Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@mfelton

i have had peripheral neuropathy for years and restless legs for 10 yrs before. I take restoril for the legs and and lortab for neuropathy and arthritis. its the best over all treatment I have had. But having said that I am retired and have a secondary life having changed my life style as per my nueurologist and I use heated blankets on my legs and feet. I also have burning mouth syndrome (a neurological problem) and that resonds to the pain pill better than anything else I’ve tried-not encouraging, I’m sorry.
euro

Jump to this post

Welcome to the thread. Sorry to hear about your problem but you have a lot of company. Finding any relief for severe neuropathy is difficult so its good that you have a couple of tools that help. This is unsubstantiated mind you but alpha lipoid acid is used a lot in Europe supposedly with some success. As with all supplements it is not FDA approved for that purpose.

REPLY

Never heard of this but will research, Thanks

REPLY
@ginny1952

watching a storm from inside my house in front of patio doors, lighting hit the ground bounced to the glass, hit me!

Jump to this post

Are you ok? We have lots of lighting in Florida. Love to watch by the window!

REPLY
@ginny1952

watching a storm from inside my house in front of patio doors, lighting hit the ground bounced to the glass, hit me!

Jump to this post

Live in Colorado, we also have heat lighting and a lot of it. Nope do not watch, I shut curtains.

REPLY
@ginny1952

watching a storm from inside my house in front of patio doors, lighting hit the ground bounced to the glass, hit me!

Jump to this post

We are moving to Colorado at end of month. Hope my painful nerve pain gets break. Here in Florida, it feels “hot” on my legs. Cool is better.

REPLY
@ginny1952

watching a storm from inside my house in front of patio doors, lighting hit the ground bounced to the glass, hit me!

Jump to this post

What is “heat lighting’? Moving t Colorado, should I be worry, my problem,
could get worse?

REPLY
@ginny1952

watching a storm from inside my house in front of patio doors, lighting hit the ground bounced to the glass, hit me!

Jump to this post

no actually this is a good climate for health issues.

REPLY

I’ve heard a lot about Vitamin B (in all its numeric glory) helping with nerve problems (neuropathy). Can anyone yea or nae this claim?

REPLY

I am taking B12 and it does help keep my nerves healthy , it helps along with better foods, and not eat fried, or lots of fatty foods. If any food comes in box , its been processed and unhealthy , period. In all… better foods, B12 and adapted to “not over do” anything and when I get chance each day.

Liked by jharsh

REPLY

I just started taking B12 Complex (natural) sublingual I am going to give it one month before I make a decision. I also have complex partial seizures, which I am trying to work on also.

REPLY

ginny, I take a multi vitamin B called Nerve Renew that helps some, however I have found a pain pill (hydrocodone) to be the best treatment for me. The Nerve Renew was recommended by the Neurologist and I order it from Neurophy Treatment Group in Indiana over the Internet.

REPLY

My Neurologist told me B 12 Complex all natural however will ask him for pain I take 2400 mg of gabapentin I also have to be very careful otherwise I will not feel a seizure coming on.

REPLY

I just bought B complex vitamins at Safeway — hopefully, that’s “all natural.” I tried gabapentin but had no results at all. I think each of us reacts differently to the meds – what that depends on, I’m sure I don’t know … maybe what the cause is – whatever. But it seems some people have good results from various things. What irritates me is the advertising that says, “This will help/cure/your pain” and more often than not, it only costs an arm & a leg to find out it doesn’t help at all. Anyone heard if marijuana helps?

REPLY
@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

Jump to this post

Hello Rabbit 10 and others who suffer with non specific neuropathy Just began dealing with it several months ago and so far no relief. Still waiting to see a neurologist. It is interesting that many also have restless leg syndrone which I have and which came first with me. Am taking Requip for that and it seems to work if I take it in time at night. The burning nerves is in my feet and legs, mostly left, is spreading to my left arm and hand now. Nothing seems to help that. Am taking note of what seems to help others. Am 76. Had spinal stenosis surgery and thought the numbness and nerve damage was from that problem. Still may be but why is it spreading? Lots of questions but no answers so far. Hope to learn from you guys.

Liked by keeptrying

REPLY
@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

Jump to this post

Hi and welcome. There are many possible causes of peripheral neuropathy, such as diabetes, B12 deficiency, certain drugs, autoimmune disease etc but you’ll need a thorough workup to get to a root cause. It may still be spinal but that is TBD. Here is a good article that goes into causes and requisite testing:

http://www.todaysgeriatricmedicine.com/archive/070912p14.shtml

As far as the restless legs, symptoms of peripheral neuropathy can mimic restless legs so again, investigation is needed to establish which came first. Has your iron status been evaluated? When was your last B12 level tested?

Liked by grammydove

REPLY
Please login or register to post a reply.