Anyone here have Fuch's Dystrophy?

Posted by Bettyann @bettyann, Dec 11, 2011

I would really like to hear from people who have Fuch’s Dystrophy. I would especialloy appreciate hearing from those who have NOT yet had DSAEK surgery so far. This includes knowledge from those of you who have friends or relatives that might have Fuch’s.
I was diagnosed with Fuch’s (only in my Left eye) in July…it ‘showed up’ after my cataract surgery in that eye. Before that, I had no real problems in that eye (aside from the cloudiness caused by the cataract.
THANK YOU for any and all of your replies! =)

@grmnancy

I was diagnosed with Fuchs after cataract surgery in both eyes. My eyesight was worse after the C surgery…vision, cloudiness, loss of peripheral vision, ghosting, severe sensitivity to light and periodic shooting pain in my right eye. I was only diagnosed with Fuchs and told to use MURO ointment at night, in April 2019. I will seek out a Fuchs specialist after my next checkup with the group who diagnosed my Fuchs. That appointment is scheduled for December.

I strongly recommend your joining the Fuchs Foundation Group.

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@grmnancy – how has the ointment been for you?

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Fuchs Disease

My husband has recently been diagnosed with Fuchs. No treatment at present excep eye drops. Anyone else dealing with this condition?

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@marymaurer

Fuchs Disease

My husband has recently been diagnosed with Fuchs. No treatment at present excep eye drops. Anyone else dealing with this condition?

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Hello @marymaurer

Mayo Connect does have a discussion about this eye disorder, here is the link, https://connect.mayoclinic.org/discussion/anyone-here-have-fuchs-dystrophy/?pg=2#comment-241146.

To find out what is being said about this disorder with others, please click on the link above and read about the experiences of others.

I also found some information on treatments and clinical trials at Mayo Clinic. Here is the link to that information,
https://www.mayoclinic.org/diseases-conditions/fuchs-dystrophy/doctors-departments/ddc-20352733
While we wait for others to respond, could you share how your husband's disorder was diagnosed? What kind of symptoms is he having and what type of tests were used to come up with this diagnosis?

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@marymaurer

Fuchs Disease

My husband has recently been diagnosed with Fuchs. No treatment at present excep eye drops. Anyone else dealing with this condition?

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@marymaurer You are looking to connect with members that have experience with Fuchs.

You will notice that I moved your question to a previous discussion @hopeful33250 may be a good resource for you. I did this so you could connect with members like @th1 @barbb @sundance6 @joyces @nla4625 @jaguar737 @dablues in a central location.

You mentioned that you husband is not receiving treatment, with the exception of eye drops. May I ask if your provider said that drops are the only treatment available?

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@erikas

@marymaurer You are looking to connect with members that have experience with Fuchs.

You will notice that I moved your question to a previous discussion @hopeful33250 may be a good resource for you. I did this so you could connect with members like @th1 @barbb @sundance6 @joyces @nla4625 @jaguar737 @dablues in a central location.

You mentioned that you husband is not receiving treatment, with the exception of eye drops. May I ask if your provider said that drops are the only treatment available?

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He has a knowledgeable provider… knows options. He also has cataracts but is delaying
Surgery because of possibility of negative outcome.

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