Anyone dealing with symptoms of portal Hypertension if so please share

I have Portal hypertension. I also suffer the same pain. I just got diagnosed a month ago. My GI doctor has done many test. Because my spleen and liver are enlarged they have done a liver ultrasound which has measured the how it stretches it doesn’t show anything. However the blood work shows something different so he is doing an upper endoscopy. I suggest since you have portal hypertension. I would suggest You get a GI doctor and get bloodwork done and get test done to check your spleen and liver to make sure you don’t have hepatitis or to make sure you don’t have liver
fibrosis or worse. Having portal hypertension can lead to a lot of possibilities. I wish the best of luck. I do understand your pain though. I have them too.

@codatt. I already know I have Harding of the liver and cysts on my liver have had hepatitis B in the past but no longer have it my spleen is swollen. , I have cirrhosis of my and don’t drink alcohol never liked it , so it’s a strange situation.
I have Portal hypertension with a
spontaneous systemic shunt that formed its self, my body is trying to reroute the blood flow in my body I have cirrhosis, the shunt was found on a CT scan because of severe pain in my abdomen at the emergency room.
My PDP is trying to get me into a GI Doctor but finding on in insurance seem to be a problem without having to Travel 299-150 miles my PCP said she see a transplant in the near future for me.
Thank you for sharing with me now I know a little bit of what to expect when I go to my GI appointment, let me ask you do you have a lot of pain in you upper stomach/ chest area , because I do ???

Yes I do, which makes it hard for me to breathe. Which I also have lung issues which does not help. But having fluid in my stomach pushes my diaphragm up which causes me having a hard time to breathe and also causes me to have chest pain. I did have an echocardiogram done and in January my cardiologist is going to go over it with me. There are things going on.

Yes we have a lot of the same problems I have a few things wrong with my heart and a lot of other health issues.
I’m always sick there’s always something going on with my health it seems like , I told my husband that something was causing me to be sick all the time my health went h£// all of a sudden about 3 yrs ago I’m going to be 62 in a few days.
And have been healthy most of my life. But I’m just taking one day at a time that’s the best I can do. Hoping you and your family
have a Happy Thanksgiving thank you and I hope you feel better my friend blessings to you

I am around the same age as you.

I am so sad you are going through all of this too. I am glad I met you though.

I hope you also have a blessed thanksgiving and a wonderful holiday season. I hope you get some answers soon and feel better too.

Thank you same to you feel better and I hope you get some answers as well ❤️

Hi! I’m 40 but was dx 2 years ago w/ a PVT (blood clot in my portal and SMV veins). This clot is causing portal hypertension. The collateral veins (cavernous transformation) are great in that they have formed to relieve some of the pressure, the flip side is that they are causing esophageal varices. Now, they think I have a gastric varices-which if ruptures is worse than a gun shot wound! Death! I was perfectly healthy -no drugs or alcohol. I’m so annoyed! My liver doc just did a stiffness test (results 5.6) and blood work (enzymes normal) and scans show a perfectly healthy liver. Heart tests also show heart is also good. However, my plumbing (vein flow) is bad! My portal vein is beginning to become morphed, my spleen is enlarged and as a result, my iron is low, my hemoglobin won’t go higher than 8, and my platelets are also low-although I get infusions, they can’t keep up with this greedy spleen! My stomach hurts everytime I eat and the bloat hurts the top part of my stomach so badly. My waist is 28” but after I eat can expand to 34”. I’m starting to have serous back issues because I’m always hunched over in pain or hunched over because I’m cold due to the anemia. Heat pad helps at night, but I’m starting to get weird marks on my stomach from the excessive heat when I use it too much. My docs have me on Eliquis, and Coreg-each 2x daily. Although my blood pressure is typically low, I’m on the Coreg to help reduce some of the portal hypertension. However, I get extremely lightheaded and dizzy all day. I guess dizzy all day is still better than death from ruptured varices.
My Quality of life is on a decline. I still don’t know what I can eat or not eat and I’m terrified to work out again because I don’t want any thoracic pressure to rupture varices.

Has anyone got their arms around this thing and are managing their symptoms/secondary issues? Any tips? Pointers?

I’m so sorry to hear you are so ill with theses problems, I have hyper portal tension as well just found out in July myself. The only thing they will tell me is my condition is currently stable, my liver is hardening, I have chronic pancreatic, many heart problems and just went threw treatment for breast cancer
I just turned 63 in November,
And my health also just gets worse and worse, I have a lot of problems as well. Not much I can say to help you
I’m sorry, we can only do our best everyday to be strong and hang in there. I will pray for you my friend as I pray for myself everyday. I hope someone can help us both ❤️❤️🙏

I just wanted to let you know your not alone ❤️🙏❤️

Hi Jerrilyn. I read your profile, recognize we are both here on our quest to learn how to manage our ongoing health issues, and we are both from Kansas. Woo hoo! Nice to cross paths with you.