Any Success With Natural Treatments for Essential Thrombocythemia?
Hello, I was just diagnosed yesterday with ET and I have the MPL EXON 10 MUTATION. My doctor put me on baby aspirin and hydroxurea. I didn't know that was a chemo drug until I looked it up.
I'm not going go take it, I want to try natural things. Have you tried any natural things? Did it help?
I'm starting on vitamin D3, tonic water with quinine, & Allicin. These are the only things i've read about last night a i'm just beginning my search for info to try and help myself. My platelets are in the low 700's and i'm 55 years old.
Have you heard of any other natural things to lower platelets? That's my goal right now. Thanks for reading.
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Can you please share the information you have about CBD lowering platelets?
I take CBD at night to help me sleep but I have not noticed any impact on my platelet counts.
Also I am wondering about using CBD in Europe. I will be traveling for a month with summer but I am unsure if I can take the CBD with me. I fly into and out of London but will be in many countries during this month.
Be very careful with K2 - it is also used to increase platelet levels in patients who have low levels!
Agreed getting a good Functional Med Dr is key.
But if you have a blood disorder with high platelets my understanding is you shouldn’t be on any K supplements and should also avoid consuming K products…K thickens blood, creates more platelets, creates clots.
The B vitamins primarily B12 are going to raise platelets count.
I have a great Chinese med Dr who’s in process of also becoming a Functional Med Dr and she said same thing to me about Vit K and B but I told her for blood disorders and high platelets we are ppl that this will have negative effects on.
A pilot friend told me best to not potentially endanger yourself and to not bring any type of CBD, etc. product.
Just buy some when you get to wherever you’re flying.
And don’t bring it back home or elsewhere on plane with you.
I tried all that you mention plus Pomegranate, Feverfew, Fever Tree tonic, grape seed extract, walnut oil, etc. but after 2.5 years my plt count went to 2057 and I was experiencing extreme fatigue, so I started Hydroxyuria 500 mg, 1 a day. Now 1.5 years later the plt count is down to 757 and I was told to take 2 Hydro's a day, = 1000 mg. BTW, I have Polycythemia Vera and I just turned 76. but,,, I feel OK. No more fatigue, itching, left side upper body pain or bumps under the skin. BE CAREFUL of cinnamon, it will damage the liver if taken in large doses for extended periods of time.
That’s why it’s so important to work w/your medical team. In my case, they draw blood every 3 months to monitor my levels.
My functional med doc and my my heme doc both say to take “Koncentrated K”. You can look it up. What works for one does not work for all, and there is a big difference in K1 vs K2.
Thank you for your reply. You’re right same as Rx and OTC drugs natural supplements effectiveness will likely vary from person to person too.
Yeah I get blood drawn every 3mo too. Hate going. I’ve heard some ppl say going every 2 mo is better but I don’t know.
I’ve not heard of Koncentrated K, just to avoid K in supplements and food, drinks, etc.
If you’re okay taking K it’s your choice, and yes sometimes people react different to the same med or supplement.
I just don’t want the extra clot risk so am avoiding K.
Have you had any success with the tonic water?