Anyone here dealing with peripheral neuropathy?

Hello Mari (@mari), if you are not on Facebook you will need to create a login, then the link should work. Once you join the group, please read the new member Welcome message which explains how to get started. It is a lot of reading but it is necessary and it is worth the time. Here is the link to the closed group - https://www.facebook.com/groups/SPNPD/.

Before you start the protocol, please have the discussion with your doctor. I gave the list to my PN who ran them by the Mayo pharmacist and I received sort of a ho-hum response which is what I expected. I only have numbness in my legs and feet and there are no drugs to treat numbness per my PN and my Mayo neurologist. They can only offer drugs to treat the pain which is caused by damaged nerves. The drugs come with a lot of side effects, none good. The protocol supplements work on repairing the damaged nerves which in return eliminates the pain and reduces the numbness. I have been taking the supplements since September. When I started I had numbness (no pain) in both legs from just below the knee to the toes. Now the numbness seems to start just above the ankles. No two people are the same and others that started with PN with pain and numbness were also taking the standard PN pain drugs - gabapentin, lyrica, etc.. Those people have been able to get off of the drugs which are not needed when the pain goes away. IT IS REALLY IMPORTANT that you discuss this with your doctor. If you read through the group you will be able read success stories from group members. I would join the group and read, read, read before you make any decisions. Also, remember that you are your best advocate and the one who makes the final decision.

Most of the research done for peripheral neuropathy addresses the pain and how to block the pain, etc.. I recently read an article on the Foundation for Peripheral Neuropathy's website but can't find it again. It referenced the following NCBI link which may provide more hope for those suffering from peripheral neuropathy - https://www.ncbi.nlm.nih.gov/pubmed/22201810.

Hoping for a better 2017 for all of us...

John

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

John, is there any way to access the protocol without Facebook? My symptoms are very simiar to yours - when they began in my forties I was screened for MS and Charcot-Marie Tooth because of the unexplained nerve damage in both legs and feet, both were negative-thankfully. Nothing progressed for over a decade, which was great - now I am experiencing some progression and am seeing a new neurologist in Chicago today. Thanks so much for sharing your success and encouragement here! I;ve used Essentrics and a rowing machine to keep up my strength for years, and after reading in this forum started introducing the Wahl protocol in to my diet a week or so ago.

Welcome Susan @susan0514, The Facebook group for the protocol does have a website. You don't have to use Facebook but a lot of members on the protocol use Facebook for the research and sharing. Their website has gotten a lot better and they have added a lot of their background/research information along with frequently asked questions (FAQs) - https://theprotocolworks.com/. They do have a Why the Protocol answer in the FAQs but the research listed doesn't have the hyperlinks to the articles. I added those and shared the document in another post here if you want to read the research - https://connect.mayoclinic.org/comment/957496/.

It might be helpful to print out the Why the Protocol document in the above link and share it with your neurologist/doctor. Can you share an update after you see your new neurologist?

John, is there any way to access the protocol without Facebook? My symptoms are very simiar to yours - when they began in my forties I was screened for MS and Charcot-Marie Tooth because of the unexplained nerve damage in both legs and feet, both were negative-thankfully. Nothing progressed for over a decade, which was great - now I am experiencing some progression and am seeing a new neurologist in Chicago today. Thanks so much for sharing your success and encouragement here! I;ve used Essentrics and a rowing machine to keep up my strength for years, and after reading in this forum started introducing the Wahl protocol in to my diet a week or so ago.

John, do you have a link to the Face Book group? Or give me the name? Thanks John

Welcome Susan @susan0514, The Facebook group for the protocol does have a website. You don't have to use Facebook but a lot of members on the protocol use Facebook for the research and sharing. Their website has gotten a lot better and they have added a lot of their background/research information along with frequently asked questions (FAQs) - https://theprotocolworks.com/. They do have a Why the Protocol answer in the FAQs but the research listed doesn't have the hyperlinks to the articles. I added those and shared the document in another post here if you want to read the research - https://connect.mayoclinic.org/comment/957496/.

It might be helpful to print out the Why the Protocol document in the above link and share it with your neurologist/doctor. Can you share an update after you see your new neurologist?

I don’t abuse my (2) 10 mg Oxycodone BID, that I take simultaneously with Theraplant 360X cannabis concentrate capsule, but I’m still reading “chronic,” next to my portal medication column.
Why isn’t my Synthroid labeled as “chronic?” I have to take that forever…what about BP meds or any other med that’s forever?
Smear campaign that narcissists use against us.
I’m taking the least amount of pain medication ever now that CT., has legal medical cannabis program.
The pharmacists are owners of CT dispensaries, so they will sit with you to hear what you have, and recommend products and various routes. Without it, I might have headed to Vermont to drink the “death with dignity,” potion.
I’m sorry your pain doc got “tapped”, for helping people in agony. You must be so frustrated and in pain.
Try and talk to a dispensary pharmacist to guide you.
Good luck -