1. < Neuropathy
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Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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amanancy | @amanancy | Apr 9 12:29pm
In reply to @punkie1214 "@cit10jetjockey Hi I’ve been dealing with Peripheral Neuropathy for years. Glad to hear you’re pain free!..." + (show)
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@cit10jetjockey
Hi I’ve been dealing with Peripheral Neuropathy for years. Glad to hear you’re pain free! I have numbness and tingling all over and weakness also. I can’t take Lyrica or Gabapentin. I get bad reactions. I eat well and try to keep moving but it’s hard sometimes. What’s your secret for being pain free?

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@punkie1214 Baclofin has really helped me. I take 2 10mg every morning. Cant take at night as I have an opposite reaction to sleepiness, I can't sleep if I take it.

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Jake | @jakedduck1 | Apr 9 11:48pm
In reply to @njed "@jakedduck1 -- I agree with you and I was careful not to use the word lucky..." + (show)
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@jakedduck1 -- I agree with you and I was careful not to use the word lucky because in my opinion, there is nothing lucky about having PN. In 2025, doc added distended bladder to the list of PN issues. Balance issues, had to give up my boat and after 60 years of boating, that wasn't easy. Secondary PN issues, there are many.

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@njed
Sorry about your boat Ed. I have only been on cruise ships or smaller vessels that carry 50-100 people. Never a recreational boat on a lake. Someday I hope, although it better be quick😳
Jake

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armywac | @armywac | Apr 12 4:26pm
In reply to @faithmulqueen "I have had peripheral neuropathy for several years. Recently, the pain has increased. I am currently..." + (show)
Profile picture for Faith Mulqueen @faithmulqueen

I have had peripheral neuropathy for several years. Recently, the pain has increased. I am currently taking gabapentin 600 mg. Would like to discontinue as I don’t think it is effective.

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Gabapentin 4x a day for me for 25 years now. Yes it helps with the pain, but it has put 40 additional pounds on me. The alpha lipoic acid seems to help the most with the tingling. I also wear support hose because they keep my nerve spasms in my legs in check. Does anyone also have a problem with balance?? I fall a lot. Lately all of my symptoms have been getting worse. I'm wondering I have developed an immunity to the meds.

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janeiswelsh5499 | @janeiswelsh5499 | Apr 12 6:35pm
In reply to @njed "@cit10jetjockey I have the same symptoms however, I also have drop foot and wear AFO's. But..." + (show)
Profile picture for NJ Ed @njed

@cit10jetjockey I have the same symptoms however, I also have drop foot and wear AFO's. But no pain and you're right, we are some of those fortunate not to have pain. Big problem for me is balance. I went to Mayo in MN Feb 2020, no answers on why I have PN. My guess is genetics or possibly antibiotics.

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@njed what’s an AFO?

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olgaelizabeth | @olgaelizabeth | Apr 12 9:11pm
In reply to @grandma41 "Hi, I only had a bit of neuropathy in my hands while taking chemo.  Sorry, I may..." + (show)
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Hi,
I only had a bit of neuropathy in my hands while taking chemo.  Sorry, I may not be much help.  I hope all goes well for you.  Debbie
 

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@grandma41 thank you Debbie

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modear | @modear | Apr 12 9:28pm
In reply to @aliskahan "Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who..." + (show)
Profile picture for Ali Skahan @aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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@aliskahan

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modear | @modear | Apr 12 9:41pm
In reply to @modear "@aliskahan" + (show)

@modear
Elevation lower extremity
is very helpful, with movement
for circulation.
Foot, toes movemen.
Help me a lot almost gone.
My suggestion!!

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1 reply
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angels0228 | @angels0228 | Apr 12 11:01pm
In reply to @grandma41 "Gabapenti. Totally helps me sleep, but I don't like the dizziness it has caused. Sent from..." + (show)
Profile picture for grandma41 @grandma41

Gabapenti. Totally helps me sleep, but I don't like the dizziness it has caused.<br />
<br />
Sent from Yahoo Mail on Android <br />
<br />

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@grandma41 , gabapentin gave me awful nightmares and too dizzy to walk w/o walker,,

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1 reply
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angels0228 | @angels0228 | Apr 12 11:04pm
In reply to @modear "@modear Elevation lower extremity is very helpful, with movement for circulation. Foot, toes movemen. Help me..." + (show)
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@modear
Elevation lower extremity
is very helpful, with movement
for circulation.
Foot, toes movemen.
Help me a lot almost gone.
My suggestion!!

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@modear ,,,so you suggest using this? using tylenol and ibuprofen right now, nothing helps.

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1 reply
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modear | @modear | Apr 13 12:34am
In reply to @angels0228 "@modear ,,,so you suggest using this? using tylenol and ibuprofen right now, nothing helps." + (show)
Profile picture for angels0228 @angels0228

@modear ,,,so you suggest using this? using tylenol and ibuprofen right now, nothing helps.

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@angels0228
It took me a while to know
this circulation thing &
movement of foot & toes.
I also got some confirmation
on tv advertisements &
google. Now it may not happen
to everyone, but i got my peace.
Thank God

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