Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy group.

Hi ALL,
I have been on a Chronic pain group and I ran across this one recently. I have had peripheral neuropathy for at least 12 years. At first it started with restless legs, then gradually started in my feet, burning, tingling then progressed to extreme burning,stabbing pain. my knees and my hands. I would cry and walk. Tylenol helped some, And just recently has progressed up to knees and hands. Finally went to an orthopedic pain Dr. He diagnosed me with peripheral neuropathy. I had an event that had me admitted to the hospital. During that visit a neurologist was checking me over and asked if I had taken gabapentin for the neuropothy. I was given a 300mg with a 50mg of tramadol, and had the best sleep I had had in years. so I started taking 300 mgs a day now I have progressed to 600mg 4 times a day, sometimes more, if I have to. That doesn’t happen as much as it used to. But I always take a 50mg of tramadol with the gabapentin. I have tried taking it without the tramadol, with tylenol, but the gabapentin does not seem to work as well without the tramadol.
I am told that I have that I have peripheral neuropathy because of cervical neck surgery, nerve damage to my upper spinal cord because of bone spurs. And I have severe spinal stenosis in my lower back.. I have tried to get cymbalta that was prescribed by my present pain Dr, but since I do not have drug insurance, I could not afford it….$360 for month supply. The neuropothy gets worse at night. Many nights I cannot sleep even when taking meds. Walking seems to help, something about the pressure that seems to help/ Many times I cannot walk because I cannot feel my feet, that is usually when I have waited too long before taking my meds. I use a rolling walker most all the time, it helps when I cannot feel my feet, and my balance is very iffy. I feel so very bad for those who are suffering with this. Hope any of this sharing helps.
PEACE & LOVE..JJ

REPLY
@jjwest

Hi ALL,
I have been on a Chronic pain group and I ran across this one recently. I have had peripheral neuropathy for at least 12 years. At first it started with restless legs, then gradually started in my feet, burning, tingling then progressed to extreme burning,stabbing pain. my knees and my hands. I would cry and walk. Tylenol helped some, And just recently has progressed up to knees and hands. Finally went to an orthopedic pain Dr. He diagnosed me with peripheral neuropathy. I had an event that had me admitted to the hospital. During that visit a neurologist was checking me over and asked if I had taken gabapentin for the neuropothy. I was given a 300mg with a 50mg of tramadol, and had the best sleep I had had in years. so I started taking 300 mgs a day now I have progressed to 600mg 4 times a day, sometimes more, if I have to. That doesn’t happen as much as it used to. But I always take a 50mg of tramadol with the gabapentin. I have tried taking it without the tramadol, with tylenol, but the gabapentin does not seem to work as well without the tramadol.
I am told that I have that I have peripheral neuropathy because of cervical neck surgery, nerve damage to my upper spinal cord because of bone spurs. And I have severe spinal stenosis in my lower back.. I have tried to get cymbalta that was prescribed by my present pain Dr, but since I do not have drug insurance, I could not afford it….$360 for month supply. The neuropothy gets worse at night. Many nights I cannot sleep even when taking meds. Walking seems to help, something about the pressure that seems to help/ Many times I cannot walk because I cannot feel my feet, that is usually when I have waited too long before taking my meds. I use a rolling walker most all the time, it helps when I cannot feel my feet, and my balance is very iffy. I feel so very bad for those who are suffering with this. Hope any of this sharing helps.
PEACE & LOVE..JJ

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hi jjwest – have your vitamin b-12 checked. I am on 900 mgs of gabapentin. I also have vit b-12 shots and take 5000 mg of vit b-12 under the tongue every day. Ideally your vit b-12 needs to be in the upper limits of normal

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For those of you living in and around the Minneapolis, Minnesota area, the Minnesota Neuropathy Association’s next meeting is on Saturday, March 25th and looks to be an interesting topic. I attached a meeting flyer and directions.

Medical Cannabis – what’s it all about?

Our speakers on March 25 are Dr. Gary Starr, one of the co-founders of the cannabis
manufacturer LeafLine Labs, and our Board member, Mary McLeod. Both will talk about
the use of cannabis in addressing neuropathic pain.

Mary has used it as a peripheral neuropathy patient, and will tell us of the process
involved in applying for the state cannabis registry, and her experience as a consumer.

Dr. Starr will address the origins of the medical cannabis industry in Minnesota, the
research involved in setting up their labs, and their reasons for going into this business.
He will also review the variety of pain and other medical problems with which they have
worked, the general results these trials have shown, their specific experiences with
neuropathic patients, and where they expect to go from here.

Meeting location:
St. Michael’s Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437

REPLY
@jjwest

Hi ALL,
I have been on a Chronic pain group and I ran across this one recently. I have had peripheral neuropathy for at least 12 years. At first it started with restless legs, then gradually started in my feet, burning, tingling then progressed to extreme burning,stabbing pain. my knees and my hands. I would cry and walk. Tylenol helped some, And just recently has progressed up to knees and hands. Finally went to an orthopedic pain Dr. He diagnosed me with peripheral neuropathy. I had an event that had me admitted to the hospital. During that visit a neurologist was checking me over and asked if I had taken gabapentin for the neuropothy. I was given a 300mg with a 50mg of tramadol, and had the best sleep I had had in years. so I started taking 300 mgs a day now I have progressed to 600mg 4 times a day, sometimes more, if I have to. That doesn’t happen as much as it used to. But I always take a 50mg of tramadol with the gabapentin. I have tried taking it without the tramadol, with tylenol, but the gabapentin does not seem to work as well without the tramadol.
I am told that I have that I have peripheral neuropathy because of cervical neck surgery, nerve damage to my upper spinal cord because of bone spurs. And I have severe spinal stenosis in my lower back.. I have tried to get cymbalta that was prescribed by my present pain Dr, but since I do not have drug insurance, I could not afford it….$360 for month supply. The neuropothy gets worse at night. Many nights I cannot sleep even when taking meds. Walking seems to help, something about the pressure that seems to help/ Many times I cannot walk because I cannot feel my feet, that is usually when I have waited too long before taking my meds. I use a rolling walker most all the time, it helps when I cannot feel my feet, and my balance is very iffy. I feel so very bad for those who are suffering with this. Hope any of this sharing helps.
PEACE & LOVE..JJ

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Wondering if anyone has the same issue that i have in regards to pain medication. No matter if it is the Gabapentin that I take for the neuropathy issue or any other kind of pain medication 4 muscle and back aches or even headaches such as extra strength Tylenol or Aleve xcetera, all seem to excite my neuropathy symptoms to another even higher level. Really irritates my feet no matter what type of pain medication I take for about 2 hours. My dr. Had never heard of it.

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Speaking of medical grade have you looked at any of the woundcare/pain material online on the Vasodilator Deoxyhemoglobin? The moa is medical Grade Carbon dioxide in a five minute transdermal spray…

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How about pain in my knee?

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@rabbit10

Thank you some days are good and some not so good so I take it a day at a time

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The burning and pain in my feet is with me every day

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@rabbit10

Keep us updated. Good luck

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I am interested in meds others have used. Doctors have prescribed all the meds for diabetic neuropathy, Lyrica, gabapentin, others not in my memory at the moment. Hydrocodone and more recently Butrans patch, and Nylanta. Acupuncture from two different therapists and also deep massage from a PT and use of many creams. Nothing has affected the burning/pain. Any suggestions for my doctors?

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