Are you getting cancer treatments during COVID-19?

Posted by Colleen Young @colleenyoung, Mar 26, 2020

Are you getting cancer treatments at the moment? What about diagnostic tests, like blood tests, CT scans, mammography, PET scans etc? Is your surgery going ahead as planned or postponed?

I’d like to hear from you. What is like being in treatment during the COVID-19 crisis? How are you doing?

@gingerw

@leannn You have so much to be concerned about, and you're right, Mayo Connect is a great place to come and vent. We are all on our health journeys, and who else can comprehend our hesitations and worries, than fellow patients?! Drop by at any time and let us know how we can help you, even having a virtual shoulder to lean on. You're not alone, here.
Ginger

Jump to this post

@gingerw @colleenyoung @harriethodgson1 Thank you, I certainly have found that to be true. It's good to have the perspective and support.

REPLY
@buckslayer

Well, to share some good news, my husband's Whipple procedure on Wednesday was a success in spite of some complications once underway. Dr. Truty and his team are truly skilled surgeons who care – I feel they are just amazing. John is doing well and may even come home by this coming Wednesday, just one week later, cancer-free after a treatment program we began last June (diagnosis was in May, symptoms had begun in Feb/March). I know we are very lucky that he responded so well to chemo and radiation and that he was able to be scheduled for this procedure amid the virus crisis. Although we are apart for our wedding anniversary (33 years today), Easter, and my birthday (this Monday), I feel like we've been given the greatest gift of all. He had so many people praying for him – I know that had a lot to do with this outcome as well. Thank you everyone, God Bless you on your journeys.

Jump to this post

@fassbinder Congratulation to your husband on his Whipple procedure . So happy for him and you . Congratulations on your anniversary I hope you have Skype so you can see each other or facetime . Great news and God is good . Happy Easter

REPLY

My boyfriend is receiving his blood tests and chemo infusion every 2 weeks at Kaiser Santa Clara w/out interruption during Covid 19. He’s had a kidney, spleen and part of his pancreas removed; the current chemo treatments are related to the pancreas. After he completes 3 more rounds of chemo they will be looking at surgery for the nodules on his lungs. I’m grateful that my boyfriend has a wonderful oncology team for his care. Unfortunately, his immune system is very compromised and he relies on me for grocery shopping (we don’t live together) and I work FT in a healthcare clinic. I realize my boyfriend’s situation is critical but the waiting in lines and his complaints about what I’m able to buy at the store are disheartening. Fortunately, I have a therapist I’m able to see 1 x per month, but do have times when I feel overwhelmed. Thank you for this forum where I can air my feelings.

REPLY

Please go to u tube and see what Pluto ( mini schnauzer has to say about the Virus– it's really funny and it will bring a smile to everyones face. Enjoy. Keep your therapist appointment and stay safe– I know it is difficult in these trying times. God Bless.

REPLY
@buckslayer

Well, to share some good news, my husband's Whipple procedure on Wednesday was a success in spite of some complications once underway. Dr. Truty and his team are truly skilled surgeons who care – I feel they are just amazing. John is doing well and may even come home by this coming Wednesday, just one week later, cancer-free after a treatment program we began last June (diagnosis was in May, symptoms had begun in Feb/March). I know we are very lucky that he responded so well to chemo and radiation and that he was able to be scheduled for this procedure amid the virus crisis. Although we are apart for our wedding anniversary (33 years today), Easter, and my birthday (this Monday), I feel like we've been given the greatest gift of all. He had so many people praying for him – I know that had a lot to do with this outcome as well. Thank you everyone, God Bless you on your journeys.

Jump to this post

@fassbinder
So happy for you! Your birthday, Easter and your anniversary will be better just knowing he is ok.
My friend Gary just had the Whipple done yesterday but not at Mayo. He has insurance different from mine.
I hear all good things of the panceatic group up there. Dr. Meredith at Sarasota Memorial is Gary's dr. and he is top notch in the country for Whipple.
So far so good…
It is so hard not being able to be with him. Do they allow you to visit at Mayo?
We g
The pathology report should be in on Monday and the DR. will call me with the report…very nervous about this as they have not confirmed cancer yet.
Prayers for you..stay in touch we have patients in similar situations.
Happy Birthday, Happy Easter and Happy 33rd Anniversary.
Jeanne

REPLY
@finsmom2018

Please go to u tube and see what Pluto ( mini schnauzer has to say about the Virus– it's really funny and it will bring a smile to everyones face. Enjoy. Keep your therapist appointment and stay safe– I know it is difficult in these trying times. God Bless.

