Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@booklover71

The basics from the printout I was given: Avoid lifting heavy objects. If you are straining or grunting, it is too heavy. Avoidance of contact or competitive sports, such as ice hockey, rock climbing, and windsurfing, isometric exercises that entail the Valsalva maneuver (e.g., weight lifting, sit-ups, pull-ups, push-ups, rock climbing), and exercising to exhaustion is not recommended. Walking is a good choice. Try for at least 30 minutes on most days of the week. Aerobic (moving) activities done for fun and in moderation are highly encouraged to naturally lower heart rate and blood pressures. Low impact activities, especially water activities such as swimming, are excellent activities to reduce injury to loose joints.

Side notes: I was truly disappointed about not being able to participate in Ice-Hockey 😉 My daughter added as reminder to me, I never need to go higher than 2.0. I was walking a little speedy at one point pre-TAA find and walked a mile plus at a "quick pace for this old gal" of 2.3- 2.5.

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hi, I am interested in some weight lifting but no more than 20 pounds at a time and some sit-ups, but your post said to avoid "isometric exercises that entail the Valsalva maneuver (e.g., weight lifting, sit-ups, pull-ups, push-ups, rock climbing)." Where did you get this information with these specific restrictions. I am an interested too in doing safer exercises for my aneurysm.

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@dlealy

What did you do to adjust your excercise routine? My case sounds similar to yours. My original doctor instructed me not to lift anything over 10 pounds. The second doctor said that he would have me continue doing what I normally do, & would check me again in 6 months. 🙄

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The basics from the printout I was given: Avoid lifting heavy objects. If you are straining or grunting, it is too heavy. Avoidance of contact or competitive sports, such as ice hockey, rock climbing, and windsurfing, isometric exercises that entail the Valsalva maneuver (e.g., weight lifting, sit-ups, pull-ups, push-ups, rock climbing), and exercising to exhaustion is not recommended. Walking is a good choice. Try for at least 30 minutes on most days of the week. Aerobic (moving) activities done for fun and in moderation are highly encouraged to naturally lower heart rate and blood pressures. Low impact activities, especially water activities such as swimming, are excellent activities to reduce injury to loose joints.

Side notes: I was truly disappointed about not being able to participate in Ice-Hockey 😉 My daughter added as reminder to me, I never need to go higher than 2.0. I was walking a little speedy at one point pre-TAA find and walked a mile plus at a "quick pace for this old gal" of 2.3- 2.5.

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In reply to rknee. Hello Rknee. Book lover is right. Surveillance of aneurysms does vary. I hope you are feeling better after the TVAR. A very important surgery! Valve health and aneurysms are related, and combinations of issues would influence the surveillance schedule. Good luck, and I hope your energy improves.
UPArtist

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@booklover71

I am guessing here...it may be up to the "doctor/hospital" guidelines and the overall health and age of the patient. (I am 72 - 4.1 ascending aortic aneurysm). Sometimes there are other health factors in regard to how often a patient should be tested. Since mine was found by accident when I had another unrelated ( not a heart health issue), the cardiologist decided to wait for two years before the repeat round of tests. I am comfortable with his decision since I have medication and I feel good. I adjusted exercise etc based on his recommendations and have no issues. Then again I never knew I had TAA until I had the chest muscle pull. Needless to say, it worried me in the beginning as well, and so many wonderful posters shared their experience on this thread. I am only sharing my health experience with my testing schedule going forward. I am not a doctor and everyone should refer to his/her doctor in regard to what is best for their own overall health plan.

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What did you do to adjust your excercise routine? My case sounds similar to yours. My original doctor instructed me not to lift anything over 10 pounds. The second doctor said that he would have me continue doing what I normally do, & would check me again in 6 months. 🙄

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@rknee

Hello- during the process of testing of my severe aortic stenosis my Dr discovered I have a 4.1 ascending aortic aneurysm. I was told by the surgeon that it wasn’t big enough to repair at this time so they did a TAVR and I now have a bovine valve. My question is what tests are done regularly to determine the size of the aneurysm and how often? I saw my cardiologist 7 weeks post op and he just said he just told me to come back in 6 months.

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I am guessing here...it may be up to the "doctor/hospital" guidelines and the overall health and age of the patient. (I am 72 - 4.1 ascending aortic aneurysm). Sometimes there are other health factors in regard to how often a patient should be tested. Since mine was found by accident when I had another unrelated ( not a heart health issue), the cardiologist decided to wait for two years before the repeat round of tests. I am comfortable with his decision since I have medication and I feel good. I adjusted exercise etc based on his recommendations and have no issues. Then again I never knew I had TAA until I had the chest muscle pull. Needless to say, it worried me in the beginning as well, and so many wonderful posters shared their experience on this thread. I am only sharing my health experience with my testing schedule going forward. I am not a doctor and everyone should refer to his/her doctor in regard to what is best for their own overall health plan.

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Hello- during the process of testing of my severe aortic stenosis my Dr discovered I have a 4.1 ascending aortic aneurysm. I was told by the surgeon that it wasn’t big enough to repair at this time so they did a TAVR and I now have a bovine valve. My question is what tests are done regularly to determine the size of the aneurysm and how often? I saw my cardiologist 7 weeks post op and he just said he just told me to come back in 6 months.

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Good morning Kanaaz. Question: Is anyone in the aneurysm group using collagen supplements in response to their aneurysms? I just started using a type I and type III form. My cardiologist mentioned connective tissue issues related to aneurysm /aortic disease, so I went this direction. . What information have people been finding on this topic? Thanks!!!

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@manitousxr

Hello everyone, got my calcium scoring back about two weeks ago. Score was 480 and they found a 4.2 cm ascending aortic aneurysm. Waiting on cardiologist to call. Stumbled across the group and thought I might reach out.

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Welcome to our group.
I have found it very helpful before and after my aortic aneurysm surgery this last June 1
So much to share. Very comporting knowing others are out there with the same fears that will share how they handle it and their whole healing journey. Keep in touch and share. This is so different then talking to our family. Here we share
Something in common that only we know how it feels.

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Hello everyone, got my calcium scoring back about two weeks ago. Score was 480 and they found a 4.2 cm ascending aortic aneurysm. Waiting on cardiologist to call. Stumbled across the group and thought I might reach out.

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@texasdeb

Hi dee. What was your aneurysms size did they give you a number? You have a lot of support here.
You are not alone. It’s good to share with family but like us we know the real anxiety it can cause.
Here for you. I had surgery for my thoracic aortic aneurysms June 1, 2023 I went back to work in three months. I still have some issues but you learn to deal with it.
All the luck to you. Keep in touch with the group.

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Hi there the calcium score test showed it to be a 4.1 cm . I spoke to my doctor (cardiologist ) yesterday he’s planning to have me do an MRI soon . I hope you’re still doing well after your surgery ! Wishing you well ! Keep us all posted as your recovery continues !

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