Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

Posted by tatjohns @tatjohns, Dec 2 8:30pm

I have long covid (2 1/2 years) and have been experiencing progressive muscle atrophy/muscle wasting which is unrelated to inactivity. To the contrary, I have tried to stay very active with walking, swimming, resistance training, but none of it does any good. The muscle atrophy continues and is debilitating. The head of the local long covid clinic said I was the only patient out of the 3,000 patients he has seen in LC clinic with this symptom.

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lkirnbauer | @lkirnbauer | Dec 9 8:49am

I think it’s time for you to find a new, good doctor! I can’t even begin to tell you how sorry I am for you. Some doctors are just plain ignorant or stupid, not sure which one. I sure hope he at least told you what you should be doing and didn’t let you leave his office without a “next step”! I find it hard to believe that you’re the only one suffering with muscle loss…such a stupid thing to say!

froggiiii | @froggiiii | Dec 10 9:59pm

Muscle weakness/wasting is a typical Long COVID symptom. The national RECOVER project, now renamed something else, has been listing this.
I second finding another doctor.
https://pmc.ncbi.nlm.nih.gov/articles/PMC8934728/

friedrich | @friedrich | Dec 10 10:28pm

To froggiiii —

Thank you for providing the link to the 2022 article that describes muscle weakness and wasting as symptoms (among others) of LC. Articles like this one give me the conceptual framework and the language needed to best describe my LC fatigue syndrome to others.

wilsonanderson | @wilsonanderson | Dec 11 11:01am

In reply to @froggiiii "Muscle weakness/wasting is a typical Long COVID symptom. The national RECOVER project, now renamed something else,..." + (show)

Thanks for article link…it’s a bit vague with lots of ‘may be/ might’ etc sadly. I had read some of the individual articles when originally published, like the diaphragm one…nice to know I wasn’t possibly making up symptoms, but now so many years later muscle weakness etc is not being catered for ( where I live) by medics, so DIY solutions with swimming!

btomyl60 | @btomyl60 | 2 days ago

My PA said that I need to see a Rheumatologist. Has anyone else tried seeing one? I have literally had all kinds of labs and seen various specialists to no avail. Any input would be greatly appreciated. Thanks in advance for your help.

joansmurphy | @joansmurphy | 23 hours ago

Yes I did. For me, this started in 2011 when I had a respiratory issue that started muscle weakening. I never fully recovered. It happened again in 2019 and then in 2021 after Covid. She diagnosed me with long covid and an autoimmune disease- CFS since this goes back to 2011 and all start with pulmonary issues. I’m weak & tired all the time. PT helps a bit but not greatly.

fancy50 | @fancy50 | 11 hours ago

In reply to @tatjohns "Diagnosed following acute COVID infection in May 2022, difficulty breathing, new sleep apnea, brain fog, cognitive..." + (show)

I'm having all of this. Had covid and now have it again. But where I live There s no help with any of these issues.

fancy50 | @fancy50 | 11 hours ago

In reply to @mmoose72 "I've lost 60lb since getting covid #3 last November. I'm holding steady at 115lb with no..." + (show)

I'm the same way
Covid first time four years ago and now have it again and suffer from all of the same issues you have. Loss of weight a big one brain fog hair falling out muscles wasting away sagging skin. There's no help here where I live. And it's miserable..

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