Are you getting cancer treatments during COVID-19?

Are you getting cancer treatments at the moment? What about diagnostic tests, like blood tests, CT scans, mammography, PET scans etc? Is your surgery going ahead as planned or postponed?

I’d like to hear from you. What is like being in treatment during the COVID-19 crisis? How are you doing?

@jakedduck1

My brother took me out today, I didn’t realize so many businesses were closed. 2 shopping centers with over 400 shops.
17 cases in my county, (550,000 people) no deaths.
I’ve been home for nearly a year so isolating myself is no big deal.
Instacart doesn’t let me order TP, paper towels etc.
People are going crazy hoarding stuff.
I was running low on candy today, now there’s cause to panic!!!
@lioness, Linda, I think I read a post earlier today where you said Instacart has free delivery if you spend $35. To qualify for the free delivery don’t you have to pay $99 a year? I usually pay $3.99 but occasionally the delivery fee is $7.99 and I don’t know why the difference, do you? Plus all the other fees plus tip . It is convenient but it gets quite expensive especially when you have to order from multiple stores to get the things you need. Last time I ordered from four different stores and still didn’t get everything I requested.
My dad, Aunts, Uncles & Grandparents lived through the 1918 epidemic, 50-100 million deaths. We don’t know what hardship is. We’re so spoiled.
Stay safe all,
Jake

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Hi Leonard. I was just reading thru posts and saw yours. I'm not sure where you are. I'm in rural CO. We have 22 positive cases and 1 death of an 80+ yr old woman with other health conditions….within ours and 2 other counties, total. Trying to self-isolate but it is difficult to get basic necessities and food items to hold over from just one source. Walmart did a $35 or above order for free except that they only filled less than half my order. I ended up going to 5 stores over 10 days (hard to self-isolate when you have to search all over town for what you need to isolate). Very frustrating. I laughed at your candy comment. In trying to get things I need I kept forgetting my comfort candy. I won't bring myself to go out just for that even though it's tempting. You take care.

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@sundance6

Dadl48, So no I could not convince my PC and 7 other doctors I had it because I life in the high desert and we don't have Black leged ticks here. It finally came from my Orthopedic doc who started in medicine as a Microbiologist in the south. I see him every 60 days for a shot in my hip for burcitias. Everytime I would come in he'd asked me how I was doing and if had any of doctors I had seen had any idea what was wrong with me.
One night I watched a golf show that had Pro Golfer Jimmy Walker on. Toward the end of the show they asked him about his Lyme disease that he and his wife both had.
All of a sudden the Light Bulb went off. I imediately came up to mmy office and started reading about it. Copied off a bunch of articles about it. Went into to see my ortho guy for a shot that week and tookthe articles with me. He just smiled! He said he felt I had Lyme disease but it was out of his field at the hospital.
He said the first time I told him my symptoms he knew what it was. He also knew that the way they intially treated me with a small dose of antibiotics would cover it up. It would not show up on the blood test.
Spent the last year and a half researching it.
Something that has come to light recently is that golfers are very suseptable to Lyme Disease because we go out in the brush looking for our ball. Being in the golf business I have played in most areas of the country. Didn't realize that a pro golfer here in Albuquerque,Tim Heron, had it also.
My PC still will not admit that I have it, partly because of hospital protocal, but we've worked out where he treats the "Symptoms"! In my case Headaches and Fatigue are my Biggest problem!
I take two Oxycodone's every day and i hardly have them anymore. I've given up telling others what I take because the look at my arms for the Track Marks. Although new info I have read recently that the brusing on my arms and legs aren't from the Blood thinners I take,but now they say they are from Lyme.
My family still does not understand what it is like.
I had to take a four day business trip a couple weeks ago. It was all driving 1600 miles. Worked four stright 12 hour days. I knew what would happen and it did. I have been moreorless down since them although I'm starting to feel better. Although today I slept approx 16 hours. But I'm getting my strength back.
I don't know if you have seen but there have been two celebrities, Justin Bieber and Shania Twain who have come forward that they both have Lyme.
It helps to have some famous people come forward that has suffered from it! They try and explain it will never go away. I've found that people have different effects from it, but the headaches, fatigue and musscel soreness seemed to be comon.
Sorry for going on about it, but I truly believe it is misdiagnosed 90% of the time.
I'm sure because of it as an autoimune disease and my age puts me at higher risk for the coronavirus, I reaally don't give a Hoot!
Take Care!
Sundance(RB)

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@sundance6 You might want to try the following links to locate a doctor specializing in Lyme. https://www.lymedisease.org/members/lyme-disease-doctors/ or https://doctor.webmd.com/find-a-doctor/condition/lyme-disease
Good Luck,
Dave, @dandl48

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My dad has his monthly infusion of a monoclonal antibody for multiple myeloma next week at Mayo Jacksonville. We are concerned about being exposed to so many people during this day long treatment. Does anyone know if masks are available at the front door of the Mangurian Building right when you walk in? Or can I go to the pharmacy on the main floor of the Davis building to see if we can buy masks?

