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Life with a nephrostomy tube/bag
I recently had to have a nephrostomy tube/bag placed in my kidney, and I am struggling to adjust. I was given no instructions after being released from the hospital other than flushing it and changing the dressing. I feel it constantly pulling from the weight of the bag, and am struggling with how I might be able to ever walk more than a few steps at a time. I’ve tried pinning the bag to my clothing but it does not seem to help with the tugging sensation. Mentally, I’m also really having a hard time with the idea of having this, and I worry that I may never be able to leave my house again.
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That's too bad that you have to wear this bag/tube. I can understand that it could be quite uncomfortable. I just did a Google search for "nephrostomy tube/bag" and found a lot of information on how to manage it. Some of it sounded quite useful. It might help with your situation. I hope you can find something that works for you. I'll say a prayer for you also.
PML
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3 Reactions@pml Thank you! I ordered a bag from Amazon that will hopefully help. My mom also just made a type of garter that I can wear around my leg that I can pin it to so that I can wear dresses, because all of my pants rub on the tube area. I have googled it also, but wondered if anyone here has any firsthand experience with navigating the challenges or recommends any specific product. I also wonder if anyone has been able to exercise with this.