Are you getting cancer treatments during COVID-19?

Are you getting cancer treatments at the moment? What about diagnostic tests, like blood tests, CT scans, mammography, PET scans etc? Is your surgery going ahead as planned or postponed?

I’d like to hear from you. What is like being in treatment during the COVID-19 crisis? How are you doing?

@mom23boys

I hope it goes well. i have a fairly large area by my collar bone that I'm not looking forward to having removed. It's been there for a few years but getting bigger. Took breast cancer for me to start taking care of all of the other "little" things, as I call these annoyances. I'd rather put it off a bit until all of this virus stuff has passed. Too much risk for infection due to low white blood cell counts from my other treatment. Again, I hope all goes well with your Mohs.

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@mom23boys Thank you. The area they are working on is right by my throat and collarbone, too! It was amusing to me to listen to them, "You're going to have a sizeable scar, and may want plastic surgery to make it more presentable." Heck, I have earned every scar, wrinkle and gray hair! My melanoma scar is 32 stitches on right forearm ;))
Ginger

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No treatments or surgeries in NM. My stage 4 prostate cancer is deemed a non-essential "elective" surgery. Just had the bone scan and CT scan showing it may not have metastasized yet, and then told three days later my surgery to remove the prostate and lymph nodes had been put on hold. Apparently the powers that be in New Mexico, ie our little governor, have determined abortions are necessary procedure, but cancer removal is not! Gleason 10 PSA 15. Pain throughout my body. "Dead man walkin", except my Faith says I will indeed live and not die… Testimony time down the road!

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@papabill

No treatments or surgeries in NM. My stage 4 prostate cancer is deemed a non-essential "elective" surgery. Just had the bone scan and CT scan showing it may not have metastasized yet, and then told three days later my surgery to remove the prostate and lymph nodes had been put on hold. Apparently the powers that be in New Mexico, ie our little governor, have determined abortions are necessary procedure, but cancer removal is not! Gleason 10 PSA 15. Pain throughout my body. "Dead man walkin", except my Faith says I will indeed live and not die… Testimony time down the road!

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Hey PapaBill, will go along with you on our "little governor"! I also live in our Third World State. Besides our governor, our medical treatment and hospitals are some of the worst in the country. I fought for over a year to get treatment for my Lyme Disease they said I didn't have it because we have no ticks in NM.
Long story, anyway hang in there!
Hope this too shall pass.
(please don't take my coments about our medical facilities mean that that's the way I feel about our state! Lived here for 45 years and wouldn't ever leave!)
Sundance RB

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@sundance6

Hey PapaBill, will go along with you on our "little governor"! I also live in our Third World State. Besides our governor, our medical treatment and hospitals are some of the worst in the country. I fought for over a year to get treatment for my Lyme Disease they said I didn't have it because we have no ticks in NM.
Long story, anyway hang in there!
Hope this too shall pass.
(please don't take my coments about our medical facilities mean that that's the way I feel about our state! Lived here for 45 years and wouldn't ever leave!)
Sundance RB

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Thanks. My urologist and pcp have been great through this. Found Rust Hospital to be very professional through all my recent tests. Passed experience in NM over the years has been less stellar for sure. Have a great day.

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@colleenyoung — Thank you for the questions. As it happened, I finished my breast radiations exactly 16 days ago. Thankfully! The other things I need to do have been canceled until the threat of COVID-19 is over. That include mammography, 6-month follow-up with surgeon, blood work, CT scans, etc..

At this point, I have radiation side-effects, but also feel pretty stressed, and am experiencing what may be described as "brain fog" … Very NOT me! Distressing in and of itself. Mental health care is available, if you feel comfortable with "Telemedicine". I don't.

Regardless, I am keeping a positive attitude and optimism. They are very important in life, particularly at such times when our sense of "lack of control over our own lives" tends to drag us down.

