Any non fracture members?
I guess I’m just looking for some encouraging words. I was diagnosed in February and still working through the different stages of grief/loss. I seem to have more days stuck in depression/sadness.
So, was just wondering if anyone on here has dealt with OP for quite a while and hasn’t fractured? I know you can fracture even if your scores are osteopenia range. I feel like everyday I’m just waiting for a fracture to happen. Im exercising 6 days a week and watching my food intake. I’m just hoping as time goes on this feeling lessens. Sometimes I’m not sure if it’s the diagnosis that’s making me sad or just the fact that I’m getting older, I’m 60, and reality has finally set in.
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@aliv
I took actonel for five years and did the three years of Reclast. Can’t comment about the actonel, but the Reclast did improve my T scores with no side effects .Since I am small and small boned and learned that a TBS score would be helpful when getting my next DEXA, I am remaining optimistic that my T scores maybe overstated, and thanks to all those sharing about TBS . I am choosing not to do Evenity at this time. I want to wait until my next DEXA. I have learned a great deal from everyone sharing. I google every recommendation or question shared, and really appreciate Osteoboost’s seminars and also Osteoboston for information. At 83 I would definitely do Reclast again to remain stable, since I had no side effects then in my late 70’s. Each person is unique and there are so many variables to consider, age, T scores, diet, exercise.
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2 Reactions@frog100 Thank you for replying. It sounds like you are doing well! I am leaning toward Reclast so it is encouraging to hear that you had no side effects. You are right; each person is different.
@gravity3 Thanks for your reply! Yes, she suggested Prolia (which I have ruled out), Fosamax or Reclast. I am leaning toward Reclast. I am afraid of stomach problems with Fosamax.
My DEXA shows osteoporosis: spine –2.8, femoral neck –2.5, total hip –2.4.
@gravity3 although my endo was pushing for Reclast, I told her I wanted to try Evenity. She felt certain that standard Medicare wouldn't cover because I've never had a fracture, even though my bone density has decreased 10% in the past 3 years. However, Medicare says that a fracture isn't a requirement for coverage, so I will begin evenity next month.
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2 Reactions@aliv
Something you may want to research is the importance of how these meds are sequenced. Of course your own medical history is critical too.
Here is an example:
A bisphosphonate such as reclast or fosomax can impede the bone gains of anabolics, if used first.
https://pmc.ncbi.nlm.nih.gov/articles/PMC6124202/
https://www.sciencedirect.com/science/article/pii/S0378512223004528
@gravity3 Thank you for the information. I am still in the "not severe" category, so I don't think anabolics are appropriate for me. But it is still good to know about them.
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1 Reaction@aliv
I think it’s so crazy that we have to be considered severe before they give us the bone building meds. My spine is -2.7 and hips are -2.0. The one Dr suggested Evenity. Which after researching I want to do. My hope is it would put me back into Osteopenia that I could do a drug holiday for a while. My insurance is denying it. So I’m stuck at the moment. I tried Fosomax and had a reaction. So I feel biophosonates aren’t a good match for me. Now I need to convince BCBS the same thing. lol
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2 Reactions@aliv I am 78 and have never experienced a fracture except my little toe but many people fracture their little toe without having OP. I have fallen many times throughout my life since I was always active. I have wondered why I have never broken a bone even now at 78. Recently, I have been falling without a fracture with a BMD of -3.7, mostly due to my Border Collie’s exuberance. I have researched this phenomenon and identified two components that may explain this though I have only found scant research literature regarding this. There are two major components of bone composition, the internal matrix and the structural bone. I surmise that OP persons experiencing falls without fractures probably have strong structural bone but depleted bone matrix. Since, I have not found published scientific research on this phenomenon, please share any studies that anyone has identified so I can further understand this. I am so grateful for this forum and have learned so much. Thank you.
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