Anyone here have Fuch's Dystrophy?

Posted by Bettyann @bettyann, Dec 11, 2011

I would really like to hear from people who have Fuch’s Dystrophy. I would especialloy appreciate hearing from those who have NOT yet had DSAEK surgery so far. This includes knowledge from those of you who have friends or relatives that might have Fuch’s.
I was diagnosed with Fuch’s (only in my Left eye) in July…it ‘showed up’ after my cataract surgery in that eye. Before that, I had no real problems in that eye (aside from the cloudiness caused by the cataract.
THANK YOU for any and all of your replies! =)

Liked by Roxie43, Anonymous

Anyne diagnosed with Fuchs dystrophy? Have yogu had surgery? I am interested in descemets stripping or something less severe than a cornea transplant. Anyone undergane these less taxng procedures? How about cataracts? Did you have

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@veriska

Has anyone with Fuchs had a problem with vision after cataract surgery.

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Hi, @veriska – welcome to Mayo Clinic Connect. I'm hoping that members @bettyann and @oldasdirt will return and offer some input on having a vision problem after cataract surgery for a patient with Fuchs'. Also, members like @jakedduck1 @cherriann @peach414144 @hikergirl who have talked about cataract surgery may have thoughts to add.

You may also be interested in this Mayo Clinic information:

– on Fuchs' dystrophy:https://www.mayoclinic.org/diseases-conditions/fuchs-dystrophy/symptoms-causes/syc-20352727

– on cataract surgery: https://www.mayoclinic.org/tests-procedures/cataract-surgery/about/pac-20384765

What type of vision problem are you or a loved one experiencing, @veriska? When was the cataract surgery?

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Has anyone with Fuchs had a problem with vision after cataract surgery.

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I too was diagnosed with Fuchs at my final appointment post cataract surgery in both eyes. (June 2019) My eyesight remained cloudy and I had eye pain/pressure (like someone was pushing my eyeballs out) after the surgery. I was prescribed bifocals which have helped me see, but have done nothing for the blurriness and pressure. I was told to get MURO ointment and use it at night. No discernable difference. I am actively seeking a corneal specialist who has worked with many Fuchs patients. Hartford to NYC….willing to travel for right person. I will update when I know something further. Nancy Cullen

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Cateract surgery in one eye in April and the other in May 2019. At follow up in June I was told I had Fuchs which is why I have no eyesight improvement, halos, pain and blurriness. Dr. said use Muro ointment at night and scheduled an appt. for 6 months. No way. Even with newly prescribed bifocals, I can't see well enough to drive and any light is painful. I am in need of information, just as you are.

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My name is Carole. I had cataract surgery in both eyes in June 2012. I was told by the surgeon prior to the surgery that I had FD. Six months after the surgery, I developed secondary cataracts which were treated by the same surgeon. At that time, I asked him why I felt discomfort in my left eye. He said it was due to how the incision healed. In the next two years, the discomfort in my left eye increase. Also, my vision was not clear like it was following the cataract surgery. I was referred to a cornea specialist who confirmed the FD in both eyes and suggested drops. They help some of the time. By 2016 my distance vision was worse (blurry) in both eyes and discomfort in left eye had increased. I had a cornea specialist in Chicago review my case. He said I had blisters on my left cornea due to the swelling and this was due to the FD. This was causing the discomfort.
My father had FD and a cornea transplant in 1996. I not anxious to have more surgery. Has anyone hade any experience with DSAEK or DMEK?

I have an appointment with a doctor at Mayo Clinic the end of July regarding my diagnosis.

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@ccagack23

My name is Carole. I had cataract surgery in both eyes in June 2012. I was told by the surgeon prior to the surgery that I had FD. Six months after the surgery, I developed secondary cataracts which were treated by the same surgeon. At that time, I asked him why I felt discomfort in my left eye. He said it was due to how the incision healed. In the next two years, the discomfort in my left eye increase. Also, my vision was not clear like it was following the cataract surgery. I was referred to a cornea specialist who confirmed the FD in both eyes and suggested drops. They help some of the time. By 2016 my distance vision was worse (blurry) in both eyes and discomfort in left eye had increased. I had a cornea specialist in Chicago review my case. He said I had blisters on my left cornea due to the swelling and this was due to the FD. This was causing the discomfort.
My father had FD and a cornea transplant in 1996. I not anxious to have more surgery. Has anyone hade any experience with DSAEK or DMEK?

