Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@bob32

Hello, I had an Open AAA three years ago. The aneurysm was a 6.5 at the time of surgery. I was lucky they found it when they did. The surgery went smooth and I was back home in four days. I just had my three year CAT scan review, and everything looks fine, and living a good life.

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Great to hear. Do you have any activity or other restrictions ?

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Hello, I had an Open AAA three years ago. The aneurysm was a 6.5 at the time of surgery. I was lucky they found it when they did. The surgery went smooth and I was back home in four days. I just had my three year CAT scan review, and everything looks fine, and living a good life.

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@rknee

I’m a 69 year old female with a 4.1 ascending aortic aneurysm that was discovered while having tests after my heart attack due to high BP. my aortic stenosis was severe and I had a TAVR to repair. I asked about having the aneurysm repaired at that time and the Dr said it wasn’t big enough to repair. Now I am constantly thinking about it growing. I saw my cardiologist at one month follow up and they didn’t do any tests to check it. What is the normal protocol to monitor it and how often?

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I am 64 YO female w/HBP. I also have a 4.1 AAA I see my GP this week and the Cardiologist next week. The Cardiologist originally found this on a catheterization in 2018. I am not sure if mine is growing or it stayed the same. However everything that I have read and researched indicated that < 4.5 is low risk of rupture and seems to grow at a slow pace. So I do not anticipate on my Cardiologist saying that I am a candidate for the repair and that we have to just monitor it. What I did find comfort in is that this is manageable with Cholesterol and BP controlled that will keep the dilation from getting larger. So that is what I am shooting for. My suggestion is to not focus so much on the AAA because there isn't a fix but to focus on what you can do keep the BP and Lipid Panel in check. Good Luck and God Bless

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I’m a 69 year old female with a 4.1 ascending aortic aneurysm that was discovered while having tests after my heart attack due to high BP. my aortic stenosis was severe and I had a TAVR to repair. I asked about having the aneurysm repaired at that time and the Dr said it wasn’t big enough to repair. Now I am constantly thinking about it growing. I saw my cardiologist at one month follow up and they didn’t do any tests to check it. What is the normal protocol to monitor it and how often?

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@chrisn61

Thanks for the information. Best of luck to you and your brother. Where are you getting your DNA testing done?

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Mayo Clinic

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Thanks for the information. Best of luck to you and your brother. Where are you getting your DNA testing done?

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@chrisn61

Genetic?
My 65 year old brother died last month from a heart attack. No symptoms and he wasn’t on any medication for health problems. I’m 62 - and haven’t had any symptoms or health problems- but scheduled a complete checkup because of my brother’s unexpected death. I just got a CT scan and I have a 42mm dilation in my ascending aorta. I’m wearing a heart monitor for another 10 days. and am scheduled for a stress test the day after i am finished with the monitor. Any advice? Has anyone had any experience with DNA testing for this?

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Hi Chrisn61. I am going to be seen in genetics in March. I have a 44 ascending aneurysm. No risk factors, but it appears to be growing. My brother age 68 has a 42 ascending aneurysm. My cardiologist is sending me for the genetic testing, because the researchers are looking for common genes which predispose some people to aneurysms. They also plan to check all the arteries at that time. What I have read, is that there is a percentage of people who have dissections at smaller sizes than 4.5 to 5.0 measurement, and if a person has a genetic predisposition identified, then this would influence the schedule for a repair. I am just hoping that my brother's and mine dont grow anymore. We will see what happens. Good luck with yours. Plus I hope that the researchers are able to identify the gene or genes responsible soon.
UPArtist

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O Ok I haven't gone to my doctor's yet to review my test results I go next week to the Cardiologist and this week to the GP. I typically don't lift free weights beyond 5 lbs. I am curious what he'll say regarding cardio if I have to monitor my heart rate as not to get it up too high we'll see. Anyway good luck on your journey

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@deedth64

The doctors said no exercise?

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Just no heavy lifting. Just stating I swim for exercise, as part of introduction, sorry for confusion.

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@aaa1956

Hello everyone, I have an Ascending Aortic Aneurysm, 4cm. Found during Calcium score CT. Watch and wait, ugh! I love to do aqua aerobics .

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The doctors said no exercise?

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