Stay strong and stay safe!
–Dee

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@gingerw

@mom23boys Thank you. The area they are working on is right by my throat and collarbone, too! It was amusing to me to listen to them, "You're going to have a sizeable scar, and may want plastic surgery to make it more presentable." Heck, I have earned every scar, wrinkle and gray hair! My melanoma scar is 32 stitches on right forearm ;))
Ginger

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I'm laughing, but I know you will understand. In December I had skin cancer removed from each thigh and my right shin. Each had about 10-11 stitches. The doc "sadly" told me I'd have a scar on each and a little lumpy for awhile. I didn't care. Battle scars, I say.
Peggie

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@colleenyoung Unfortunately my prostatectomy for late April was cancelled. They were unable to tell me when I might be able to reschedule.

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My treatments are over however last week I went for blood work we remained social distancing and I wore an N95 mask & gloves as did the person drawing my blood,( he also had on a shield), my WCB is low ( 2.4) however my physician has since contacted me & suspended all tests until further notice, advised me to self quarantine until she advises me otherwise . I had a specialist appointment booked for April 1 & when I told them I would prefer not to come in they told me the Doctor was not seeing anyone just making phone calls & he would phone me at the time I was scheduled for. so things are being taken care of just in a different way. Stay safe everyone! & remember to wash your hands and social distance.

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@sundance6

Hey PapaBill, will go along with you on our "little governor"! I also live in our Third World State. Besides our governor, our medical treatment and hospitals are some of the worst in the country. I fought for over a year to get treatment for my Lyme Disease they said I didn't have it because we have no ticks in NM.
Long story, anyway hang in there!
Hope this too shall pass.
(please don't take my coments about our medical facilities mean that that's the way I feel about our state! Lived here for 45 years and wouldn't ever leave!)
Sundance RB

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@sundance6 30 years ago I got the same response from the company doctor when I was diagnosed with Lyme. The stupid MD never looked at my medical file which showed I lived in Connecticut for 40 years and had rented a cottage for 5 years in LYME CT. Hope you were finally able to convince your MD.

Liked by sundance6

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Dadl48, So no I could not convince my PC and 7 other doctors I had it because I life in the high desert and we don't have Black leged ticks here. It finally came from my Orthopedic doc who started in medicine as a Microbiologist in the south. I see him every 60 days for a shot in my hip for burcitias. Everytime I would come in he'd asked me how I was doing and if had any of doctors I had seen had any idea what was wrong with me.
One night I watched a golf show that had Pro Golfer Jimmy Walker on. Toward the end of the show they asked him about his Lyme disease that he and his wife both had.
All of a sudden the Light Bulb went off. I imediately came up to mmy office and started reading about it. Copied off a bunch of articles about it. Went into to see my ortho guy for a shot that week and tookthe articles with me. He just smiled! He said he felt I had Lyme disease but it was out of his field at the hospital.
He said the first time I told him my symptoms he knew what it was. He also knew that the way they intially treated me with a small dose of antibiotics would cover it up. It would not show up on the blood test.
Spent the last year and a half researching it.
Something that has come to light recently is that golfers are very suseptable to Lyme Disease because we go out in the brush looking for our ball. Being in the golf business I have played in most areas of the country. Didn't realize that a pro golfer here in Albuquerque,Tim Heron, had it also.
My PC still will not admit that I have it, partly because of hospital protocal, but we've worked out where he treats the "Symptoms"! In my case Headaches and Fatigue are my Biggest problem!
I take two Oxycodone's every day and i hardly have them anymore. I've given up telling others what I take because the look at my arms for the Track Marks. Although new info I have read recently that the brusing on my arms and legs aren't from the Blood thinners I take,but now they say they are from Lyme.
My family still does not understand what it is like.
I had to take a four day business trip a couple weeks ago. It was all driving 1600 miles. Worked four stright 12 hour days. I knew what would happen and it did. I have been moreorless down since them although I'm starting to feel better. Although today I slept approx 16 hours. But I'm getting my strength back.
I don't know if you have seen but there have been two celebrities, Justin Bieber and Shania Twain who have come forward that they both have Lyme.
It helps to have some famous people come forward that has suffered from it! They try and explain it will never go away. I've found that people have different effects from it, but the headaches, fatigue and musscel soreness seemed to be comon.
Sorry for going on about it, but I truly believe it is misdiagnosed 90% of the time.
I'm sure because of it as an autoimune disease and my age puts me at higher risk for the coronavirus, I reaally don't give a Hoot!
Take Care!
Sundance(RB)

