Any non fracture members?

Posted by rudysmom @rudysmom, May 18 7:24am

I guess I’m just looking for some encouraging words. I was diagnosed in February and still working through the different stages of grief/loss. I seem to have more days stuck in depression/sadness.

So, was just wondering if anyone on here has dealt with OP for quite a while and hasn’t fractured? I know you can fracture even if your scores are osteopenia range. I feel like everyday I’m just waiting for a fracture to happen. Im exercising 6 days a week and watching my food intake. I’m just hoping as time goes on this feeling lessens. Sometimes I’m not sure if it’s the diagnosis that’s making me sad or just the fact that I’m getting older, I’m 60, and reality has finally set in.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for aliv @aliv

@frog100 Hi! What do you think of Reclast and Fosamax? Have you taken either? Any side effects?

Jump to this post

@aliv
I took actonel for five years and did the three years of Reclast. Can’t comment about the actonel, but the Reclast did improve my T scores with no side effects .Since I am small and small boned and learned that a TBS score would be helpful when getting my next DEXA, I am remaining optimistic that my T scores maybe overstated, and thanks to all those sharing about TBS . I am choosing not to do Evenity at this time. I want to wait until my next DEXA. I have learned a great deal from everyone sharing. I google every recommendation or question shared, and really appreciate Osteoboost’s seminars and also Osteoboston for information. At 83 I would definitely do Reclast again to remain stable, since I had no side effects then in my late 70’s. Each person is unique and there are so many variables to consider, age, T scores, diet, exercise.

REPLY
Profile picture for frog100 @frog100

@aliv
I took actonel for five years and did the three years of Reclast. Can’t comment about the actonel, but the Reclast did improve my T scores with no side effects .Since I am small and small boned and learned that a TBS score would be helpful when getting my next DEXA, I am remaining optimistic that my T scores maybe overstated, and thanks to all those sharing about TBS . I am choosing not to do Evenity at this time. I want to wait until my next DEXA. I have learned a great deal from everyone sharing. I google every recommendation or question shared, and really appreciate Osteoboost’s seminars and also Osteoboston for information. At 83 I would definitely do Reclast again to remain stable, since I had no side effects then in my late 70’s. Each person is unique and there are so many variables to consider, age, T scores, diet, exercise.

Jump to this post

@frog100 Thank you for replying. It sounds like you are doing well! I am leaning toward Reclast so it is encouraging to hear that you had no side effects. You are right; each person is different.

REPLY
Profile picture for gravity3 @gravity3

@aliv

Did you and your physician talk about the bone building drugs....forteo, tymlos and evenity? Did she explain why she is recommending fosomax, reclast or Prolia first?
We are all finding that it is very helpful to do our own research on Osteoporosis and treatments. It makes it easier to advocate for yourself.
Sequencing of these meds is important so you may want to explore that further.
I am not a physician only a tired patient. What were your latest dexa scores?

Jump to this post

@gravity3 Thanks for your reply! Yes, she suggested Prolia (which I have ruled out), Fosamax or Reclast. I am leaning toward Reclast. I am afraid of stomach problems with Fosamax.
My DEXA shows osteoporosis: spine –2.8, femoral neck –2.5, total hip –2.4.

REPLY
Profile picture for gravity3 @gravity3

@aliv

Did you and your physician talk about the bone building drugs....forteo, tymlos and evenity? Did she explain why she is recommending fosomax, reclast or Prolia first?
We are all finding that it is very helpful to do our own research on Osteoporosis and treatments. It makes it easier to advocate for yourself.
Sequencing of these meds is important so you may want to explore that further.
I am not a physician only a tired patient. What were your latest dexa scores?

Jump to this post

@gravity3 although my endo was pushing for Reclast, I told her I wanted to try Evenity. She felt certain that standard Medicare wouldn't cover because I've never had a fracture, even though my bone density has decreased 10% in the past 3 years. However, Medicare says that a fracture isn't a requirement for coverage, so I will begin evenity next month.

REPLY
Profile picture for aliv @aliv

@gravity3 Thanks for your reply! Yes, she suggested Prolia (which I have ruled out), Fosamax or Reclast. I am leaning toward Reclast. I am afraid of stomach problems with Fosamax.
My DEXA shows osteoporosis: spine –2.8, femoral neck –2.5, total hip –2.4.

Jump to this post

@aliv

Something you may want to research is the importance of how these meds are sequenced. Of course your own medical history is critical too.
Here is an example:
A bisphosphonate such as reclast or fosomax can impede the bone gains of anabolics, if used first.
https://pmc.ncbi.nlm.nih.gov/articles/PMC6124202/
https://www.sciencedirect.com/science/article/pii/S0378512223004528

REPLY
Profile picture for gravity3 @gravity3

@aliv

Something you may want to research is the importance of how these meds are sequenced. Of course your own medical history is critical too.
Here is an example:
A bisphosphonate such as reclast or fosomax can impede the bone gains of anabolics, if used first.
https://pmc.ncbi.nlm.nih.gov/articles/PMC6124202/
https://www.sciencedirect.com/science/article/pii/S0378512223004528

Jump to this post

@gravity3 Thank you for the information. I am still in the "not severe" category, so I don't think anabolics are appropriate for me. But it is still good to know about them.

REPLY
Profile picture for aliv @aliv

@gravity3 Thank you for the information. I am still in the "not severe" category, so I don't think anabolics are appropriate for me. But it is still good to know about them.

Jump to this post

@aliv
I think it’s so crazy that we have to be considered severe before they give us the bone building meds. My spine is -2.7 and hips are -2.0. The one Dr suggested Evenity. Which after researching I want to do. My hope is it would put me back into Osteopenia that I could do a drug holiday for a while. My insurance is denying it. So I’m stuck at the moment. I tried Fosomax and had a reaction. So I feel biophosonates aren’t a good match for me. Now I need to convince BCBS the same thing. lol

REPLY
Profile picture for aliv @aliv

I was diagnosed about 4 years ago - I have decided I probably need to take something - my doctor recommended Prolia, Fosamax, or Reclast - my choice. I am still trying to decide between the last two. I ruled out Prolia because it is espensive and my insurance doesn't cover it, and if I understand correctly, if you stop taking it, you are even more likely to have a fracture. I will probably try Fosamax, though I am concerned about the effect on my digestive tract. If I don't I guess it will be Reclast - but some say it causes pain sometimes - and the way I see it, Fosamax being once a week won't be in my system very long, where my body is "stuck" with Reclast for a whole year! I know there are other meds but these are the ones my doc prefers. I am 75 and have never had a break, and have been remarkably healthy all my life. My recent blood work was excellent, so I have a lot to be thankful for. Good luck!

Jump to this post

@aliv I am 78 and have never experienced a fracture except my little toe but many people fracture their little toe without having OP. I have fallen many times throughout my life since I was always active. I have wondered why I have never broken a bone even now at 78. Recently, I have been falling without a fracture with a BMD of -3.7, mostly due to my Border Collie’s exuberance. I have researched this phenomenon and identified two components that may explain this though I have only found scant research literature regarding this. There are two major components of bone composition, the internal matrix and the structural bone. I surmise that OP persons experiencing falls without fractures probably have strong structural bone but depleted bone matrix. Since, I have not found published scientific research on this phenomenon, please share any studies that anyone has identified so I can further understand this. I am so grateful for this forum and have learned so much. Thank you.

REPLY
Please sign in or register to post a reply.