Anyone with LC 4 years

Awesome about your Lawyer.
But sorry about the long covid. It does really put a damper on life my neurologist and physical therapy dr says probably from long covid.
Unbalanced walking and neuropathy and brain fog fatigue 😩

4 years and counting. That's literally about all I can do, lol.
I have EPI (pancreatic insufficiency) which means I go to the bathroom 10-12 times a day, esophageal outflow obstruction which means I am constantly nauseous and I can't eat normally or it comes back up. Achalasia, which causes atypical cardiac pain and sometimes it's debilitating. S/P Covid amnesiac encephalopathy (neuropsychologist recommended disability), and lastly autoimmune thyroid disease with declining kidney function.
I am at a different specialist at least 3 times a week and yet there is no communication between them even though it's at the same University Hospital.
I have pitty parties about every other week and honestly I think it's the only thing that keeps me sane 🤷‍♀️
I did not take the vaccine, thank goodness. I've had 4 positive PCR Tests and yet I never developed any antibodies, 1,3,6,12 months of testing and always tested negative for antibodies. What the heck does that mean?
Sorry for ranting. I saw your post and could hear the pain which mimics mine.
Praying for you and hoping you get some answers.

I totally understand. I got Covid on a return flight from Italy in October 2019. I was diagnosed with an Upper Respiratory Infection for months. I went from being involved in activities, strength training, running 8 miles 4 x a week, golfing every week to not being able to get out of bed somedays or walk 10 steps without resting and couldn't lift 5 lbs. It took a young doctor who tried so many things for 2 years and really believed I was sick to finally say, you need to go to Mayo. I thought I was crazy and having a mental breakdown. I didn't tell anyone because I thought they wouldn't believe me and think I was a hypochondriac. The depression is real. Life is not the same but I still have a lot of life to live. It takes adjustment. Start small, test your limits, some days will hurt. Retrain your brain. I stretch, I read, I don't watch the news, I walk and I get out and do happy stuff! I pray for everyone experiencing this journey. We can overcome! Mayo has been a great resource. Good luck to all of you.

Lifestyle strategies to consider when it comes to managing (not curing) Post-COVID.

1. Meeting water needs everyday even when you’d rather drink something else. 9 cups (72 fl oz) women 13 cups (102 fl oz) men.

2. Eating foods rich in anti-oxidants, healthy fats, and fiber every 3-4 hrs. Consider buying from the deli of a health food store to avoid the fatigue associated with cooking. Consider ordering groceries online to be delivered if possible.

3. Taking 10 minutes each day to engage in a relaxing mind body practice (deep breathing, guided relaxations, being in nature, body scans).

4. Gentle stretching daily to support the aches and pains- especially when higher intensity exercise isn’t possible due to fatigue.

5. Aim for 7-9 hrs of sleep a night to support healing. Wake up at the same time everyday.

6. Develop a gratitude practice to help focus on the bright spots- even if it’s something like “I’m grateful to feel less anxious today”.

7. Lean on your support system- delegate when possible , call loved one for social connection when laying in bed, avoid temptation to isolate.

8. Re-frame what productivity looks like and practice self-compassion when your expectations don’t align with your reality (probably the hardest of all). Pace yourself, avoid over scheduling, and learn how to say no.

I’m writing this not as someone who does these things consistently. None of us are perfect nor will we have the capacity to be as disciplined as we’d like. Simply sharing evidence based healing strategies that can support an improved quality of life.

I hope at least one of these tips helps someone reading this. Sending lots of love and compassion.

I am going on 4.5 years of Long Covid. Immediately I felt dizzy and my balance was bad. In the last 3 years, I have relied on a walker to get around safely. I have had 6 rounds of physical therapy, numerous neurologists, accupuncture, ENT's, and changed my eating habits among other things. So far, I am still unable to walk or travel much, do photography (which was my passion) and many other things. I have not improved at all and have sort of resigned my self to a life of immobility. My poor wife has to pick up much of my slack, which I hate. I doubt that I will ever see a cure in my lifetime, but for some of you younger people, I sure hope something comes along.

Thank you for reassuring me that I am not alone in this. It can be quite isolating. I look fine on the outside, but no one sees me when I am incapacitated and laying on the couch, I don't have energy to even sit vertical. The only thing I can do is just pray for the day to hurry up and end so I can go to bed and wake up feeling better the next morning.

I am very sorry for what you are going through. Everything you said resonated with me. I got Covid 3/20/2020 and was sick until July 2020. I had brain surgery and all kinds of medical problems I had never experienced before. When I got Covid, the doctors office didn’t want me to come into their office and I didn’t want to go to the ER bc of the # of deaths that were occurring. I rode it out at home alone & one night when I thought I wouldn’t see another day, I wrote down the passwords to all my important documents and who they should contact in the event I died overnight. I woke up the next day shocked that I was still alive. Everything hurt me from head to toes. I lost my smell and taste. My doctor wrote in my records “ presumed Covid” this prevented me from getting help. I had my own business and traveled all over the country prior to Covid. The part of my brain that was infected by covid is the executive functioning. I started writing backwards & couldn’t transpose numbers. I lost my organizational skills, fatigue set in, and I tried everything I could to get back to my business. When it finally occurred to me I couldn’t do my work anymore, I became depressed, scared, withdrawn, and I felt ashamed that I had become a figment of what I used to be. I’m a strong woman and always have been but I am struggling. Over the last almost 5 yrs, I e lost my house, business, and was forced to move out of California bc I had exhausted all my savings and assets. I was turned denied SSD bc they said simply “ you are not disabled”. You’re right about people making assumptions about us bc they don’t see a disability. My family and friends tell me I can do anything bc of the things I’ve achieved in my life. This has nothing to do with will power! We can’t physically do things we used to. They tell me there is nothing wrong with my brain bc I speak well. It seems like the world has forgotten us who were fortunate enough to survive, but have real problems. I wish everyone on this listserve a brighter day. I send you all love & light bc that’s what I have to offer 💔

God is my keeper, too. Thank you so much. I copied this twice, once for the 'fridge and once for the bulletin board beside my desk. I added prayer and Bible study to item 3, and thanking God daily, and the people you love more often to item 6.

Thank you so much for this. It’s all helpful and good reinforcement for many things I try to do. Especially helpful today for me was the prompt to avoid isolation. Thank you for sharing your hard earned wisdom.

Hi..we are all in this together..long Covid has forever changed my life.. and the lives of all of us reading these posts. most people do not understand this mysterious disease we live with on a daily basis...some friends have gone away, I guess those that have gone away don't get it, they don't know why we are too tired to go out or do phone calls. Sometimes we just cannot. A lot of
people do not think this disorder is real..we are crazy..we need to get on with it. When I wake up in the morning, I never know how my day will be and if I will be able to go to work so I can pay my bills. All the doctors want to do is throw another pill at me, which has more side effects for me to deal with. I am so glad we have this site to connect with all of you. Thanks for all your kindness , wisdom , and prayers. Hugs to all of you..