Are you getting cancer treatments during COVID-19?

Posted by Colleen Young @colleenyoung, Mar 26, 2020

Are you getting cancer treatments at the moment? What about diagnostic tests, like blood tests, CT scans, mammography, PET scans etc? Is your surgery going ahead as planned or postponed?

I’d like to hear from you. What is like being in treatment during the COVID-19 crisis? How are you doing?

@gingerw

@marvinjsturing Marvin, that must be frustrating for both you and your wife. Not having a support team by your side at procedures can sometimes make the situation feel lonely. Are you up to having some quality time with her later in the day, then?
Ginger

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@gingerw Yes, we are able to have quality time when I get home. Starting to notice fatigue and nausea from treatments but I have meds for the nausea. I am hoping to include my wife in the appointments with the doctor through a Messenger call or at least on speaker phone.

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@marvinjsturing

@gingerw Yes, we are able to have quality time when I get home. Starting to notice fatigue and nausea from treatments but I have meds for the nausea. I am hoping to include my wife in the appointments with the doctor through a Messenger call or at least on speaker phone.

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Hello- @marvinjsturing. When I had my treatments I took anti-nausea meds before, during and after my treatments and before bed until I didn't feel ill anymore. I'm hoping that you can ask for more help with feeling ill. That must be miserable?

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@merpreb I take the meds an hour before my treatment and as needed after my treatment. I am so thankful for the small blessings like feeling good when you wake up in the morning.

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@marvinjsturing

@merpreb I take the meds an hour before my treatment and as needed after my treatment. I am so thankful for the small blessings like feeling good when you wake up in the morning.

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@marvinjsturing– Indeed small blessings are the bomb! I took them even if I didn't feel ill- I wanted to keep up on them because I hate being sick to my stomach! lol. Hopefully, as your treatments proceed you will feel less ill. Unfortunately, fatigue is the main side effect. But I'd much rather feel fatigued!

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@merpreb It's nice to be "confined" to home. I can take a nap at anytime I want to!

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@gingerw

@mom23boys I have a MOHS procedure scheduled on 4/3 at my dermatologist's office. Twice I have checked with them, and it is still moving forward as scheduled. Perhaps because I also have a history of melanoma, they are keeping it.
Ginger

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I hope it goes well. i have a fairly large area by my collar bone that I'm not looking forward to having removed. It's been there for a few years but getting bigger. Took breast cancer for me to start taking care of all of the other "little" things, as I call these annoyances. I'd rather put it off a bit until all of this virus stuff has passed. Too much risk for infection due to low white blood cell counts from my other treatment. Again, I hope all goes well with your Mohs.

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@mom23boys

I hope it goes well. i have a fairly large area by my collar bone that I'm not looking forward to having removed. It's been there for a few years but getting bigger. Took breast cancer for me to start taking care of all of the other "little" things, as I call these annoyances. I'd rather put it off a bit until all of this virus stuff has passed. Too much risk for infection due to low white blood cell counts from my other treatment. Again, I hope all goes well with your Mohs.

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@mom23boys Thank you. The area they are working on is right by my throat and collarbone, too! It was amusing to me to listen to them, "You're going to have a sizeable scar, and may want plastic surgery to make it more presentable." Heck, I have earned every scar, wrinkle and gray hair! My melanoma scar is 32 stitches on right forearm ;))
Ginger

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No treatments or surgeries in NM. My stage 4 prostate cancer is deemed a non-essential "elective" surgery. Just had the bone scan and CT scan showing it may not have metastasized yet, and then told three days later my surgery to remove the prostate and lymph nodes had been put on hold. Apparently the powers that be in New Mexico, ie our little governor, have determined abortions are necessary procedure, but cancer removal is not! Gleason 10 PSA 15. Pain throughout my body. "Dead man walkin", except my Faith says I will indeed live and not die… Testimony time down the road!

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@papabill

No treatments or surgeries in NM. My stage 4 prostate cancer is deemed a non-essential "elective" surgery. Just had the bone scan and CT scan showing it may not have metastasized yet, and then told three days later my surgery to remove the prostate and lymph nodes had been put on hold. Apparently the powers that be in New Mexico, ie our little governor, have determined abortions are necessary procedure, but cancer removal is not! Gleason 10 PSA 15. Pain throughout my body. "Dead man walkin", except my Faith says I will indeed live and not die… Testimony time down the road!

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Hey PapaBill, will go along with you on our "little governor"! I also live in our Third World State. Besides our governor, our medical treatment and hospitals are some of the worst in the country. I fought for over a year to get treatment for my Lyme Disease they said I didn't have it because we have no ticks in NM.
Long story, anyway hang in there!
Hope this too shall pass.
(please don't take my coments about our medical facilities mean that that's the way I feel about our state! Lived here for 45 years and wouldn't ever leave!)
Sundance RB

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@sundance6

Hey PapaBill, will go along with you on our "little governor"! I also live in our Third World State. Besides our governor, our medical treatment and hospitals are some of the worst in the country. I fought for over a year to get treatment for my Lyme Disease they said I didn't have it because we have no ticks in NM.
Long story, anyway hang in there!
Hope this too shall pass.
(please don't take my coments about our medical facilities mean that that's the way I feel about our state! Lived here for 45 years and wouldn't ever leave!)
Sundance RB

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Thanks. My urologist and pcp have been great through this. Found Rust Hospital to be very professional through all my recent tests. Passed experience in NM over the years has been less stellar for sure. Have a great day.

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@colleenyoung — Thank you for the questions. As it happened, I finished my breast radiations exactly 16 days ago. Thankfully! The other things I need to do have been canceled until the threat of COVID-19 is over. That include mammography, 6-month follow-up with surgeon, blood work, CT scans, etc..

At this point, I have radiation side-effects, but also feel pretty stressed, and am experiencing what may be described as "brain fog" … Very NOT me! Distressing in and of itself. Mental health care is available, if you feel comfortable with "Telemedicine". I don't.

Regardless, I am keeping a positive attitude and optimism. They are very important in life, particularly at such times when our sense of "lack of control over our own lives" tends to drag us down.

Stay strong and stay safe!
–Dee

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@gingerw

@mom23boys Thank you. The area they are working on is right by my throat and collarbone, too! It was amusing to me to listen to them, "You're going to have a sizeable scar, and may want plastic surgery to make it more presentable." Heck, I have earned every scar, wrinkle and gray hair! My melanoma scar is 32 stitches on right forearm ;))
Ginger

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I'm laughing, but I know you will understand. In December I had skin cancer removed from each thigh and my right shin. Each had about 10-11 stitches. The doc "sadly" told me I'd have a scar on each and a little lumpy for awhile. I didn't care. Battle scars, I say.
Peggie

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