Mayo Clinic Connect
Anyone here dealing with peripheral neuropathy?
Liked by John, Volunteer Mentor, peggyj4411, jazzy27, heather074 ... see all
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
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try *Gabapentin,probably at 300 mg.,twice or t hrice a day!*
*Another drug is an antidepressant called CYMBALTA.*
Liked by grammydove, Beverly
Hi EMILY ANNE…I noticed in your note something about restless legsyndrome and lately I have not seen anywhere a tip that I found in ourlocal newspaper years ago in a column written by an MD and seems to work forsome. And it did/does for me. When I tried it, it seemed to work for mebut I was convinced the results were psychosomatic. The tip is to put a barof soap under your sheet at night. Simple enuf and yet questionable. Aftersuccessfully using this tip for years (don’t argue with success) , one nightmy legs were all over the place. I figured at first that it truly waspsychosomatic. But I looked for the bar of soap, I couldn’t find it atfirst. It had slid off the mattress and was almost under the mattress wherethe sheet got tucked under the mattress! I put it back in place and noproblems since. And that also was years ago! I do remember though thatthere is one brand of soap that others say doesn’t seem to work…and if Iremember correctly it was Dial. And the bar doesn’t have to be under yourlegs…just under the sheet somewhere on the side!!!!!! But if one branddoesn’t work, try one other. And I’ve had it under cotton as well asflannel sheets. Many wrote to that column to say it worked for them. Thecolumn Dr. admitted many times, no one knows how/why it works. @gailfaith
Liked by grammydove, texasduchess
I USUALLY GO TO THE MAYO CLINIC WEBSITE FIRST. U WILL FIND RESTLESS LEGS COVERED THERE.
Liked by grammydove
There is actually an official diagnosis now for chemo induced peripheral neuropathy. Is yours from chemo or something else? There are prescription meds that work for some & also have some unpleasant side effects for some. My husband takes Gabapentin and has no problem with it. I tried it, and it did help some, but I was constantly dizzy. It was a major problem if I got up in the middle of the night. It did not improve enough to put up with the side effect.
What kinds of issues are you dealing with? I understand it can be very different from one person to the next. Whatever, it is uncomfortable, can certainly cause us to be unsure on our feet and be very frustrating. I hope you find something that helps. I am 3 years out from taking Taxotere, which is what caused mine. It is better but still a pretty major issue. I have it in both feet and both hands.
GABAPENTIN AND CYMABALTA HAVE BEEN RECOMMENDED BY THE MAYOCLINIC AND OTHERS.
Liked by Beverly
I have taken the Meds mention here. Those Meds over time , stress the liver and no longer helped. My liver test where not good, so now I take very little Meds and avoid damaging my liver miore with long term medicine useage. As I age , my body canno longer handle those strong Meds. Healthy eating and moving around gently helps. At night , I start mindfulness and drink tea and massage. I feel less stress, more in control and kettle to none pain med. if needed. And “no” , I am not a old person, just smart about my body’s needs.
Ask your *Nephrologist what Meds U CAN TAKE. A NO may mean that the kidneydoes NOT clear them well and so they will build up in the blood and maybeelsewhere.*
Liked by JohnWBurns
I tried Gabapentin for a couple of months. I didn’t work for me, and it turned me into a zombie and made so many mistakes at work. I’ve tried the usual, Mirapex, Requip; they don’t work for me either. I was put on a Fentanyl Patch for pain, and that seemed to take care of my restless leg syndrome. I’ve been on the same dosage for years, but after my seventh spine surgery in January, I decided to see if I could come off the Fentanyl and have lowered my dosage from 100 down to 75 mcg/hr and it still works for RLS. It might be worth considering.
Y DO I GET THE THOUGHT THAT U DID NOTt CONSULT MAYHOCLINIC.ORG?.
just rechecked, under “Restlss Legs Syndrome” and saw several drugs to try. However, U MUST look at side affects of each:Ambien might be a problem after 2-4 weeks and others too might be a problem. Check with your Neurologist!!
Liked by Colleen Young, Connect Director
Here is the information from Mayo Clinic on Restless Legs Syndrome that @ujeenjack referred to above http://www.mayoclinic.org/diseases-conditions/restless-legs-syndrome/basics/definition/con-20031101
Timerdude when my meds caused my liver to have a fourth of liver damage,my sister in law gave me an Atkins diet book. I read an put myself onthe diet. I started on the first level. I was really dedicated toit because of what I had studied. When I went back to the Dr. and hadthe live test again it had healed it self. He asked what I had donedifferently and I showed him what I was eating and how I cut allsugar out of my diet. I’ve never been a consumer of liquor. He toldme to live on this diet as if I were a diabetic. I’ve been on it for 12years. I do have cheat day’s!!. If you have ever had gout you can’t dothe diet. A lot of people stop the diet because they say it makes themfeel bad. They feel bad because the body detoxifies.
Thank you for the link. It’s strange, but the RLS moved from my legs into my arms. So I guess you could say I have Restless Arm Syndrome.
U R A RESTTLESS PERSON!
It’s actually called Periodic Limb Movement. I have RLS but my daughter has Periodic Limb Movement. When I had my sleep study done, my legs moved 7 times per minute all night long! Symptoms have been found to be worse with a low ferritin leveI. I take B12 but have also been on Mirapex (Pramipexole) since 1991 with great relief. I had to go from .5 to 1.0 mg after being on it about 5 years, but haven’t had to increase it since. I only take it at bedtime or when taking a long flight. I also find warm baths with a good amount of epsom salts helpful.
I would like to thank each of you who replied to my post. I have ready them all carefully and will go back and make detailed notes as I have time. They are all very interesting and it is reassuring to know I am not alone. You feel that way when you seem to be suffering from something that is a little out of the norm. People tend to consider you a hypochondriac sometimes if you don’t have a “normal” disease.” I was lucky and got an appt today with a nerologist for the first time. My appt had been for NOV but there was a cancellation and my faithful husband/caregiver had been checking everyday so what a blessing. God bless you all with a beautiful day.
Liked by Colleen Young, Connect Director, John, Volunteer Mentor
So glad you got an earlier appointment @emilyanne. I hope you’ll have a minute to let us know what you find out. All the best.
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