Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Many,perhaps most ,of our ills have no known cure,only treatment to alleviate at best!

Read the New York Times Week in Review article by a physician on “Blood Pressure. as under “political” control. Causes are seen as due to allostasis,rather than homeostasis. STRESS is the key word!

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I have had Idiopathic Peripheral Neuropathy for about 10 years (am currently 70). It started shortly after I suffered a neck injury and subsequent 3 level cervical fusion. It started with unbearable burning/tingling in both feet progressing to severe pain/numbness in both feet. I also get severe shooting pains emanating from both feet. I currently take Lyrica (300 mg 3-4 times daily (a lot), and Cymbalta 25 mg daily as well as Tylenol and Advil as needed. I also took Morphine 25mg daily and Tramadol (can’t remember dose) for 8 years until going thru Mayo’s Pain Rehab program a year ago. They got me off the Opioids and taught me alternative ways to manage/cope with my pain. Coping with pain sounds easy until you are the one having it. I do pretty well with that, but my pain limits my activity level a lot. My primary physician has recommended medical marijuana and I have been referred to a center. Have ANY of you tried Marijuana for your pain? If so, I would love to get your opinions on it.

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Dr. Just gave me samples of Lyrica but no I have not tried medical mj. t is more expensive than the meds. and I am very low income but a whole $17 over for Medicaid. Insurance would cost me 973 per month so I pay cash and just waiting for or SSDI or medicare which I would have in1 year

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Asked my dr. about medidcal marijuana and he said… “try Arnica – it’s cheaper.” so I did and honestly, I didn’t try it for long enuf to get a dependable result but it didn’t seem to make any difference — so, I’m sticking with massaging my feet and ankles nightly with a good foot cream – it helps but it’s topical so the underlying cause/help/cure is still an open question. I’m fearful of taking the standard meds as the TV ads for those products indicate they could do some pretty scary stuff to overall health. Kind of feel caught in the middle.

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Drug companies must, under law, divulge ALL known side effects that MAY be found if taking the drug. If you find, while taking any drug, that a side effect becomes worse than your pain, then quit. Only you can decide. I take way over the maximum recommended dose of Lyrica with minimal side effects. My Dr. and I have determined that the pain relief I get from taking it out-weigh the side effects I get. Please don’t let TV adds determine your own medications. After all, we have now found out that Aspirin can harm some people and it’s been around for decades, and yet we still take it.

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I WAS “SHOCKED”? TO SEE SO MANY ON THE DIGEST ASKING ABOUT,AND,OR,TAKING MARIJUANA.! WHY??

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@ujeeniack

I WAS “SHOCKED”? TO SEE SO MANY ON THE DIGEST ASKING ABOUT,AND,OR,TAKING MARIJUANA.! WHY??

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I believe it was Dr. Sanjay Gupta that did a 3-part special on marijuana for TV. Most interesting – evidently, there is a lot of research going on in its use medically – especially in UK. I think (just my opinion) that use of anything has to be geared to many things – the individual’s ability to tolerate pain, tolerate the drug prescribed to provide less pain,, etc. I think what we all want is to identify a cure and while the treatment of symptoms seems to be the trend, the CURE is still a mystery.t

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Apparently you do NOT have much pain. Please do not be shocked that we do and want to have less pain in our lives.

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@medic7054

I have had Idiopathic Peripheral Neuropathy for about 10 years (am currently 70). It started shortly after I suffered a neck injury and subsequent 3 level cervical fusion. It started with unbearable burning/tingling in both feet progressing to severe pain/numbness in both feet. I also get severe shooting pains emanating from both feet. I currently take Lyrica (300 mg 3-4 times daily (a lot), and Cymbalta 25 mg daily as well as Tylenol and Advil as needed. I also took Morphine 25mg daily and Tramadol (can’t remember dose) for 8 years until going thru Mayo’s Pain Rehab program a year ago. They got me off the Opioids and taught me alternative ways to manage/cope with my pain. Coping with pain sounds easy until you are the one having it. I do pretty well with that, but my pain limits my activity level a lot. My primary physician has recommended medical marijuana and I have been referred to a center. Have ANY of you tried Marijuana for your pain? If so, I would love to get your opinions on it.

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@medic7054, you may be interested in these discussions:
https://connect.mayoclinic.org/discussion/cbd/
https://connect.mayoclinic.org/discussion/chronic-pain-2bd75e/

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I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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I’m still wondering why the RLS discontinued in my legs and moved to my arms. I don’t really understand it. Does anybody else have it in their arms?

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@medic7054

Apparently you do NOT have much pain. Please do not be shocked that we do and want to have less pain in our lives.

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why do you say that?

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@jimhd

I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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Welcome to the group. I have had it since a neck injury 10+ years ago. What do you take for it? Have you ever considered Medical Marijuana?

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@mfelton

ginny, I take a multi vitamin B called Nerve Renew that helps some, however I have found a pain pill (hydrocodone) to be the best treatment for me. The Nerve Renew was recommended by the Neurologist and I order it from Neurophy Treatment Group in Indiana over the Internet.

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I know Hydrocodone helps your pain as do all Opioids. I took it for quite awhile as well, BUT…….it’s a slippery slope. Soon, the original dose needs to be increased, increased again, and again. Mayo has an excellent Pain Rehab Center that helped me a lot. If you live near one of their clinics, I heartily recommend it. .

Liked by jharsh

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All the time with my MS. I have to wear Prisms in my glasses.

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