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Are you taking cyclosporine & had Myfortic removed or reduced?
Has anyone out there been switched to cyclosporine from Tacrolimus due to side effects and then also had Myfortic removed from the medication regimen as well? Would you be willing to talk about the reasons for removing Myfortic? Were you put on a different medication instead or was Myfortic just removed?
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Or had Myfortic reduced?
Hi,
The top doctor at tx center wanted me on only everolimus, due to how prograf causes cancer and so does myfortec. but the other doctor wants me on prograf ( tac) and everolimus thinking it will be better for not rejection. I ask about myfortec and no one really gives me an clear answer either. Obviously I rather be at lower myfortec theraputic level than higher, regardless of symptoms since symptoms can come later in life or things can be happening that I don't think is coming from myfortec. Less drugs/ toxic chemicals in body every single day is best. So I am pretty confused myself.
Hi,
I was put on Cyclosporine and taken off of Tac due to side effects about 4 years ago. I have felt better on this regimen. However, my doctors have kept me on Mycophenolate. I would be interested in hearing from anyone just on the Cyclosporine - if that is a thing.
Yes, while not on this Mayo feed, there are many, many folks who have been taken off Myfortic for good. Usually due to cancer risk, or mouth pain/ulcers, or reduction in WBC counts. This is an unofficial tally, of course. It's just what I have been hearing. Your docs are the lead on all this. Thanks for responding.