Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

1. I am using Gabapentin,300 mg, twice daily, for jabbing/pins and needles. Some people are using 900 or more daily. My cold feet are probably from nerve damage and reduced circulation.

My neuropathy is from diabetes.

2. Two other persons at my senior residence use Lyrica with much success.Their neuropathy is not from diabetes. Some neuoropathy is just idiopathic (no known source) and possibly genetic.

3. Lidocaine is a pain reliever I believe.

On previous blogs I mentioned Ketamine as a possible pain reliever, even by itself.

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@mikween

NOW, I WOULD LIKE TO KNOW IF ANYONE HAS EVER HAD THE SURGERY FOR PERIPAL NEUROPATHY? And if you have has it worked? I have an appt. May 12th with a doctor for a consult to see if I would be candidate? It might not even work for me since I have foot drop or maybe because it has been to long. Back in Sept. Of 08. I inhaled Carbon Monoxide on my boyfriends boat sitting down in the cabin Indian style fir about a day at least. That is how this horrible journey of neuropathy and foot drop began. Of course years later I found out that my foot drop could have been corrected within the first couple of years that I had it. But my neurologist just told me if it did not come back in a couple of years it would never come back. Told me nothing about these surgeries that were out there. One day I was done research and found out it could be done. I am currently still working with one doc, but I am sure I am way out of the time frame. Thanks to the doc… If anyone knows anything good for chronic pain for neuropathy please let me know. As I said earlier I am on Suboxone after being on opioids for many years. I just ordered some cream called lidocaine from Amazon that I read is good. I have been doing so much research myself… I also read about lidocaine injections.. Has anyone ever heard of that?

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Hello @mikween, I have not heard of a surgery specifically for peripheral neuropathy. I’ve done a lot of research this past year looking for answers myself although I do not have the chronic pain that you have. Do you mean foot drop surgery? Have you thought about getting a second opinion? I’m not a medical professional and have no medical background but I definitely would want a second opinion. Also, I would have a very frank discussion with the doctor about the associated risks and outcomes for a surgery.

Here is a link to a Google Scholar site search for foot drop surgery – http://bit.ly/2pVuJUr that might give you some more information if foot drop surgery is what you are looking at.

Hope you find an answer that works for you…

John

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@ujeeniack

1. I am using Gabapentin,300 mg, twice daily, for jabbing/pins and needles. Some people are using 900 or more daily. My cold feet are probably from nerve damage and reduced circulation.

My neuropathy is from diabetes.

2. Two other persons at my senior residence use Lyrica with much success.Their neuropathy is not from diabetes. Some neuoropathy is just idiopathic (no known source) and possibly genetic.

3. Lidocaine is a pain reliever I believe.

On previous blogs I mentioned Ketamine as a possible pain reliever, even by itself.

Jump to this post

I have written before about the nine prescriptions I have used, acupuncture,deep massage and creams….to no avail. Now I am getting certified for the use of cannabis. In Minnesota a doctor must certify you and there is no one in the town where I live that will do that. I am in the process of finding someone in a larger metropolitan area. Then I will use a pharmacist run clinic in Hibbing to obtain the oil I need. There has been some research done with peripheral neuropathy and cannabis relief. Has anyone experienced this relief???

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@ujeeniack

1. I am using Gabapentin,300 mg, twice daily, for jabbing/pins and needles. Some people are using 900 or more daily. My cold feet are probably from nerve damage and reduced circulation.

My neuropathy is from diabetes.

2. Two other persons at my senior residence use Lyrica with much success.Their neuropathy is not from diabetes. Some neuoropathy is just idiopathic (no known source) and possibly genetic.

3. Lidocaine is a pain reliever I believe.

On previous blogs I mentioned Ketamine as a possible pain reliever, even by itself.

Jump to this post

Hello @fonda, I belong to the Minnesota Neuropathy Association and we have monthly meetings most months. We have a board member who has benefited from medical cannabis. We had a meeting back on March 25 where we had a guest speaker come and talk to us about the use of medical cannabis for chronic pain. More information about that meeting can be found here – http://mayocl.in/2qpMzOZ.

Also, for those living in and around the Minneapolis area or don’t mind driving, our meetings are posted on our website at:
http://www.neuropathy-mn.org (this will re-direct to a new website that we just made active – http://www.minnesotaneuropathyassociation.org/).

Hoping you hear from others that have tried it. I only have the numbness associated with my peripheral neuropathy so I’m fortunate that I don’t have the pain.

Hope others that have tried it will share their experience. I have to believe it would be better than the pain drugs and their associated side effects.

John

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ANYONE THAT HAS NEUROPATHY PLEASE GO TO THIS LINK http://WWW.SILVESTERFOOTCLINIC.COM and then HOW WE CAN HELP, and then NERVE PAIN and read that page, and then scroll down and click on the link neuropathy. And you will see the different options he has available for people including the surgery that I mentioned the other day that no one had ever heard of. I am very excited. My appt. is May 16th. I will let you guys know how it goes. Wish me luck…. It all sounds really great. I hope you guys get this. I have tried typing this about 4 times and something keeps happening and throwing me out.