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@sundance6

Dadl48, So no I could not convince my PC and 7 other doctors I had it because I life in the high desert and we don't have Black leged ticks here. It finally came from my Orthopedic doc who started in medicine as a Microbiologist in the south. I see him every 60 days for a shot in my hip for burcitias. Everytime I would come in he'd asked me how I was doing and if had any of doctors I had seen had any idea what was wrong with me.
One night I watched a golf show that had Pro Golfer Jimmy Walker on. Toward the end of the show they asked him about his Lyme disease that he and his wife both had.
All of a sudden the Light Bulb went off. I imediately came up to mmy office and started reading about it. Copied off a bunch of articles about it. Went into to see my ortho guy for a shot that week and tookthe articles with me. He just smiled! He said he felt I had Lyme disease but it was out of his field at the hospital.
He said the first time I told him my symptoms he knew what it was. He also knew that the way they intially treated me with a small dose of antibiotics would cover it up. It would not show up on the blood test.
Spent the last year and a half researching it.
Something that has come to light recently is that golfers are very suseptable to Lyme Disease because we go out in the brush looking for our ball. Being in the golf business I have played in most areas of the country. Didn't realize that a pro golfer here in Albuquerque,Tim Heron, had it also.
My PC still will not admit that I have it, partly because of hospital protocal, but we've worked out where he treats the "Symptoms"! In my case Headaches and Fatigue are my Biggest problem!
I take two Oxycodone's every day and i hardly have them anymore. I've given up telling others what I take because the look at my arms for the Track Marks. Although new info I have read recently that the brusing on my arms and legs aren't from the Blood thinners I take,but now they say they are from Lyme.
My family still does not understand what it is like.
I had to take a four day business trip a couple weeks ago. It was all driving 1600 miles. Worked four stright 12 hour days. I knew what would happen and it did. I have been moreorless down since them although I'm starting to feel better. Although today I slept approx 16 hours. But I'm getting my strength back.
I don't know if you have seen but there have been two celebrities, Justin Bieber and Shania Twain who have come forward that they both have Lyme.
It helps to have some famous people come forward that has suffered from it! They try and explain it will never go away. I've found that people have different effects from it, but the headaches, fatigue and musscel soreness seemed to be comon.
Sorry for going on about it, but I truly believe it is misdiagnosed 90% of the time.
I'm sure because of it as an autoimune disease and my age puts me at higher risk for the coronavirus, I reaally don't give a Hoot!
Take Care!
Sundance(RB)

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@sundance6
Yours is not an unfamiliar story. Ten or so years ago, a friend traveled in Australia and picked up Lyme disease and another virulent bacterium from the tick. She went to dozens of doctors here in California who had no idea what was wrong, and one who gave her exactly the wrong treatment. Finally, she was diagnosed correctly by the one lab in the area which knew how to test for it. In the interim, the Australia Health System was denying that it had a Lyme disease issue, and county health departments all over America were denying incidents, because, if doctors can't diagnose it and/or don't report it, then there are no county health records for it. By this time, the borreliosis had embedded itself in her connective tissue, forming shell biomes which antibiotics and other treatments couldn't break into, etc. It's a real nightmare, as you well know, and continues to be a controversial subject among some the best known researchers. My heart goes out to you on this struggle and frustration.

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My brother took me out today, I didn’t realize so many businesses were closed. 2 shopping centers with over 400 shops.
17 cases in my county, (550,000 people) no deaths.
I’ve been home for nearly a year so isolating myself is no big deal.
Instacart doesn’t let me order TP, paper towels etc.
People are going crazy hoarding stuff.
I was running low on candy today, now there’s cause to panic!!!
@lioness, Linda, I think I read a post earlier today where you said Instacart has free delivery if you spend $35. To qualify for the free delivery don’t you have to pay $99 a year? I usually pay $3.99 but occasionally the delivery fee is $7.99 and I don’t know why the difference, do you? Plus all the other fees plus tip . It is convenient but it gets quite expensive especially when you have to order from multiple stores to get the things you need. Last time I ordered from four different stores and still didn’t get everything I requested.
My dad, Aunts, Uncles & Grandparents lived through the 1918 epidemic, 50-100 million deaths. We don’t know what hardship is. We’re so spoiled.
Stay safe all,
Jake

