Anyone have insomnia as symptom of COVID-19?

Posted by mkqq @mkqq, Apr 30, 2020

Hi all,

So I got sick 8 weeks ago and the doctor thinks it might have been Covid-19. There was no way to be certain as the infection was already gone when I visited the clinic last week. They did a CRP test and it showed no sign of infection.

I started with a fever that lasted 3 days and suddenly on the 4th or 5th day I had a sleepless night. Then for the next 5 days I had alternating nights where I slept and where I couldn’t sleep at all. For the last 8 weeks or so my sleeping has been absolutely terrible.

The doctor tells me she has seen other Covid-19 patients and some of they say they cannot sleep.

Just wondering is anyone experiencing insomnia as a direct symptom of Covid-19? Or does it always come down to anxiety and your fight/flight response? For me there is a lot of anxiety which is contributing to the problem.

Many thanks

Thank you so much! Sounds like sound advice. Thank you for taking the time to write. Obtaining Melatonin might be difficult in the UK, but I will investigate.

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@mariyamakabo

Thank you so much! Sounds like sound advice. Thank you for taking the time to write. Obtaining Melatonin might be difficult in the UK, but I will investigate.

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Good morning @mariyamakabo. It's been a while since we have spoken. Fatigue and insomnia have become a very common side effect post-covid-19. There's even a name for it now! "COVID-somnia". As this virus persists I think that we will, unfortunately, see more longlasting side-effects
https://journals.lww.com/neurotodayonline/fulltext/2020/07090/sleep_neurologists_call_it.1.aspx
https://www.mayoclinic.org/diseases-conditions/coronavirus/in-depth/coronavirus-long-term-effects/art-20490351

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I was diagnosed with Covid19 on 12/7 (symptoms on 12/4/21).My medical provider put me on Ivermectin x 2 doses, Vit C, D, Zinc, Fish Oil, baby aspirin 2 x a day & Melatonin. On symptom-day 3 I started having about 3 fevers (100.0-100.9) daily that would stay above 99.0 with the use of Tylenol. I started to have insomnia at that time, twisting/turning in bed with disrupted sleep the whole night, and I would have the same dream over and over as I drifted into a light sleep. I dreaded the thought of sleep during the day because I knew what was coming. I started a cough that worsened. On 12/13 I went to the ER because I was losing my breath with coughing and started having shortness of breath. I was diagnosed with pneumonia and admitted to the hospital. Treated with IV antibiotics, IV steroids & injectable blood thinner. I was sent home the next day on oral antibiotics & a steroid (that probably added to the insomnia). I also started home oxygen therapy at 3 liters & piggybacked it into my CPAP hose at bedtime. I continued to wake 3 times a night (waking shortly after midnight, around 0300, & 0500). Insomnia continued until 1/02/21. By then it had tapered to 2 x a night for a week, then 1 time a night for a week.
After being absent from work for a month I returned on 1/04/21 starting at 4 hrs a day. That night I started waking up 3 x a night, again. I started a Rx generic sleep-med that knocked me out so I stopped. It would make me sleep all night but I couldn't get up to go to work. Now, I will start the brand name version 1/13 (fingers crossed that it works). When I awaken throughout the night I also have a hard time going back to sleep. I'm not exactly sure how many hours of sleep I get a night. I didn't notice a difference in my sleep pattern when taking 9mg of Melatonin, so I stopped that a while back.
From the beginning I made sure that I was well hydrated with water. I had a decreased appetite, and a loss of half of my taste, but a heightened taste of salt of anything made with added salt (cheese, peanut butter, etc). I lost 5 lb in 18 days because I also couldn't eat very much due to a fuller stomach pushing against my diaphragm and not letting my lungs expand, causing shortness of breath. Fruit tasted best so I had fresh fruit & my husband made me smoothies. I now eat 2 meals and 2 snacks a day.
I am also experiencing Covid19 Brain Fog. I have trouble finding words during a conversation, a hard time remembering computer passwords and performing computer tasks, a little trouble staying focused, and get a little overwhelmed with multi-tasking. My employer is working closely with me to make sure I am not getting overworked so I don't have a relapse with my breathing. I work 4-6 hrs a day depending on my stamina.
I do feel that I am progressing and have noticed mini-milestones on 12/18, 12/23, 1/02/21. On 12/23 I stopped wearing oxygen 24 hrs a day. I still take a shower with oxygen at 1.5 liters, and use 02 with my CPAP at 1.5 L. My oxygen saturation levels on my finger now range 93-95% without oxygen; but if I exert myself too much I get short of breath and have put on oxygen for relief . 02 saturations will drop to 90-92. I removethe 02 once it is resolved.

If you have any questions pertaining my story please feel free to ask. I am learning more about my condition and living with the after-effects of Covid19, which I am praying will subside with time.