Jump to this post

Thank You !! Humor can never be over-rated ❤️

REPLY
@jeanne5009

@fassbinder
So happy for you! Your birthday, Easter and your anniversary will be better just knowing he is ok.
My friend Gary just had the Whipple done yesterday but not at Mayo. He has insurance different from mine.
I hear all good things of the panceatic group up there. Dr. Meredith at Sarasota Memorial is Gary's dr. and he is top notch in the country for Whipple.
So far so good…
It is so hard not being able to be with him. Do they allow you to visit at Mayo?
We g
The pathology report should be in on Monday and the DR. will call me with the report…very nervous about this as they have not confirmed cancer yet.
Prayers for you..stay in touch we have patients in similar situations.
Happy Birthday, Happy Easter and Happy 33rd Anniversary.
Jeanne

Jump to this post

No visitors at Mayo either but we do video calls and I can also listen in to the Docs when they make rounds, as long as John remembers to patch me in. It's hard but I understand it. Getting a lot done at home though, and it's a break from 24/7 care giving, which is fine since I know he is in good hands. I hope you hear good news on the pathology report! Happy Easter 🙂

REPLY
@monroeed

My boyfriend is receiving his blood tests and chemo infusion every 2 weeks at Kaiser Santa Clara w/out interruption during Covid 19. He’s had a kidney, spleen and part of his pancreas removed; the current chemo treatments are related to the pancreas. After he completes 3 more rounds of chemo they will be looking at surgery for the nodules on his lungs. I’m grateful that my boyfriend has a wonderful oncology team for his care. Unfortunately, his immune system is very compromised and he relies on me for grocery shopping (we don’t live together) and I work FT in a healthcare clinic. I realize my boyfriend’s situation is critical but the waiting in lines and his complaints about what I’m able to buy at the store are disheartening. Fortunately, I have a therapist I’m able to see 1 x per month, but do have times when I feel overwhelmed. Thank you for this forum where I can air my feelings.

Jump to this post

Your boyfriend is very lucky to have you. I know sometimes I don't show my husband the gratitude he deserves, going to work everyday and now offering to do the grocery shopping as well. I'm still pretty active/independent and like to do things for myself. Is there possibly a friend you might enlist to help with the shopping while you are at work? Then you could take it to him after. Or maybe you could have your boyfriend try to do an online order, like Walmart, and he would see for himself how many items keep coming up "out of stock". If you aren't out to see for yourself, it's hard to imagine how ridiculous things have gotten at the stores. You hang in there, breathe, and just do the best you can. Take care of yourself.

REPLY
@finsmom2018

Please go to u tube and see what Pluto ( mini schnauzer has to say about the Virus– it's really funny and it will bring a smile to everyones face. Enjoy. Keep your therapist appointment and stay safe– I know it is difficult in these trying times. God Bless.

Jump to this post

Thanks, finsmom, for the Pluto cutie on utube. I'm sending the link to my grands.

REPLY

You are most welcome– I know it certainly brightened my day when it was sent to me!! I'm glad it brightened your day/ or anyone else who saw it. Happy Easter!

REPLY
@monroeed

My boyfriend is receiving his blood tests and chemo infusion every 2 weeks at Kaiser Santa Clara w/out interruption during Covid 19. He’s had a kidney, spleen and part of his pancreas removed; the current chemo treatments are related to the pancreas. After he completes 3 more rounds of chemo they will be looking at surgery for the nodules on his lungs. I’m grateful that my boyfriend has a wonderful oncology team for his care. Unfortunately, his immune system is very compromised and he relies on me for grocery shopping (we don’t live together) and I work FT in a healthcare clinic. I realize my boyfriend’s situation is critical but the waiting in lines and his complaints about what I’m able to buy at the store are disheartening. Fortunately, I have a therapist I’m able to see 1 x per month, but do have times when I feel overwhelmed. Thank you for this forum where I can air my feelings.

Jump to this post

You are a wonderful woman taking care of your boyfriend when you did not even live together. What 's about his family? He is lucky to have you and a good oncologist. Why don't you express your feelings to him? If he loves you, he will understand and stop blaming you. If not, just let him know that as just a boyfriend you don't feel obligated to listen to his complaints and if he is not happy he should find someone else. You need to take care of yourself. We have only one life and do not have the right to waste it. Good luck.

REPLY
@monroeed

My boyfriend is receiving his blood tests and chemo infusion every 2 weeks at Kaiser Santa Clara w/out interruption during Covid 19. He’s had a kidney, spleen and part of his pancreas removed; the current chemo treatments are related to the pancreas. After he completes 3 more rounds of chemo they will be looking at surgery for the nodules on his lungs. I’m grateful that my boyfriend has a wonderful oncology team for his care. Unfortunately, his immune system is very compromised and he relies on me for grocery shopping (we don’t live together) and I work FT in a healthcare clinic. I realize my boyfriend’s situation is critical but the waiting in lines and his complaints about what I’m able to buy at the store are disheartening. Fortunately, I have a therapist I’m able to see 1 x per month, but do have times when I feel overwhelmed. Thank you for this forum where I can air my feelings.

Jump to this post

@monroeed sounds like things are a bit tough for you now so, please don’t think you have to do everything. Your boyfriend has a long way to go and if you wear out, he’ll be high and dry. I don’t think that what he wants, or you either. I agree with @mom23boys when she said to try Walmart delivery. When you have some time, sit with him and make a list of every possible thing you can think of. Put the list on the refrigerator and he can mark things that run out. Then, get on line and put in an order with Walmart (or whatever grocery you shop at). Will you try this?

REPLY
Please sign in or register to post a reply.