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I have stage IIIA Multiple Myeloma. I was diagnosed in June, 2019. I am continuing my treatments with KPD, cycle #4. My restaging PET scan and BMB were cancelled at the last minute, on 3/24/20. They were scheduled for 3/24 and 3/25 at Mayo-Jacksonville, FL. I am an R.N., so I understand the rationale of cancelling non-essential tests and procedures, during this critical time, and the unpredictability that COVID-19 has brought to our world. Right now, the tentative plan for me, is to restage after this 4th cycle, and if bone lesions are under control, we may harvest and freeze stem cells, for future ASCT. I am getting progressively weaker with treatment, although my back, neck, and hip pain has improved, overall. I am very thankful for the decreased bone pain, and pray it is a good sign! I am self isolating as much as possible, because my IgG and IgM are below normal. However, my husband is still working, with the public in retail. So it is still scary. He is being careful at work. We picked up a grocery order at Walmart yesterday, and had to wait a while in the car. Walmart was as busy as ever, and people were coming and going as if nothing is going on. Families with children, and groups of 4, 5, and 6 people with only small purchases, going in and out of the store! The parking lot was full! I wanted to get out of the car and scream at people to go home (but I didn't)! I couldn't believe it! So, I am afraid this COVID-19 pandemic will continue for much longer than anticipated! And my treatment plan will change accordingly. Sorry for the long post!

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@jakedduck1

My brother took me out today, I didn’t realize so many businesses were closed. 2 shopping centers with over 400 shops.
17 cases in my county, (550,000 people) no deaths.
I’ve been home for nearly a year so isolating myself is no big deal.
Instacart doesn’t let me order TP, paper towels etc.
People are going crazy hoarding stuff.
I was running low on candy today, now there’s cause to panic!!!
@lioness, Linda, I think I read a post earlier today where you said Instacart has free delivery if you spend $35. To qualify for the free delivery don’t you have to pay $99 a year? I usually pay $3.99 but occasionally the delivery fee is $7.99 and I don’t know why the difference, do you? Plus all the other fees plus tip . It is convenient but it gets quite expensive especially when you have to order from multiple stores to get the things you need. Last time I ordered from four different stores and still didn’t get everything I requested.
My dad, Aunts, Uncles & Grandparents lived through the 1918 epidemic, 50-100 million deaths. We don’t know what hardship is. We’re so spoiled.
Stay safe all,
Jake

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@jakedduck1 , you mentioned 1918. A friend just told me about a book, "Minnesota 1918, When Flu, Fire, and War Ravaged the State." I have on reserved at library when it opens back up. In MN, their were political rally's going on to boaster support for war, but it resulted in spread of flu. A terrible time in history, which I was not even aware of. If they taught in school, I must of been sleeping that day.

Laurie

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@jakedduck1

My brother took me out today, I didn’t realize so many businesses were closed. 2 shopping centers with over 400 shops.
17 cases in my county, (550,000 people) no deaths.
I’ve been home for nearly a year so isolating myself is no big deal.
Instacart doesn’t let me order TP, paper towels etc.
People are going crazy hoarding stuff.
I was running low on candy today, now there’s cause to panic!!!
@lioness, Linda, I think I read a post earlier today where you said Instacart has free delivery if you spend $35. To qualify for the free delivery don’t you have to pay $99 a year? I usually pay $3.99 but occasionally the delivery fee is $7.99 and I don’t know why the difference, do you? Plus all the other fees plus tip . It is convenient but it gets quite expensive especially when you have to order from multiple stores to get the things you need. Last time I ordered from four different stores and still didn’t get everything I requested.
My dad, Aunts, Uncles & Grandparents lived through the 1918 epidemic, 50-100 million deaths. We don’t know what hardship is. We’re so spoiled.
Stay safe all,
Jake

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@jakeduck1 No Instacart you have to by into this for delivery which is 99 dollars a year I pay 9.99 a month for this but Walmart.com is buy 35.00 or more and it is free delivery . My MOm was in the epidemic she had scarlet fever during that time. Stay save and I got 2 large bars of dark chocolate at Walgreens. yum

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