K Patterson

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@kpatterson

I was diagnosed with Covid19 on 12/7 (symptoms on 12/4/21).My medical provider put me on Ivermectin x 2 doses, Vit C, D, Zinc, Fish Oil, baby aspirin 2 x a day & Melatonin. On symptom-day 3 I started having about 3 fevers (100.0-100.9) daily that would stay above 99.0 with the use of Tylenol. I started to have insomnia at that time, twisting/turning in bed with disrupted sleep the whole night, and I would have the same dream over and over as I drifted into a light sleep. I dreaded the thought of sleep during the day because I knew what was coming. I started a cough that worsened. On 12/13 I went to the ER because I was losing my breath with coughing and started having shortness of breath. I was diagnosed with pneumonia and admitted to the hospital. Treated with IV antibiotics, IV steroids & injectable blood thinner. I was sent home the next day on oral antibiotics & a steroid (that probably added to the insomnia). I also started home oxygen therapy at 3 liters & piggybacked it into my CPAP hose at bedtime. I continued to wake 3 times a night (waking shortly after midnight, around 0300, & 0500). Insomnia continued until 1/02/21. By then it had tapered to 2 x a night for a week, then 1 time a night for a week.
After being absent from work for a month I returned on 1/04/21 starting at 4 hrs a day. That night I started waking up 3 x a night, again. I started a Rx generic sleep-med that knocked me out so I stopped. It would make me sleep all night but I couldn't get up to go to work. Now, I will start the brand name version 1/13 (fingers crossed that it works). When I awaken throughout the night I also have a hard time going back to sleep. I'm not exactly sure how many hours of sleep I get a night. I didn't notice a difference in my sleep pattern when taking 9mg of Melatonin, so I stopped that a while back.
From the beginning I made sure that I was well hydrated with water. I had a decreased appetite, and a loss of half of my taste, but a heightened taste of salt of anything made with added salt (cheese, peanut butter, etc). I lost 5 lb in 18 days because I also couldn't eat very much due to a fuller stomach pushing against my diaphragm and not letting my lungs expand, causing shortness of breath. Fruit tasted best so I had fresh fruit & my husband made me smoothies. I now eat 2 meals and 2 snacks a day.
I am also experiencing Covid19 Brain Fog. I have trouble finding words during a conversation, a hard time remembering computer passwords and performing computer tasks, a little trouble staying focused, and get a little overwhelmed with multi-tasking. My employer is working closely with me to make sure I am not getting overworked so I don't have a relapse with my breathing. I work 4-6 hrs a day depending on my stamina.
I do feel that I am progressing and have noticed mini-milestones on 12/18, 12/23, 1/02/21. On 12/23 I stopped wearing oxygen 24 hrs a day. I still take a shower with oxygen at 1.5 liters, and use 02 with my CPAP at 1.5 L. My oxygen saturation levels on my finger now range 93-95% without oxygen; but if I exert myself too much I get short of breath and have put on oxygen for relief . 02 saturations will drop to 90-92. I removethe 02 once it is resolved.

If you have any questions pertaining my story please feel free to ask. I am learning more about my condition and living with the after-effects of Covid19, which I am praying will subside with time.

K Patterson

Jump to this post

Your boss is a wonderful person! Thank them for supporting you. You describe it as I imagine. I already have insomnia so I guess that part I would survive. Your bravery is commendable and I wish you a quick release from all of your unpleasant symptoms of this dread disease.

REPLY
@kpatterson

I was diagnosed with Covid19 on 12/7 (symptoms on 12/4/21).My medical provider put me on Ivermectin x 2 doses, Vit C, D, Zinc, Fish Oil, baby aspirin 2 x a day & Melatonin. On symptom-day 3 I started having about 3 fevers (100.0-100.9) daily that would stay above 99.0 with the use of Tylenol. I started to have insomnia at that time, twisting/turning in bed with disrupted sleep the whole night, and I would have the same dream over and over as I drifted into a light sleep. I dreaded the thought of sleep during the day because I knew what was coming. I started a cough that worsened. On 12/13 I went to the ER because I was losing my breath with coughing and started having shortness of breath. I was diagnosed with pneumonia and admitted to the hospital. Treated with IV antibiotics, IV steroids & injectable blood thinner. I was sent home the next day on oral antibiotics & a steroid (that probably added to the insomnia). I also started home oxygen therapy at 3 liters & piggybacked it into my CPAP hose at bedtime. I continued to wake 3 times a night (waking shortly after midnight, around 0300, & 0500). Insomnia continued until 1/02/21. By then it had tapered to 2 x a night for a week, then 1 time a night for a week.
After being absent from work for a month I returned on 1/04/21 starting at 4 hrs a day. That night I started waking up 3 x a night, again. I started a Rx generic sleep-med that knocked me out so I stopped. It would make me sleep all night but I couldn't get up to go to work. Now, I will start the brand name version 1/13 (fingers crossed that it works). When I awaken throughout the night I also have a hard time going back to sleep. I'm not exactly sure how many hours of sleep I get a night. I didn't notice a difference in my sleep pattern when taking 9mg of Melatonin, so I stopped that a while back.
From the beginning I made sure that I was well hydrated with water. I had a decreased appetite, and a loss of half of my taste, but a heightened taste of salt of anything made with added salt (cheese, peanut butter, etc). I lost 5 lb in 18 days because I also couldn't eat very much due to a fuller stomach pushing against my diaphragm and not letting my lungs expand, causing shortness of breath. Fruit tasted best so I had fresh fruit & my husband made me smoothies. I now eat 2 meals and 2 snacks a day.
I am also experiencing Covid19 Brain Fog. I have trouble finding words during a conversation, a hard time remembering computer passwords and performing computer tasks, a little trouble staying focused, and get a little overwhelmed with multi-tasking. My employer is working closely with me to make sure I am not getting overworked so I don't have a relapse with my breathing. I work 4-6 hrs a day depending on my stamina.
I do feel that I am progressing and have noticed mini-milestones on 12/18, 12/23, 1/02/21. On 12/23 I stopped wearing oxygen 24 hrs a day. I still take a shower with oxygen at 1.5 liters, and use 02 with my CPAP at 1.5 L. My oxygen saturation levels on my finger now range 93-95% without oxygen; but if I exert myself too much I get short of breath and have put on oxygen for relief . 02 saturations will drop to 90-92. I removethe 02 once it is resolved.

