Anyone here have Fuch's Dystrophy?

Posted by Bettyann @bettyann, Dec 11, 2011

I would really like to hear from people who have Fuch’s Dystrophy. I would especialloy appreciate hearing from those who have NOT yet had DSAEK surgery so far. This includes knowledge from those of you who have friends or relatives that might have Fuch’s.
I was diagnosed with Fuch’s (only in my Left eye) in July…it ‘showed up’ after my cataract surgery in that eye. Before that, I had no real problems in that eye (aside from the cloudiness caused by the cataract.
THANK YOU for any and all of your replies! =)

Interested in more discussions like this? Go to the Eye Conditions Support Group.

Is there anyone here that has Fuch’s Dystrophy that would care to discuss any kind of progress you have made lately?

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@bettyann

Is there anyone here that has Fuch’s Dystrophy that would care to discuss any kind of progress you have made lately?

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I hope I’m not too late to this discussion. My husband (now 64) had LASIK about 8 years ago and had reasonably good vision since. Late last year he was advised he needed cataract surgery. He had his lenses replaced 3 weeks ago (right eye) and 2 weeks ago. After the first surgery, we were reluctant to go through with a second one, but the doctor convinced us it would have a far better result since my husband’s right eye has an anomaly on the retina. Since the surgery, his right eye cannot focus on anything most of the time, while the left eye is highly variable. Some days are much better than others, but he can rarely (one or two days in the past 2 weeks) see things at a distance. The variability is what led me here.

He was not disabled prior to cataract surgery, but is now, as he cannot even drive to work. I take him every day, but he can barely read the computer.

We have one of the best ophthalmologists in town, with the very latest equipment and techniques. It it possible my husband has undiagnosed Fuchs? How obvious is Fuchs to a highly skilled ophthalmologist? Is it possible it was undetected prior to either his LASIK or cataract surgery? We are definitely considering getting a second opinion (depending on what happens at the “3 week checkup” point). Anyone have any comments or suggestions?

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@bettyann

Is there anyone here that has Fuch’s Dystrophy that would care to discuss any kind of progress you have made lately?

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I would definately get a second opinion. Please do this because, to me, it will allow you to have peace of mind and THAT is worth a fortune!
I am not sure I understood everything in order, so please forgive me if this is not ‘adding up’ right! 🙂
LASIK surgery is simply done to better your vision so that is no (or very little) need of contacts or glasses… I am not sure when or why they inserted the lens into his eyes…
Lens were inserted into both my eyes after each L & R cataract surgery… My R eye turned out fine… my L eye didn’t want to lose that initial ‘looking through white waxpaper’ vision. The Dr said ‘possible Fuchs’…This was 1 1/2 years ago… Since I didn’t seem to have ANY problems in the R eye (until the last couple of months vision is more dim) I listened to the person who told me it was probably a botched surgery (scraping away too many of the epithilial cells) which has the same EFFECT as Fuch’s.. blurry vision and horrid sensitivity to light.
Through some office slip ups I never rec’d my appt notices (but I STILL should have been more persistant about going back to see a specialist but FEAR kept me from doing it…being really honest here)
Two weeks ago I had an appt and 3 drs examined my eyes. YES, it IS Fuchs…and it has gotten very bad… and yes, I was not going to be the only person i nthe world with Fuchs in just ONE eye…the dimness in my R eye now is from the cornea thickening (beginning of Fuchs) and I have appt to see a cornea specialist on the 21st of this month. I was told DSAEK surgeries are highly superior to a total cornea transplant (which is what they did for Fuchs prior)… So…I’m waiting to see.
Fuchs might be difficult to diagnosis right in the very beginning but definately not as the water blisters on your cornea begin to appear.
I read in a number of places that cataract surgery can bring out the Fuch’s…but eventually the Fuchs would have appeared…so between my cataracts AND the Fuchs I am sure I would have lost all my vision eventually.
I am sorry if this is a ‘mixed up’ way of telling this tale… but I guess my main message to you would be to definately get a 2nd opinion and be persistant in expressing your doubts and fears…just lay it all out on the table…
Best wishes to you!! As long as your reply to a person (like you did to me) a notice will show up on my email… that way you know you will be addressing it to someone with similar questions and answers.

Bettyann

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@bettyann

Is there anyone here that has Fuch’s Dystrophy that would care to discuss any kind of progress you have made lately?

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Thanks for the quick response, Bettyann.

I am in total agreement with you that a 2nd opinion will be most helpful. I think we’re best off visiting an ophthalmologist who does not specialize in the most profitable arms (cataracts and LASIK) but primarily in overall eye health. It seems as if many doctors protect one another.

Ultimately, we need to get a correct diagnosis for my husband, but aren’t doing anything until after his 3-week checkup (next week).

Good luck on getting that surgery, and please let those here know more about it. Are transplant cells readily available, so that the surgery can proceed quickly…or is there a waiting list?

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@anon13252470

I was diagnosed with Fuch’s dystrophy this past summer and have been using Muro drops with some success …….. At least I think it will prolong a surgical procedure . I personally don’feel the condition is improving but the objectivity tests,i.
e. cornea thickness, sight clarity are showing very slight improvement and no more disease progression at the moment.

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h

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Anyne diagnosed with Fuchs dystrophy? Have yogu had surgery? I am interested in descemets stripping or something less severe than a cornea transplant. Anyone undergane these less taxng procedures? How about cataracts? Did you have

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Has anyone with Fuchs had a problem with vision after cataract surgery.

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@veriska

Has anyone with Fuchs had a problem with vision after cataract surgery.

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Hi, @veriska – welcome to Mayo Clinic Connect. I'm hoping that members @bettyann and @oldasdirt will return and offer some input on having a vision problem after cataract surgery for a patient with Fuchs'. Also, members like @jakedduck1 @cherriann @peach414144 @hikergirl who have talked about cataract surgery may have thoughts to add.

You may also be interested in this Mayo Clinic information:

– on Fuchs' dystrophy:https://www.mayoclinic.org/diseases-conditions/fuchs-dystrophy/symptoms-causes/syc-20352727

– on cataract surgery: https://www.mayoclinic.org/tests-procedures/cataract-surgery/about/pac-20384765

What type of vision problem are you or a loved one experiencing, @veriska? When was the cataract surgery?

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I too was diagnosed with Fuchs at my final appointment post cataract surgery in both eyes. (June 2019) My eyesight remained cloudy and I had eye pain/pressure (like someone was pushing my eyeballs out) after the surgery. I was prescribed bifocals which have helped me see, but have done nothing for the blurriness and pressure. I was told to get MURO ointment and use it at night. No discernable difference. I am actively seeking a corneal specialist who has worked with many Fuchs patients. Hartford to NYC….willing to travel for right person. I will update when I know something further. Nancy Cullen

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Cateract surgery in one eye in April and the other in May 2019. At follow up in June I was told I had Fuchs which is why I have no eyesight improvement, halos, pain and blurriness. Dr. said use Muro ointment at night and scheduled an appt. for 6 months. No way. Even with newly prescribed bifocals, I can't see well enough to drive and any light is painful. I am in need of information, just as you are.

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