Anyone here dealing with peripheral neuropathy?

@pfbacon I hear you about our pain. Im like you have fibromyalgia and 2 back fractures that cause neuropathy in my thighs . What I have to do is take Aleve and Tramadol together to get relieve . Its sad that the feds wont let us have our pain meds that worked for us in the past We aren't junkies.

It's stories like yours that give me pause Lori. If you are going to go to that much trouble and expense you'd like to at least have some assurance it will be effective. Like you I have read of several people who have sworn by this, but even with that they still need follow up within a couple months or less which would not be terrible if the machine were located near where you live. Unfortunately there is not one near us as far as I know right now. Well for now we'll just keep this in our hip pocket to maybe consider again someday. My condolences to you on your poor experience and lost money invested. It must have been devastating to have 3 weeks of relief and then have to go back to pain city again. One thing, if it's true pain builds character then this forum must be filled with them. 😉

@lioness You mention neuropathy in your thighs. Read this and see if it rings any bells: Meralgia paresthetica is a condition characterized by tingling, numbness and burning pain in your outer thigh. The cause of meralgia paresthetica is compression of the nerve that supplies sensation to the skin surface of your thigh.Jan 16, 2020

@jesfactsmon Hi again, Hank, I do not regret trying it, at all. The man who does it in Illinois, (there is only one place in all of Illinois who does it!) is a true gem, and has helped so many people. He does say, there are people who he cannot treat. Their nerves are so far gone, that they don't even feel the electrodes. I do not know if you are a bit of a rebel, or pioneer, but one thing that does help is Kratom. Do not know if your wife has used this plant, but it definitely helps neuropathic pain. I use it 2 or 3 times a week. If you want to know more, let me know....Lori R.

Yes Lori I did get kratom for my wife about a year ago. She tried it but did not like it for some reason, something about it making her feel weird or something. She still has most of what I got for her. Well I am glad you feel the Calmare treatment was something you do not regret trying. If we come into a large sum of money someday such that it is not an object to this therapy we will likely try it as some people (like the story by the woman in John Bishop's link) do get a good benefit. I'd like to meet this man in Illinois someday. Where does he practice? (I grew up near Chicago actually).

Yes Lori I did get kratom for my wife about a year ago. She tried it but did not like it for some reason, something about it making her feel weird or something. She still has most of what I got for her. Well I am glad you feel the Calmare treatment was something you do not regret trying. If we come into a large sum of money someday such that it is not an object to this therapy we will likely try it as some people (like the story by the woman in John Bishop's link) do get a good benefit. I'd like to meet this man in Illinois someday. Where does he practice? (I grew up near Chicago actually).

@jesfactsmon Hi again, Hank.....I did Calmare therapy at a suburb close to Deerfield, Illinois, in a lovely north suburban neighborhood. I cannot, for the life of me, think of the name of the suburb. The man who owns the clinic who also does the treatment, is Norm Black. He practices out of Spero Pain Clinic. Norm is on face book, and his clinic is also. I know that people stay at nearby hotels from all over the place, to get his Scrambler therapy. He is very devoted and truthful. I still talk to him occasionally. If you look up Spero Clinic, you will find him. Had I got even 3 weeks relief the second time, I would have done it again. Another thing, for what it is worth, I discovered Kratom in pill form, rather than chugging the vile, disgusting, leaf powder. Now I taste nothing. Tell your wife she really has to experiment with dosages and sellers of Kratom. The stuff works well, without the high of marijuana. I buy the Kratom pills at ethanaturals.com You might want to buy the smallest bag of pills that say they are for pain or discomfort, and try them. I actually take 8 of the little pills, which is equivalent to 2 and a half grams of Kratom. Within about 10 minutes, the pain is gone for a few hours. Just don't take it daily, cause it is addictive. I think your wife should try these. Nothing to lose, and if you buy the little bag, it costs next to nothing. Best of luck to you and your wife. Neuropathy is intensely painful. Horrid. Go check out the Spero clinic, and Norm Black. One devoted man. And, there is a giant bird cage when you first come into the clinic, with the most darling little chickadees inside. I loved to go there, just to see the birdies!!! Take care, Lori Renee

Rachel, my wife said this regarding your post of yesterday:
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Rachel, Hank just read to me your post. I understand and sympathize with your dilemma. I believe chronic pain offers an opportunity for "any" weakness in your body to flare and thrive. Even though I know my suffering will increase when I have a drink or eat something containing sugar -- sometimes you just need a "vacation", a diversion from pain. So don't be too hard on yourself. Everyone needs an escape from chronic pain. I find no help with aspirin or any other pain killers. I am allergic to them all. Gabapentin gave me hope but then I began hallucinating, had balance and vertigo problems, my tinnitus worsened, I gained 10 pounds and I couldn't think.
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My coping support comes from an electric fan on my feet day and night. Not being in any temp over 65 degrees summer or winter. An infrared lamp on my feet and cutting sugar out of my diet except for piece of pie or cake on Christmas or Thanksgiving. I really look forward to one or two mixed drinks a week as tolerated. This is a journey of constant search for what works for you. Hank has been my search engine! By the way, sometimes I get a little relief with soaking my feet in hot water then put them in front of the fan to cool off quickly. I think it confuses the nerves.