Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@jimhd

I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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Having chronic pain for extended periods (years) can certainly lead to depression. Some anti depressants actually can help relieve certain types of pain. It helps with my Peripheral Neuropathy. I’m trying to get even more pain relief with medical mj.

@bobe

Thanks for the links in your initial post. Best starting help we’ve found. Lots and lots of tests with the head of muscular neurology concluding it’s idiopathic – unknown in origin. Are there other senior citizens with further, somewhat more technical resources?

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Welcome to Connect, @bobe.
Perhaps I or other members can help find more resources for you. Can you explain what you mean by “more technical resources”? Are you looking for studies about peripheral neuropathy incidence in the elderly?

Welcome @superwife.
A couple of members @angelasmom and @famalvar75gmailcom have talked about atrophie blanche in the past in this discussion thread:

Livedoid vasculopathy https://connect.mayoclinic.org/discussion/livedoid-vasculopathy/

Or you might wish to join @mlemieux or @gonefishinmt here https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/

@jimhd

I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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Peripheral neuropathy kicked in around 5 years ago. I’ve been receiving treatment for depression for around 15 years. I can tell when the ipn is affecting the depression, for sure. When my feet burn and hurt all day, it certainly doesn’t help my mood. I take Bupropion for depression, Klonopin for anxiety, and Cymbalta for peripheral neuropathy. I’m weaning off morphine sulfate contin to see if the Cymbalta will work on its own. I take Oxycodone and Orphenadrine, as well. I’m going to look at the link ColleenYoung gave above about medical marijuana.

@jimhd

I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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Thanks. I’ll try to remember to when I get home from the day in town. I’m
going to ask the pain specialist about it in about 2 hours.

@jimhd

I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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I REPEAT: *TOO MANY CNS DEPRESSANTS! WHY DOES EVERYONE THINK MARIJUANA IS
A PANACEA??*

*U DID NOT INDICATE HOW MANY MG/DAY OF GABA YOU’RE TAKING?*

@medic7054

I have had Idiopathic Peripheral Neuropathy for about 10 years (am currently 70). It started shortly after I suffered a neck injury and subsequent 3 level cervical fusion. It started with unbearable burning/tingling in both feet progressing to severe pain/numbness in both feet. I also get severe shooting pains emanating from both feet. I currently take Lyrica (300 mg 3-4 times daily (a lot), and Cymbalta 25 mg daily as well as Tylenol and Advil as needed. I also took Morphine 25mg daily and Tramadol (can’t remember dose) for 8 years until going thru Mayo’s Pain Rehab program a year ago. They got me off the Opioids and taught me alternative ways to manage/cope with my pain. Coping with pain sounds easy until you are the one having it. I do pretty well with that, but my pain limits my activity level a lot. My primary physician has recommended medical marijuana and I have been referred to a center. Have ANY of you tried Marijuana for your pain? If so, I would love to get your opinions on it.

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Would you care to tell me about your neck injury. My wife has symptoms and circumstances similar to yours and is of a similar age.

@jimhd

I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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Hi @ujeeniack,
In my opinion, members of Connect are having an intelligent conversation about pain medication options — what works for each person and what doesn’t. Medical marijuana and CBD are discussed as potential options, along with more standard options. As new options such as marijuana, CBD or manufactured drugs come to market, they are explored, questioned, researched and discussed. No one is claiming that marijuana is the panacea or the answer to everyone’s pain management. Members are questioning and educating themselves in order to have well-informed conversations with their care providers.

Jack, may I recommend that you not write in ALL CAPS? We discourage the use of all caps because they are considered shouting in online communications. You can read more about online etiquette in our Community Guidelines https://connect.mayoclinic.org/community-guidelines/

Thanks
Colleen
Connect Community Director

@superwife

I’ve had this for at least 10 years/ Gabapentin has made the 24/7 extreme tingling in my feet bearable & I’m grateful fpr it’ Cause has not been determined I don’t fall in any of the usual categories, and am told about 25 percent of cases cannot be traced to specific cause.

