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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)Comment receiving replies
The neurologist has me on mycophenolate and the rheumatologist thinks that augmenting it with plaquenil might be worth a try. Plaque nil can rarely be cardiotoxic so need to have the cardiologist weigh in on that. Per the latest EMG, my issues haven't gotten any worse in the last couple of years. They have no idea why, maybe a lot of walking. They are 80/20 sure its caused by Sjogren's. There's an outfit called The Foundation for Peripheral Neuropathy which might be able to provide some information. Of course they want donations. I have a TENS unit. Good idea. Might be worth a try.
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hope to get a rollator with a seat this week so that I can walk much more safely
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Hopefully those meds will help you. I'm curious about your walking. Do have pain from walking and do you feel unsteady on your feet? I'm supposed to walk a lot too but my legs seem to give out on me whenever I try and if the ground is uneven I feel very unsteady.