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@mskay I HEARD THAT YOU HAD SOME KNOWLEDGE OF SUBOXONE. THE DOCTOR JUST PUT ME ON IT FOR CHRONIC PAIN. DO YOU KNOW IF THAT REALLY WORKS FOR THAT. HOPEFULLY I WILL NOT HAVE TO WORRY ABOUT THAT ANYMORE AFTER I GO TO THIS FOOT DOCOTOR ON MAY 16TH. BUT BEFORE THAT I WAS ON HEAVY MEDS SINCE SEPT. OF 08. SO IT HAS BEEN A BIG CHANGE TO SAY THE LEAST.

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@mikween

ANYONE THAT HAS NEUROPATHY PLEASE GO TO THIS LINK http://WWW.SILVESTERFOOTCLINIC.COM and then HOW WE CAN HELP, and then NERVE PAIN and read that page, and then scroll down and click on the link neuropathy. And you will see the different options he has available for people including the surgery that I mentioned the other day that no one had ever heard of. I am very excited. My appt. is May 16th. I will let you guys know how it goes. Wish me luck…. It all sounds really great. I hope you guys get this. I have tried typing this about 4 times and something keeps happening and throwing me out.

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Hi @mikween,
Here’s the abstract of a research paper I found about “Surgical treatment of peripheral neuropathy: outcomes from 100 consecutive decompressions.” https://www.ncbi.nlm.nih.gov/pubmed/16166462 Published in 2005.

According to the Mayo Clinic information (http://mayocl.in/2qBbcFY) “If you have neuropathies caused by pressure on nerves, such as pressure from tumors, you might need surgery to reduce the pressure.”

We will be very interested in hearing what you find out on May 16th. Hopefully this information helps to prepare questions you might ask at the appointment. Please keep us posted.

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@mikween

ANYONE THAT HAS NEUROPATHY PLEASE GO TO THIS LINK http://WWW.SILVESTERFOOTCLINIC.COM and then HOW WE CAN HELP, and then NERVE PAIN and read that page, and then scroll down and click on the link neuropathy. And you will see the different options he has available for people including the surgery that I mentioned the other day that no one had ever heard of. I am very excited. My appt. is May 16th. I will let you guys know how it goes. Wish me luck…. It all sounds really great. I hope you guys get this. I have tried typing this about 4 times and something keeps happening and throwing me out.

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Also @mikween, can you please send me a message using this form to tell me about the tech issues you were having with the website: https://connect.mayoclinic.org/contact-a-community-moderator/

Additionally, we discourage the use of ALL CAPS for writing messages as it is considered shouting in online communication. Maybe you’re excited and feel like shouting 🙂 Still I recommend turning the all caps off. See the community guidelines here: https://connect.mayoclinic.org/community-guidelines/

Talk soon.

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@mikween

ANYONE THAT HAS NEUROPATHY PLEASE GO TO THIS LINK http://WWW.SILVESTERFOOTCLINIC.COM and then HOW WE CAN HELP, and then NERVE PAIN and read that page, and then scroll down and click on the link neuropathy. And you will see the different options he has available for people including the surgery that I mentioned the other day that no one had ever heard of. I am very excited. My appt. is May 16th. I will let you guys know how it goes. Wish me luck…. It all sounds really great. I hope you guys get this. I have tried typing this about 4 times and something keeps happening and throwing me out.

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Hi @colleenyoung, sorry about the all caps. I just wanted to know are you the only one that revived my message about the link I sent? And if so how do I get everybody to get it?

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@mikween

ANYONE THAT HAS NEUROPATHY PLEASE GO TO THIS LINK http://WWW.SILVESTERFOOTCLINIC.COM and then HOW WE CAN HELP, and then NERVE PAIN and read that page, and then scroll down and click on the link neuropathy. And you will see the different options he has available for people including the surgery that I mentioned the other day that no one had ever heard of. I am very excited. My appt. is May 16th. I will let you guys know how it goes. Wish me luck…. It all sounds really great. I hope you guys get this. I have tried typing this about 4 times and something keeps happening and throwing me out.

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Hi @mikween,
When you reply to an email that you receive from Mayo Clinic Connect’s website, your message is posted for everyone to see. Click VIEW & REPLY in this email and you will see the entire discussion thread about neuropathy. Scroll up and you’ll see your post with the link to the website about surgery options.

I hope this clarifies. I have posted this publicly because I believe other members may have the same question. Thank you for raising it.

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@mikween

ANYONE THAT HAS NEUROPATHY PLEASE GO TO THIS LINK http://WWW.SILVESTERFOOTCLINIC.COM and then HOW WE CAN HELP, and then NERVE PAIN and read that page, and then scroll down and click on the link neuropathy. And you will see the different options he has available for people including the surgery that I mentioned the other day that no one had ever heard of. I am very excited. My appt. is May 16th. I will let you guys know how it goes. Wish me luck…. It all sounds really great. I hope you guys get this. I have tried typing this about 4 times and something keeps happening and throwing me out.

Jump to this post

Notice this review from 2013 that was referenced in this article. https://www.ncbi.nlm.nih.gov/pubmed/24124946 It references the need for more research into the seeing if diabetic neuropathy may be a compression-caused neuropathy since compression relieving surgery seems to help.

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hi @colleenyoung I do not have a view and reply button on my screen. I think I saw it one time, but now I am not seeing it anymore I only see Post reply. Is something wrong with my machine or am I not looking in the right place?

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