Are you getting cancer treatments during COVID-19?

Posted by Colleen Young, Connect Director @colleenyoung, Thu, Mar 26 4:46pm

Are you getting cancer treatments at the moment? What about diagnostic tests, like blood tests, CT scans, mammography, PET scans etc? Is your surgery going ahead as planned or postponed?

I’d like to hear from you. What is like being in treatment during the COVID-19 crisis? How are you doing?

I am still getting my Lanreotide injection every 4 weeks and blood tests. My wife drives me, but is not allowed in the clinic with me. Oncology staff is fully equipped with PPE

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Scan, MRI & Blood Test are usually done quarterly but have been pushed out 6-8 weeks.

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@124124eva

If they are offering it, you should accept the testing since you are immune compromised, and they are looking out for your best interest!

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EM60 – I have not left the house in over 2 weeks…..what would be the purpose of having me tested? Now that I have been exposed to the Mayo drs and technicians, perhaps I can get tested in 14 days from now.

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My MOHS surgery for skin cancer is still on for this Friday 4/3. Word from my nephrologist and oncologist indicate those next appts will be by telephone, unless something shows up in the labwork. Appts are end of May, so labs will be pulled about the 10th of May.
Ginger

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@gingerw

My MOHS surgery for skin cancer is still on for this Friday 4/3. Word from my nephrologist and oncologist indicate those next appts will be by telephone, unless something shows up in the labwork. Appts are end of May, so labs will be pulled about the 10th of May.
Ginger

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@gingerw– I often think that a large majority of office visits are a waste of time and can be done over the phone. If something shows up on lab work that is not part of a life-threatening illness than I also think that this should be done over the phone. My first appointment with my new PCP has been moved.

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@seaspray

EM60 – I have not left the house in over 2 weeks…..what would be the purpose of having me tested? Now that I have been exposed to the Mayo drs and technicians, perhaps I can get tested in 14 days from now.

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@seaspray– Hello. I'm glad that you are staying at home. I have an autoimmune disease that has been dormant for many years and I also have stage 4 lung cancer. Most people's symptoms show up within 14 days (give or take) but the transmission of the virus can take up to a month. If you have been offered testing I'd take it too. I'm also wondering what the time difference is between your self-quarantine and going to Mayo.
This is a complete and easy to understand video from Mayo Clinic. You will really benefit from watching it!
https://connect.mayoclinic.org/discussion/covid-19-coronovirus/?pg=15#comment-381831

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@merpreb

@gingerw– I often think that a large majority of office visits are a waste of time and can be done over the phone. If something shows up on lab work that is not part of a life-threatening illness than I also think that this should be done over the phone. My first appointment with my new PCP has been moved.

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@merpreb One of the things I was thinking about is exactly that. It may come to pass that the medical practices may move more towards telemedicine when possible, using telephone or video appts when applicable. Then my mind wanders to those in our population who see their appt as a solid connection with healthgivers, a person to speak to and touch them. It's a delicate balance.
Ginger

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My stepmom went for her in person appt with her neuro oncologist yesterday. Mayo FL was sparsely populated. Very different than normal. Her onc said it was safe to be in the building because there were so few people there. She got really good news, thankfully! Still, it seems like this could have been delivered telephonically even if over Zoom or equivalent. It's a big deal to drive all the way in to the office.

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@devehf

My stepmom went for her in person appt with her neuro oncologist yesterday. Mayo FL was sparsely populated. Very different than normal. Her onc said it was safe to be in the building because there were so few people there. She got really good news, thankfully! Still, it seems like this could have been delivered telephonically even if over Zoom or equivalent. It's a big deal to drive all the way in to the office.

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@devehf– I agree with you, David. There are doctors and nurses who might be contagious too. I don't believe that there is any place that is 100% safe. I'm glad that your stepmom recived good news! Good news is always welcomed over the phone!

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@gingerw

@merpreb One of the things I was thinking about is exactly that. It may come to pass that the medical practices may move more towards telemedicine when possible, using telephone or video appts when applicable. Then my mind wanders to those in our population who see their appt as a solid connection with healthgivers, a person to speak to and touch them. It's a delicate balance.
Ginger

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@gingerw– I do see that being touched can be very reassuring, even with good news. We've had to make changes though, from one doctor to experts. I think that right now we will have to see what the population is like after this and what the medical field decides to do.

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@gingerw I just found out one of the ladies here who didn't listen unfortunately didn't listen to stay in came in contact with a person who also didn't listen now she is in quarantine for 2 weeks. Luckily for her she is in good health now I do have her mailbox key so will get her mail for her .

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@merpreb

@seaspray– Hello. I'm glad that you are staying at home. I have an autoimmune disease that has been dormant for many years and I also have stage 4 lung cancer. Most people's symptoms show up within 14 days (give or take) but the transmission of the virus can take up to a month. If you have been offered testing I'd take it too. I'm also wondering what the time difference is between your self-quarantine and going to Mayo.
This is a complete and easy to understand video from Mayo Clinic. You will really benefit from watching it!
https://connect.mayoclinic.org/discussion/covid-19-coronovirus/?pg=15#comment-381831

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Merry – I am not understanding your reply to me. As I said, I have been only at my home for 14 days, if not longer, before going to Mayo this Monday and Tuesday for radiation. Why would I take the test when I was only just then exposed? Nothing would show up and that is a waste.

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@seaspray

Merry – I am not understanding your reply to me. As I said, I have been only at my home for 14 days, if not longer, before going to Mayo this Monday and Tuesday for radiation. Why would I take the test when I was only just then exposed? Nothing would show up and that is a waste.

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@seaspray. I'm sorry for the confusion. I know that the test isn't the most comfortable and that the results aren't always reliable but it must be Mayo's standard right now prior to entry or procedures. If someone's test does turn out positive then they caught someone in time so that they can be isolated. Best of luck.

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@merpreb

@seaspray. I'm sorry for the confusion. I know that the test isn't the most comfortable and that the results aren't always reliable but it must be Mayo's standard right now prior to entry or procedures. If someone's test does turn out positive then they caught someone in time so that they can be isolated. Best of luck.

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@merpreb, COVID-19 testing has not yet become a standard part of screening for entry at hospitals. Have you experienced otherwise?

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@colleenyoung

@merpreb, COVID-19 testing has not yet become a standard part of screening for entry at hospitals. Have you experienced otherwise?

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@collenyoung- No I haven't been hospitalized nor read anything about it. It was a suggestion that it might be their standard.

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