Liked by Dee, lisal64

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Unfortunately many things have not been taught in history. I am 84 and was 6 years old when WWII started. I vividly remember many things at that time. I remember being quarantined when I had scarlet fever in 1941. My unmarried aunt took care of me in an upstairs bedroom since my sister was only a few months old and my mother could not be with me. My father owned a threshing machine and since it was July with the oats were ready to harvest, he and grandfather had a "threshing ring" where they moved from farm to farm harvesting neighbors grain. Dinner was always served by the wife where they were working and they brought the meal outside to my dad and grandfather, instead of letting them eat in the house with the rest of the men. A sign would be put on your door QUANTEENED SCARLET FEVER and warning people to not enter and also red measles and a few other diseases that I can't remember.

Until 1953 when the vaccine was developed and a few years later, polio was very rampant in the summer time, so we didn't go anywhere. Several of the people living near us and a cousin of mine had this and were in "iron lungs" to help their breathing (probably a forerunner of the ventilators now. People who did recover were often paralyzed, or had other ongoing health problems the rest of their lives.

We are resilient and will get through this. Just be patient (a lacking attribute now) and we will get through this. Stay home and help each other when you can.

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@rmftucker

Unfortunately many things have not been taught in history. I am 84 and was 6 years old when WWII started. I vividly remember many things at that time. I remember being quarantined when I had scarlet fever in 1941. My unmarried aunt took care of me in an upstairs bedroom since my sister was only a few months old and my mother could not be with me. My father owned a threshing machine and since it was July with the oats were ready to harvest, he and grandfather had a "threshing ring" where they moved from farm to farm harvesting neighbors grain. Dinner was always served by the wife where they were working and they brought the meal outside to my dad and grandfather, instead of letting them eat in the house with the rest of the men. A sign would be put on your door QUANTEENED SCARLET FEVER and warning people to not enter and also red measles and a few other diseases that I can't remember.

Until 1953 when the vaccine was developed and a few years later, polio was very rampant in the summer time, so we didn't go anywhere. Several of the people living near us and a cousin of mine had this and were in "iron lungs" to help their breathing (probably a forerunner of the ventilators now. People who did recover were often paralyzed, or had other ongoing health problems the rest of their lives.

We are resilient and will get through this. Just be patient (a lacking attribute now) and we will get through this. Stay home and help each other when you can.

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Love your story, please share more insight and wisdom, anytime! ❤️ Patience is a virtue, time to look to our higher conscious and realize what we have been living without that we need to put first 🙏

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Very good story to let people know about quarantine and protection. This virus is very contagious. Keep your door close and wash your hands after you take care of your mails.

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@devehf

My dad has his monthly infusion of a monoclonal antibody for multiple myeloma next week at Mayo Jacksonville. We are concerned about being exposed to so many people during this day long treatment. Does anyone know if masks are available at the front door of the Mangurian Building right when you walk in? Or can I go to the pharmacy on the main floor of the Davis building to see if we can buy masks?

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Hi @devehf and welcome to Mayo Clinic Connect. Please visit this Mayo Clinic website with specific information about COVID-19 when coming to Mayo for procedures.
https://www.mayoclinic.org/covid-19
https://www.mayoclinic.org/covid-19/florida Specific info for the Florida campus
https://www.mayoclinic.org/patient-visitor-guide/covid-19-faqs/cancer Specific questions and answers about COVID-19 for cancer patients

I'm not sure about the availability of masks, but will try to find out. Please note that your father will only be allowed to have one other person accompany him. Will that be you?

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@mom23boys

Hi Leonard. I was just reading thru posts and saw yours. I'm not sure where you are. I'm in rural CO. We have 22 positive cases and 1 death of an 80+ yr old woman with other health conditions….within ours and 2 other counties, total. Trying to self-isolate but it is difficult to get basic necessities and food items to hold over from just one source. Walmart did a $35 or above order for free except that they only filled less than half my order. I ended up going to 5 stores over 10 days (hard to self-isolate when you have to search all over town for what you need to isolate). Very frustrating. I laughed at your candy comment. In trying to get things I need I kept forgetting my comfort candy. I won't bring myself to go out just for that even though it's tempting. You take care.

