Anyone here dealing with peripheral neuropathy?

Gabapentin made my memory history

Thanks for all of this info Lori. Very interesting, about the clinic and the new insight into kratom, perhaps I can get Linda to try the pills. She may balk at the addictive aspect but we will discuss. What that gentleman in Riverwoods Illinois is doing, administering the scrambler therapy, is what had occurred to me when I first read about it, how if someone could come up with the $100K to purchase the unit and go through the training, they could have a built in career for as long as they wanted it. And how rewarding, to be able to actually help lots of folks with chronic pain. And if more people did that then perhaps the availability as well as the price of the therapy would improve and it would become more accessible to more people. By the way, I know that area; for 35 years my parents lived just 6-7 miles from there in Glencoe Ill. and I spent my high school years there. Perhaps someday we will go visit Mr. Black regarding the Calmare therapy. Thanks again Lori! -Hank

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@jesfactsmon Hi again, Hank, I do not regret trying it, at all. The man who does it in Illinois, (there is only one place in all of Illinois who does it!) is a true gem, and has helped so many people. He does say, there are people who he cannot treat. Their nerves are so far gone, that they don't even feel the electrodes. I do not know if you are a bit of a rebel, or pioneer, but one thing that does help is Kratom. Do not know if your wife has used this plant, but it definitely helps neuropathic pain. I use it 2 or 3 times a week. If you want to know more, let me know....Lori R.

Hi Lori, Terry here again. Do you take Kratom as powder or pill form? Any side effects? Thanks

What are you taking instead, then, @wilcy?

Hey Wilcy did your memory ever come back? I got diagnosed with NEUROPATHY and the DOCTOR GAVE ME GABAPENTIN..I am forgetting simple things and even what day it is...I want to know if you got your brain back to function normally...I stopped the GABA on my own...Only after one month....I need to think as I take insulin and Glucophage and a blood pressure pill daily. THE GABA gave me some really silly side effects. I stopped it, is my brain damaged permanently? DOES IT COME BACK TO NORMAL? M.

@jesfactsmon Hi again, Hank, Mr. Black did exactly as you have described. I forgot how he heard about the machines, but decided to buy them. He has three machines in his clinic, and does what he can to help people. He does admit that he does not help everyone, and is a tremendous advocate for people with CRPS. He's just a real good guy. As far as the Kratom, it will not become addictive if used only two or three times a week, and in pill form. is tolerable. As far as Glencoe, my dentist is there, and I had a boyfriend a way long time ago that lived there. I have always said, that it has to be just the prettiest community. I do not know if you have been there for awhile, but it is just gorgeous, with old trees, giant, magnificent houses, and land not to be believed. Anyway, do take care. It is a shame your wife won't use a computer. It would open up a world to her. Thanks for talking! Lori

Gabapentin made my memory history

What I was told was that if it is still an issue two years out, it is probably here to stay. My main issue is the numbness also. My hands - I constantly drop things and cannot use a pen, pencil, paintbrush for very long at all. As an artist, that is the pits. My feet are dumb across the bottom back to my heel and it feels like I have little sand bags under my toes. They tingle all the time. I have to be careful about hot or cold but then if I stub my toe or hit my finger on something, it about puts me on the floor. It is not debilitating but it is aggravating and sometimes depressing.

I hope for you some relief. I would be interested inn what you find out from the neurologist. I will be starting chemo again soon and suspect mine my be getting worse - but then who knows. Good luck on that doctor visit.

@grandma41 yes, the Gabapentin caused dizziness for me. My husband takes it with no issues at all. I almost fell a few times and I decided it was not worth the risk for me. I did take it for a few months; long enough for the mmedication to have worked if it was going to. I may have helped a litte.