Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@juds

Please keep us posted. I’m at 4.5 & nervous. Get checked often.

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Yes, getting checked is a good idea for sure. I have a 4.5 ascending thoracic aneurysm and my cardiologist didn't ring any alarm bells. I had an ECHO in May and he said come back in a year for another one. Having done a lot of research on the topic, I responded with the fact that other individuals in the 4.5 range were having their aneurysms monitored every six months. He said we'd discuss it when I came back in six months. I see him in May 2020. Worrying about it will only stress you out and prevent you from enjoying life. When I don't dwell on it and imagine how much time I have left to live and will I be in pain if it ruptures and for how long and will I be going to heaven or hell (I don't really believe in a "hell"), then I stop and say to myself there is nothing for me to do but surrender to the inevitable. That inevitable is for everyone, including me! Live your life to the fullest and cultivate a philosophy which embraces life -- not just physical existence, but spiritual existence as well. I feel fortunate that I know I have this and it could remain stable for years and years to come and so can yours. Take your blood pressure medication and do what your doctors tell you to do.

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Please keep us posted. I’m at 4.5 & nervous. Get checked often.

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Hi, call me sid. I have been diagnosed with a n abdominal aortic aneurysm 3yrs ago, Initially at 3.8cm, as of today 4.5cm, it is really scary.

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I can't honestly recommend any person I haven't met and discussed my situation with. What I've done thus far was Google thoracic aortic aneurysm surgeons at the Mayo clinic in Scottsdale. The search results indicated a number of them. As I said in my earlier post, that if and when the time appears that I need to be more proactive about this, then I will ask my cardiologist for a referral and, at the same time show him my compiled list of Mayo surgeons and ask if he knows any of them. Based on personal reviews of the doctor's by other patients, I will make my choice, if my cardiologist is not familiar with anyone on the list. I hope this helps and know that this message board has some really good advice and encouragement.

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@twojunes2

Hi, I have a 4.5 AAA and am 75 years old. I've been researching doctors at the Cleveland Clinic as well as Mayo in Scottsdale. I live in Phoenix as well. My cardiologist is with HonorHealth but if and when I need some attention other than watch and see, I will be going to Mayo. June

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Please state what doctor you recommend as Mayo Phoenix is my first choice. I live in Tucson.

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@perkman66

Hello,
I am 62 years old male 6'1" 200lbs. I was recently given a CT scan to check my lungs. Former light smoker, quit 10 years ago. Lungs okay but found borderline dilated ascending aorta of 4.0cm on CT scan results.
I get conflicting info. I was told 4.0cm is high normal for my age. I have normal bp and work out 5 days a week, running and light weight training.
Should I get a thoracic surgeon now? Is my 4.0cm dilation in normal range?
Anybody know excellent thoracic surgeon in Phoenix area. Mayo clinic local but don't
seem to see much for local surgeons.
Is Tevar procedure technology at level it can be used instead of OHS.
Sorry for the long post. Thank you for letting me join the forum.

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Hi, I have a 4.5 AAA and am 75 years old. I've been researching doctors at the Cleveland Clinic as well as Mayo in Scottsdale. I live in Phoenix as well. My cardiologist is with HonorHealth but if and when I need some attention other than watch and see, I will be going to Mayo. June

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@sonyaparish69

Sonya I was diagnosed with 4.2 thoratic ascending anuerysm. I was inquiring if any one else has. had any symptoms. This is how they discovered it. I have chest pain, between the shoulder blades, dizziness and left arm pain. I realize this is a small anuerysm.

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Mine is the same size and in the same place, and I was asymptomatic (found it during a normal chest ultrasound with a cardiologist - heart disease is in my family). How's your blood pressure? At least the dizziness could be attributable to that. Mine was somewhat high (around 140-150/85-90),but I started on olmesartan and it's regular now, and the dizziness seems to have gone away (and my 6-month MRA showed no growth over the initial CT scan last year)

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@lynetteirizarry

Hi, I have AAA Aneurysm at 4.7 cm, it has quickly grown since Dec scan from 4.2. I am very worried and have appointment at Baylor on March 17th 2020...because its growing quick do you think Dr will do surgery?

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Hi Lynette,

Firstly, let me say that I am not a doctor or work in the medical field in any way. Due to an uderlying medical condition, I do have a lot of personal experience. That is a fairly quick progression, but as for size, you still have some room.

Do you have a job that requires lifting, do you work out rigorously? Those are things that you should not do. I always tell people with an active aneurysm not to lift anything that weighs more than a gallon of milk.

One other question. Did these measurements both come from CT or MRI scan? If so, what prompted the second scan so quickly?

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@sonyaparish69

Sonya I was diagnosed with 4.2 thoratic ascending anuerysm. I was inquiring if any one else has. had any symptoms. This is how they discovered it. I have chest pain, between the shoulder blades, dizziness and left arm pain. I realize this is a small anuerysm.

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Hi Sonya. I don't see where it says that you have seen a cardiologist, but you should.

Everyone has different symptoms, but you certainly can have horrific pain between the shoulder blades if you have a sudden bulge in the wall instead of just a progressive slow growth of the aorta. I did and I had sudden visual brown out. I use this term because I didn't pass out.

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