Any Success With Natural Treatments for Essential Thrombocythemia?

Posted by lisa1968 @lisa1968, Sep 13, 2023

Hello, I was just diagnosed yesterday with ET and I have the MPL EXON 10 MUTATION. My doctor put me on baby aspirin and hydroxurea. I didn't know that was a chemo drug until I looked it up.
I'm not going go take it, I want to try natural things. Have you tried any natural things? Did it help?

I'm starting on vitamin D3, tonic water with quinine, & Allicin. These are the only things i've read about last night a i'm just beginning my search for info to try and help myself. My platelets are in the low 700's and i'm 55 years old.

Have you heard of any other natural things to lower platelets? That's my goal right now. Thanks for reading.

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preacherswife1977 | @preacherswife1977 | Jan 11 5:08pm

In reply to @cdurbin "I just received my official diagnosis today & have an appointment on the 26th of this..." + (show)

It is definitely worth a try. I go back on the 25th without any CBD. If they are elevated more than last time I am definitely going back on CBD. Some Dr's don't like the use of CBD but I am at a point where I have to look out for myself. I have had it checked with and without the CBD and it is lower each time with the CBD, Wishing you the best!

lisa1968 | @lisa1968 | Jan 11 6:50pm

In reply to @preacherswife1977 "It is definitely worth a try. I go back on the 25th without any CBD. If..." + (show)

Please let us know what your results are on the 25th.

cdurbin | @cdurbin | Jan 11 9:27pm

In reply to @preacherswife1977 "It is definitely worth a try. I go back on the 25th without any CBD. If..." + (show)

Are you doing the HU with it?

IKEALover | @healedbytheblood0119 | Feb 5 7:02am

In reply to @preacherswife1977 "It is definitely worth a try. I go back on the 25th without any CBD. If..." + (show)

CBD is lowering your platelets count? Is that the only single thing you’re taking? No aspirin, Rx, vitamins, supplements?

sregiani | @sregiani | Feb 6 9:55pm

In reply to @preacherswife1977 "It is definitely worth a try. I go back on the 25th without any CBD. If..." + (show)

How much CBD and how often?

preacherswife1977 | @preacherswife1977 | Feb 6 10:09pm

In reply to @sregiani "How much CBD and how often?" + (show)

I have the 25 mg gummies I take 1/4 of one daily

preacherswife1977 | @preacherswife1977 | Feb 6 10:12pm

In reply to @healedbytheblood0119 "CBD is lowering your platelets count? Is that the only single thing you’re taking? No aspirin,..." + (show)

I take low dose aspirin and HU 500 mg on MWF

preacherswife1977 | @preacherswife1977 | Feb 6 10:13pm

In reply to @lisa1968 "Please let us know what your results are on the 25th." + (show)

Platelets were up when I went back on the 25th, I have started back with the CBD, I take the 25 mg gummies and I take 1/4 of one daily

IKEALover | @healedbytheblood0119 | Feb 14 7:38pm

Hi, agreed I’m holistic too and doing my best to not take more than this baby aspirin don’t even want that.

I’ve read cranberry juice, vegan diet, fish oil 1200mg, garlic oil 1000mg, ginger root 550mg, ginko biloba 125mg, turmeric 500mg, cinnamon 2000mg, vit D3 (no K) 10,000mg every other day, and Echinacea 400mg help platelets go down and thin blood.

Regarding exact dosing and supplements see a holistic/functional med dr to confirm.

Also no multivitamins anymore bc B12, A, etc. raise platelets.

sregiani | @sregiani | Feb 15 8:50am

So right to recommend seeing a functional medicine doc.
Mine wants me on K2 (makes D more effective and is heart protective) and extra B vits to negate damage from air pollution as I’m in an industrial area.
Yes, it's important to read up on what is helpful to control our platelets. We are all individuals and need to work w/someone professional who knows us best.

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