Any non fracture members?

Posted by rudysmom @rudysmom, May 18 7:24am

I guess I’m just looking for some encouraging words. I was diagnosed in February and still working through the different stages of grief/loss. I seem to have more days stuck in depression/sadness.

So, was just wondering if anyone on here has dealt with OP for quite a while and hasn’t fractured? I know you can fracture even if your scores are osteopenia range. I feel like everyday I’m just waiting for a fracture to happen. Im exercising 6 days a week and watching my food intake. I’m just hoping as time goes on this feeling lessens. Sometimes I’m not sure if it’s the diagnosis that’s making me sad or just the fact that I’m getting older, I’m 60, and reality has finally set in.

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Profile picture for aliv @aliv

@frog100 Hi! What do you think of Reclast and Fosamax? Have you taken either? Any side effects?

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@aliv
I took actonel for five years and did the three years of Reclast. Can’t comment about the actonel, but the Reclast did improve my T scores with no side effects .Since I am small and small boned and learned that a TBS score would be helpful when getting my next DEXA, I am remaining optimistic that my T scores maybe overstated, and thanks to all those sharing about TBS . I am choosing not to do Evenity at this time. I want to wait until my next DEXA. I have learned a great deal from everyone sharing. I google every recommendation or question shared, and really appreciate Osteoboost’s seminars and also Osteoboston for information. At 83 I would definitely do Reclast again to remain stable, since I had no side effects then in my late 70’s. Each person is unique and there are so many variables to consider, age, T scores, diet, exercise.

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Profile picture for frog100 @frog100

@aliv
I took actonel for five years and did the three years of Reclast. Can’t comment about the actonel, but the Reclast did improve my T scores with no side effects .Since I am small and small boned and learned that a TBS score would be helpful when getting my next DEXA, I am remaining optimistic that my T scores maybe overstated, and thanks to all those sharing about TBS . I am choosing not to do Evenity at this time. I want to wait until my next DEXA. I have learned a great deal from everyone sharing. I google every recommendation or question shared, and really appreciate Osteoboost’s seminars and also Osteoboston for information. At 83 I would definitely do Reclast again to remain stable, since I had no side effects then in my late 70’s. Each person is unique and there are so many variables to consider, age, T scores, diet, exercise.

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@frog100 Thank you for replying. It sounds like you are doing well! I am leaning toward Reclast so it is encouraging to hear that you had no side effects. You are right; each person is different.

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Profile picture for gravity3 @gravity3

@aliv

Did you and your physician talk about the bone building drugs....forteo, tymlos and evenity? Did she explain why she is recommending fosomax, reclast or Prolia first?
We are all finding that it is very helpful to do our own research on Osteoporosis and treatments. It makes it easier to advocate for yourself.
Sequencing of these meds is important so you may want to explore that further.
I am not a physician only a tired patient. What were your latest dexa scores?

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@gravity3 Thanks for your reply! Yes, she suggested Prolia (which I have ruled out), Fosamax or Reclast. I am leaning toward Reclast. I am afraid of stomach problems with Fosamax.
My DEXA shows osteoporosis: spine –2.8, femoral neck –2.5, total hip –2.4.

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Profile picture for gravity3 @gravity3

@aliv

Did you and your physician talk about the bone building drugs....forteo, tymlos and evenity? Did she explain why she is recommending fosomax, reclast or Prolia first?
We are all finding that it is very helpful to do our own research on Osteoporosis and treatments. It makes it easier to advocate for yourself.
Sequencing of these meds is important so you may want to explore that further.
I am not a physician only a tired patient. What were your latest dexa scores?

Jump to this post

@gravity3 although my endo was pushing for Reclast, I told her I wanted to try Evenity. She felt certain that standard Medicare wouldn't cover because I've never had a fracture, even though my bone density has decreased 10% in the past 3 years. However, Medicare says that a fracture isn't a requirement for coverage, so I will begin evenity next month.

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