I have an appointment with a doctor at Mayo Clinic the end of July regarding my diagnosis.

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Hi Carole
I hope your visit went well the end of July.
I'm Rachel and when I was 40 (2011) I was tested for Fuch's dystrophy due to my father having it. His diagnosis was over looked for many years therefore he suffered longer than he should have. He begged me to get tested because its hereditary. My vision had always been poor so I wore tri-focals in early 30's. Knew things weren't right. Surely I tested positive. After my diagnosis, I was able to get 3 more years out of my eyes before things became intolerable. My symptoms were, deterioration of vision regardless of strongest eye glass lenses. Could not read Street signs, computer print, small print, patterns, numbers. I strained and became dizzy and could not focus. Bright lights, contrasting light, overhead lights did me in. Gray dreary days were the worse. Windy days, fans or going outside from indoors made my eyes water and run. Mornings were a blur and foggy, took long time to regain focus. Laser or flashes of lights (movies/fireworks) gave me pain. The less sleep I got, the worse my eyes responded. In 2013 my cornea specialist scheduled me for 2 cataracts surgeries followed by 2 partial thickness corneal transplants. My father had needed 2 full thickness transplants but progress had been made in this area when it was my turn. I didn't want to be set back for too long so I pushed and had all procedures done in under 5 months (a working Mom and needed to get these baby blues ready for my kids sports seasons).
Cataracts were pretty simple and 1 transplant was as simple as could be expected however, my 2nd transplant was a bit more complicated so, I was left with lasting scar tissue and one pupil smaller than the other. All in all, I got through it and my vision was perfectly restored!!!! BLESS my Drs heart because it is without a doubt, scary stuff to go through. Along the way I had several loose stitches (normal) which are very agitating and need to easily be pulled out. 4 years after my surgeries I developed secondary cataracts which created double and blurred vision….easy laser procedure to fix.
Today, 6 years later, I am still incredibly grateful for my vision. My only remaining and lasting problem is sensitivity to light. Still can't watch fireworks. Can't go to a concert because of lasers and lights. Can't do movie theaters. Have to wear sunglasses and a hat with brim in all artificial lighting situations…basketball games, stores, arenas etc… Hate winter because natural light is shortened. Im told it's lasting effects from my scar tissue, unique to my personal experience. I still don't settle for that but no-one has any more answers. So, for 6 years I have struggled with night driving and finally gave it up last year (age 48), not happy!!!
At least I can see and for that I remain incredibly grateful. So sorry for the book. I hope it may have helped you or someone moving forward. The disease is rare and we must be some special people! Procedures have come so far and an experienced cornea specialist is all you need for the right help. Best of luck to you and I'm happy to answer any questions you may have.

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I was diagnosed with Fuchs after cataract surgery in both eyes. My eyesight was worse after the C surgery…vision, cloudiness, loss of peripheral vision, ghosting, severe sensitivity to light and periodic shooting pain in my right eye. I was only diagnosed with Fuchs and told to use MURO ointment at night, in April 2019. I will seek out a Fuchs specialist after my next checkup with the group who diagnosed my Fuchs. That appointment is scheduled for December.

I strongly recommend your joining the Fuchs Foundation Group.

Liked by rwinney

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@grmnancy

I was diagnosed with Fuchs after cataract surgery in both eyes. My eyesight was worse after the C surgery…vision, cloudiness, loss of peripheral vision, ghosting, severe sensitivity to light and periodic shooting pain in my right eye. I was only diagnosed with Fuchs and told to use MURO ointment at night, in April 2019. I will seek out a Fuchs specialist after my next checkup with the group who diagnosed my Fuchs. That appointment is scheduled for December.

I strongly recommend your joining the Fuchs Foundation Group.

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That is good to know. Thank you. I will look into it. All the best to you.

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@grmnancy

I was diagnosed with Fuchs after cataract surgery in both eyes. My eyesight was worse after the C surgery…vision, cloudiness, loss of peripheral vision, ghosting, severe sensitivity to light and periodic shooting pain in my right eye. I was only diagnosed with Fuchs and told to use MURO ointment at night, in April 2019. I will seek out a Fuchs specialist after my next checkup with the group who diagnosed my Fuchs. That appointment is scheduled for December.

I strongly recommend your joining the Fuchs Foundation Group.

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@grmnancy – how has the ointment been for you?

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