I now have Atrophie Blanche – no known effective treatment of ankle & foot – dpn’t know if that’s in this grroup – but would welcome info for pain relief –
– it’s sometimes extreme & much worse than the pn pain.
/ Superwife

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Don’t know why I didn’t think to ask before today! Duh! Several weeks ago, the day before I had a huge kidney stone removed under general anesthesia, I started to get my 3rd bout with Shingles. I had the vaccine, which probably muted some of the usual symptoms. My PCP put me on Valtrex and my dermatologist added Gebapentin a couple of days later. By then the Valtrex had done a number on my head so when I got the Gabapentin, I only took the first dose and then quit both when I read the side effects of Gaba were similiar to the Valtrex. Currently all my Shingle sores have healed up but I still have some discomfort. Now I am wondering if just one dose of Gaba/day would do what Valtrex did to me, yet calm the discomfort? I still have 59 doses left! That was no fun as I was even afriad to drive more than a couple of miles to see the MDs. l. I’m open to all suggestions from those who have survived similar problems. @gailfaith

@jimhd

I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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LOOK AT NEUROLOGY NOW AND NEUROLOGY TODAY FOR RELEVBANT ARTICLES, SUCH
AS *CHIARI FORMATION AND SYRINX FOR IDIOPATHIC *
*PERIPHERAL NEUROPATHY.*

@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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Emily Anne. about the same here. Had restless leg syndrome and now non specific neuropathy–just diagnosed. Waiting to see neurologist. Hoping to learn from this group..

@martid

There is actually an official diagnosis now for chemo induced peripheral neuropathy. Is yours from chemo or something else? There are prescription meds that work for some & also have some unpleasant side effects for some. My husband takes Gabapentin and has no problem with it. I tried it, and it did help some, but I was constantly dizzy. It was a major problem if I got up in the middle of the night. It did not improve enough to put up with the side effect.

What kinds of issues are you dealing with? I understand it can be very different from one person to the next. Whatever, it is uncomfortable, can certainly cause us to be unsure on our feet and be very frustrating. I hope you find something that helps. I am 3 years out from taking Taxotere, which is what caused mine. It is better but still a pretty major issue. I have it in both feet and both hands.

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I have idiopathic neuropathy and need some help. How do you use the TENS? I have one and could use it but don’t know how and where to put it. Neuropathy has started up my legs. Would this help to stop it?
Thank you for any tips you can give me.

@martid

There is actually an official diagnosis now for chemo induced peripheral neuropathy. Is yours from chemo or something else? There are prescription meds that work for some & also have some unpleasant side effects for some. My husband takes Gabapentin and has no problem with it. I tried it, and it did help some, but I was constantly dizzy. It was a major problem if I got up in the middle of the night. It did not improve enough to put up with the side effect.

What kinds of issues are you dealing with? I understand it can be very different from one person to the next. Whatever, it is uncomfortable, can certainly cause us to be unsure on our feet and be very frustrating. I hope you find something that helps. I am 3 years out from taking Taxotere, which is what caused mine. It is better but still a pretty major issue. I have it in both feet and both hands.

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Hi @twinky, I use a Zopec DT-1200 which has foot pads that you just place your feet on. I use it for my PN which I only have numbness in my legs and feet. It helps a little with the numbness but doesn’t take it away. Here is a YouTube video that shows the pad placements that might be helpful for your use –

– hope this helps.

I have Neuropathy and that some use tens to help. I am wondering how to use it. In a area around the ankle or move up to where the problem seems to have moved. I just have it in my feet and ankles. I have had it for about 2 years now. I have the pain relief with taking Gabapentin 3 times a day and using a cream every night. I’m thinking it might slow down the progression of the Neuropathy.

@superwife

I’ve had this for at least 10 years/ Gabapentin has made the 24/7 extreme tingling in my feet bearable & I’m grateful fpr it’ Cause has not been determined I don’t fall in any of the usual categories, and am told about 25 percent of cases cannot be traced to specific cause.

I now have Atrophie Blanche – no known effective treatment of ankle & foot – dpn’t know if that’s in this grroup – but would welcome info for pain relief –
– it’s sometimes extreme & much worse than the pn pain.
/ Superwife

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Gail, are you saying that the medication gave you shingle-like symptoms? Are you continuing with gabapentin?

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