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Aspergillusfumigatus treatment

Posted by lilianna @lilianna, 2 days ago

I have had aspergillus for a while but I was always told no treatments it’s colonized. But it persistently shows in fungal culture plus I cough definitely more recently. My February CT showed change in my right middle lobe, consolidation. I am having a CT tomorrow but I know something is going on. If you were treated for this condition what was it, and how long. What meds did you take- I need some info so when I see my pulmonologist I have some knowledge. Thank you. It’s not easy to to think “ more” after I finished MAC three months ago. Thank you

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vdart | @vdart | 1 day ago

I have MAC and Aspergillosis. I have taken V-fend the second time I had Aspergillosis. I got fibroses of liver . Stopped that drug. Then they did Amphotericin ( horrible infusion drug) caused toxicity to my body). So now I am taking 300 mg daily of Posaconozole with no side affects. My ID dr said can’t cure me. But she will just try to keep these 2 diseases at bay. This is my situation. Hope you find it helpful. Best of luck. 🙂

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1 reply
lilianna | @lilianna | 1 day ago
In reply to @vdart "I have MAC and Aspergillosis. I have taken V-fend the second time I had Aspergillosis. I..." + (show)
@vdart

I have MAC and Aspergillosis. I have taken V-fend the second time I had Aspergillosis. I got fibroses of liver . Stopped that drug. Then they did Amphotericin ( horrible infusion drug) caused toxicity to my body). So now I am taking 300 mg daily of Posaconozole with no side affects. My ID dr said can’t cure me. But she will just try to keep these 2 diseases at bay. This is my situation. Hope you find it helpful. Best of luck. 🙂

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Thank you.

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rmoore901 | @rmoore901 | 1 day ago

Mine was identified during my last bronchoscopy so my ID Dr prescribed a 12 week course of Cresemba. I did have to work with my insurance to get it covered and it has to be ordered by the pharmacy as they don’t keep it in stock. My labs don’t show signs of aspergillus so I’m hoping to be able to go off it soon. My worst side effects after adding this in to the big three were headaches and nausea. I also developed tinnitus after being on the anti fungal. Good luck, hope you can get treated and cleared soon.

REPLY
1 reply
lilianna | @lilianna | 1 day ago
In reply to @rmoore901 "Mine was identified during my last bronchoscopy so my ID Dr prescribed a 12 week course..." + (show)
@rmoore901

Mine was identified during my last bronchoscopy so my ID Dr prescribed a 12 week course of Cresemba. I did have to work with my insurance to get it covered and it has to be ordered by the pharmacy as they don’t keep it in stock. My labs don’t show signs of aspergillus so I’m hoping to be able to go off it soon. My worst side effects after adding this in to the big three were headaches and nausea. I also developed tinnitus after being on the anti fungal. Good luck, hope you can get treated and cleared soon.

Jump to this post

Thank you.

Sent from AT&T Yahoo Mail for iPhone

REPLY
hbcupcake | @hbcupcake | 1 day ago

My 1st bronch in Dec 24 showed mac and Aspergella, the Dr only treated the mac. Feb I was in the hospital with a huge mucus plug and infection. Pulmonologist says that fungal ball was aspergillosis. ID put me on vfend 2x day since the end of Feb. I see him today because my serum level is still low (0.70 even though I'm doing 400mg 2x day. My scan is 90% clearer than it was before (2/27 and then 3/17). I'm on ethambutol & azithromycin for the mac, and nucala for abpa.

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