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@mom23boys I know what you mean about getting half your order . It is because of those who horded items in the first place . I had to go to diff. stores to get all I needed . I couldn't get ground meat from one store so had to wait then I finally found it . Stay safe be patient

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@lioness

@mom23boys I know what you mean about getting half your order . It is because of those who horded items in the first place . I had to go to diff. stores to get all I needed . I couldn't get ground meat from one store so had to wait then I finally found it . Stay safe be patient

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@lioness, we have had similar issues with our local Walmart stores. There are 4 close by and NONE have had most of what we need. Target is the store that we have had the most success with. They have a published self limiting campaign in our local stores to prevent hoarding so that has had a positive effect on availability. I'm sure there are more Walmarts around than Target stores, but guess where I'll continue to shop even more? Capitalism is great, but not at the expense of others who need supplies and food to just survive. Good luck to all. We even cancelled our Walmart pharmacy needs in favor of a CVS located in our favorite Target store. It is not too busy like the Walmarts so exposure is also more limited for safety of all high risk patients.
Take care!

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@lioness and all, Walmart also has store policies that limit vital pain meds that patients need, which I didn't know anything about until trying to pickup an opioid prescription for my wife. We were counting the days before we could have our prescription filled when I stepped up to the pharmacy check out to pick it up. They said it wouldn't be available for 3 more days despite it being 30 days past her last script for the same med. I asked them why and they said the insurance and doctor had approved the script for pick up that day but it was Walmarts policy to extend the refill date the 3 added days. I hope someone can tell me that I'm mistaken because how can any retailer arbitrarily withhold a patients legal script for a controlled substance if it is legal? Someone please tell me I am wrong, or reinforce my experience. Walmart or any pharmacy has no right to do this. This is another reason as I mentioned previously that we moved our pharmacy needs to Target. We picked the script on the next day there, 2 days before we could have at Walmart. My wife simply could not wait as she was suffering with many painful side effects of MM chemo.

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@kandc317

@lioness and all, Walmart also has store policies that limit vital pain meds that patients need, which I didn't know anything about until trying to pickup an opioid prescription for my wife. We were counting the days before we could have our prescription filled when I stepped up to the pharmacy check out to pick it up. They said it wouldn't be available for 3 more days despite it being 30 days past her last script for the same med. I asked them why and they said the insurance and doctor had approved the script for pick up that day but it was Walmarts policy to extend the refill date the 3 added days. I hope someone can tell me that I'm mistaken because how can any retailer arbitrarily withhold a patients legal script for a controlled substance if it is legal? Someone please tell me I am wrong, or reinforce my experience. Walmart or any pharmacy has no right to do this. This is another reason as I mentioned previously that we moved our pharmacy needs to Target. We picked the script on the next day there, 2 days before we could have at Walmart. My wife simply could not wait as she was suffering with many painful side effects of MM chemo.

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Oh geez- so glad you were able to get the meds at Target- how horrific what Walmart did- doc covered the basics and they still delay- I feel this should be addressed to the Attorney General of your area- your Senator – because the Dr was on top of it. Cancer is hard enough without this nonsense .

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@colleenyoung

Hi @devehf and welcome to Mayo Clinic Connect. Please visit this Mayo Clinic website with specific information about COVID-19 when coming to Mayo for procedures.
https://www.mayoclinic.org/covid-19
https://www.mayoclinic.org/covid-19/florida Specific info for the Florida campus
https://www.mayoclinic.org/patient-visitor-guide/covid-19-faqs/cancer Specific questions and answers about COVID-19 for cancer patients

I'm not sure about the availability of masks, but will try to find out. Please note that your father will only be allowed to have one other person accompany him. Will that be you?

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I will drive and stay in the car. I just want to make sure that masks are available. If that is even recommended. I fear that a surgical mask which is typically available does not limit the spread of this virus. If N95 masks are not available, then I want to find out if they are available for purchase at the pharmacy in the Davis Building.

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This video is worth viewing-

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@devehf

My dad has his monthly infusion of a monoclonal antibody for multiple myeloma next week at Mayo Jacksonville. We are concerned about being exposed to so many people during this day long treatment. Does anyone know if masks are available at the front door of the Mangurian Building right when you walk in? Or can I go to the pharmacy on the main floor of the Davis building to see if we can buy masks?

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Dave – I had my infusion there on the 20th and no one was wearing a mask. There were no masks at the front door of the Mangurian but a table was set up to ask you 3 questions before you entered. I would not go to the Davis building for any reason! I go tomorrow to the Mayo building for radiation simulation and back on Tuesday for brain radiation. Do you happen to have a bandana your dad could wear?

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I have brain radiation this week at Mayo in Florida. Tomorrow is the simulation (3 hour appointment) and Tuesday is the radiation. I need to take Ativan to keep me still during these procedures which means I need a driver. My neighbor is taking me both days but I am afraid to be so close to him in the car that I will be wearing a mask. I am going to have him stay outside on the campus to keep him safe while I am inside. I did have my labs, PA,infusions last week and no one wore a mask.

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