Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@moonboy

I was 50. I had 5 kids and a wife. It was a major surgery with weeks of coma. I would not do it at 81. There was so much pain and misery. I am hoping that I live to 81. I want to die quickly and I would not have surgery again knowing what I know. Most people who suffer from a complete dissection do not survive.

Jump to this post

I suppose this means I can cancel on the saving for my old age plan. The mutual fund "financial adviser" tell my I should invest any spare dollar in thier funds. I am starting to suspect their sincerity. Thank you for the advise I quit alcohol and cigarettes 40 years ago
I had a lot of fun when I was drinking heavy. Now I have something to look forward to.

REPLY
@8570

What is the failure rate of this surgery?

Jump to this post

It depends upon a lot of factors. First, if it's an emergency situation, your odds drop markedly. Think of it this way: If you knew you were going to blow out a tire on the freeway, you'd pull over, get the spare ready, call for help, and pull far off the road. But, if you were going along at 75 MPH and the front driver's side tire suddenly blew, in a tunnel in the middle of nowhere, you might not have the same result.

Survival depends upon immediate diagnosis with a cross-sectional CT scan or bedside ultrasound. If you're across the street from the Mayo Clinic, that helps. If you're up North in the woods by yourself, well, you're probably not going to survive a dissection. The survival rate drops by 1% an hour if its untreated, although once it fully dissects you can bleed out very quickly.

The takeaway is that if your surgeon recommends surgery, get a second opinion to confirm it, and then do it. Waiting until it happens is too late. It's the most complex surgery there is and you want to make sure your surgeon is fully prepped, well in advance, with all the blood/plasma/staff/resources necessary for a great outcome.

REPLY
@8570

I am 81 have AA wonder if I would survive the operation. Perhaps I would be moved to end of surgery list (triage)? I talk to friends in their 50's they have all been checked for this, I live alone apparently if this blows out I wouldn't have time to phone ...ever.

Jump to this post

I was 50. I had 5 kids and a wife. It was a major surgery with weeks of coma. I would not do it at 81. There was so much pain and misery. I am hoping that I live to 81. I want to die quickly and I would not have surgery again knowing what I know. Most people who suffer from a complete dissection do not survive.

REPLY

What is the failure rate of this surgery?

REPLY

I am 81 have AA wonder if I would survive the operation. Perhaps I would be moved to end of surgery list (triage)? I talk to friends in their 50's they have all been checked for this, I live alone apparently if this blows out I wouldn't have time to phone ...ever.

REPLY
@mikeesul

Good morning. I live in Vancouver, Canada. A Lung screening (low dose CT) has incidentally indicated that I have a dilated ascending thoracic aorta measuring 42mm.
I am 63 years old.
I am heading for an Echocardiogram on Tuesday the 30th, 2024.
My cardiologist has suggested limiting some activity - intense activity - so I am doing that, but still working etc. I am not overweight and am in pretty good shape. I will report my findings and continue on this journey.
I am wondering - how are the people are who posted here in 2018 and 2019?

Jump to this post

I survived an aortic dissection in June 2015. Dacron graft. I was very lucky to have made it. I was in San Diego. Email me privately if you want to chat. Pbarry@lawpoint.com

REPLY

Good morning. I live in Vancouver, Canada. A Lung screening (low dose CT) has incidentally indicated that I have a dilated ascending thoracic aorta measuring 42mm.
I am 63 years old.
I am heading for an Echocardiogram on Tuesday the 30th, 2024.
My cardiologist has suggested limiting some activity - intense activity - so I am doing that, but still working etc. I am not overweight and am in pretty good shape. I will report my findings and continue on this journey.
I am wondering - how are the people are who posted here in 2018 and 2019?

REPLY

Hi, my name is Heather. About 9 months ago during a scan for another issue my doctors found I have an abdominal aortic aneurysm (up to 3cm) and a right common iliac aneurysm ( up to 2.2cm). Apparently it is very rare for someone my age, sex and health and the shape of them is also very strange apparently. I’m 47, female and otherwise in good health. I am an ex smoker however. And my grandfather died of a ruptured aneurysm in his 50’s. My aneurysms are both the saccular and apparently even stranger that they have a very odd shape to them both. Almost like a tube. I’ve read saccular aneurysms and being female are both circumstances that make them more likely to rupture. About 5 months ago I had a full body MRI to check the rest of my arteries and it came back ok, thankfully. I had to ring the vascular specialist’s office this month (January)to ask when I’d be sent for another scan and after a few days they told me it would be May- over a year after the first scan. I presume the MRI would have been used to also check any growth development in the two they’d found already? I may also have a small umbilical hernia. In the last couple months I’ve been getting a dull intermittent pain around and to the right of my belly button. Should I be worried about this? I mentioned it to the receptionist when I called the vascular specialist to ask about getting a scan. So I’m guessing they aren’t worried, although she never directly spoke of it to me, but it’s making me very nervous. Any suggestions as to what, if anything, I should do? At what point should someone go to the emergency room if they have pain in the area where their aneurysms are? Thank you.

REPLY

I agree, you should trust your cardiologist and if you don’t you need to find one you do trust and is responsive. Whenever I have a question I message him through the portal and he responds.

REPLY

Whenever I have any question at all, I call the doctor's office that is what they are there for. Each time I put a call in I receive an call back from the staff with a message from the doctor answering my questions. I strongly suggest you do the same call the office.

REPLY
Please sign in or register to post a reply.