis-1/
I did find an article that may help you learn a little more about autoimmune hepatitis.
Patient education: Autoimmune hepatitis (Beyond the Basics)
-- https://www.uptodate.com/contents/autoimmune-hepatitis-beyond-the-basics
What is the most difficult part of being diagnosed with autoimmune hepatitis had on your daughter?
-
Like -
Helpful -
Hug
1 ReactionOur daughter was just diagnosed at 17yrs old. We’ve just begun understanding what this is and what it means for her self-care, lifestyle, and long-term treatment. How has this chronic illness impacted you?
-
Like -
Helpful -
Hug
1 ReactionHi @autohepa321 I wanted to join @johnbishop in welcoming you to Connect. You may have noticed I moved your post to the discussion John suggested, so that you can connect with others who had similar experience. Simply click VIEW & REPLY in your email notification to get to your post.
How have you been doing helping your daughter handle this diagnosis?
-
Like -
Helpful -
Hug
2 ReactionsI am diagnosed AIH.I wait for a liver transplant from the Nebraska Medical Hospital in Omaha.Nebraska.Dont have to tell you how rough this is.Its been about 3years I lived with.I know just about every test that could be given.Its so wonderful this site is here.I wanted to know after 3liver biopsys and living on Ritalin predisone and lactolose.I was told there was not very much people like me.Thank you for the site and is there someone who takes something similar ?I meant to write Rifaxin.
I meant to say Rifaxin.Water pills.140mgs of spironlactone and 4×a day of lactalose.Helps you go bathroom.Thats where good and bad days come in.The doctor tells me my immune system is basically shot so they keep me on 500mgs of ciprofloxacin.Did this disease ever just calm down?They say it's something not very much people have?When did it first show up.Sorry for so many questions!Doctors say everyone is different.we will learn as we go along.?