If you have any questions pertaining my story please feel free to ask. I am learning more about my condition and living with the after-effects of Covid19, which I am praying will subside with time.

K Patterson

Jump to this post

@kpatterson– Welcome to Mayo Clinic Connect. Your story is one of inspiration! It looks like you are on your way to a positive recovery, even if it's not very fast. Fatigue is one of the most common side effects of COVID-19. Your immune system has worked tirelessly to help fight this off and it will need time and rest to heal. It looks like there is a lot of progress made!

Did you have lung issues prior to this?

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@merpreb

@kpatterson– Welcome to Mayo Clinic Connect. Your story is one of inspiration! It looks like you are on your way to a positive recovery, even if it's not very fast. Fatigue is one of the most common side effects of COVID-19. Your immune system has worked tirelessly to help fight this off and it will need time and rest to heal. It looks like there is a lot of progress made!

Did you have lung issues prior to this?

Jump to this post

No. I have never had breathing problems, pneumonia, and I do not have asthma. My husband has had asthma since childhood. He lost 35% of his lung function due to a lack of fast acting asthma medications available at that time. He also go Covid19 and had one day of a mild cough. It was odd that the virus affected my lungs so much more severely than his, but thank God he didn't get lung/breathing problems.

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@darla5780

I do not have anxiety nor do I suffer from depression. I am a happy, optimistic person. However, ever since I recovered from Covid I have severe insomnia. I go to bed at a reasonable time but at 5:00 in the morning I am STILL not sleepy. Nothing has changed in my life except that I had Covid. I hope there will be some studies/research on this phenomenon.

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Hello. Has this changed for you? I had Covid in April- had mild symptoms but debilitating insomnia. It’s been terrible and has greatly affected my life. I have never had insomnia before, and do not suffer from anxiety or depression. I have anxiety now due to not being able to sleep. Over the counter sleep meds do not work. I’m just never sleepy. Are you finally able to sleep?

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@juju5711979

Hello. Has this changed for you? I had Covid in April- had mild symptoms but debilitating insomnia. It’s been terrible and has greatly affected my life. I have never had insomnia before, and do not suffer from anxiety or depression. I have anxiety now due to not being able to sleep. Over the counter sleep meds do not work. I’m just never sleepy. Are you finally able to sleep?

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Hello @juju5711979 and welcome to Mayo Clinic Connect. I am sorry to hear about your continued insomnia following your positive COVID test. I can see that you quickly related to member @darla5780 and her experience so hope the pair of you can connect.

While we wait, here is a resource that may be helpful.

– Insomnia: Diagnosis and Treatment:
https://www.mayoclinic.org/diseases-conditions/insomnia/diagnosis-treatment/drc-20355173
Other than over the counter sleep meds, what else have you tried to help induce sleep?

REPLY

Sorry to hear about so many of you contracting insomnia from Covid-19.
I have not had Covid-19, but when I received the first Covid vaccination with Comirnaty (Pfizer/BioNTech), I got really bad insomnia for 7 nights. It took hours to fall asleep, then I slept for a maximum of two hours, woke up and the same thing over again. After 10 nights my sleep was back to normal again, the problem resolved spontaneously. The insomnia was a weird experience, the mind was completely awake but the body gradually got really tired over the sleepless week.
Insomnia is a known adverse effect of the vaccine, reported by the producer to be uncommon and happen in ≥ 1/1,000 to < 1/100. I find it biologically interesting that both the disease and the vaccine can give rise to insomnia and hope for research to clarify the mechanisms.

Have you seen any information whether the insomnia after Comirnaty can get worse with the second or third vaccination?

REPLY
@josanne

Sorry to hear about so many of you contracting insomnia from Covid-19.
I have not had Covid-19, but when I received the first Covid vaccination with Comirnaty (Pfizer/BioNTech), I got really bad insomnia for 7 nights. It took hours to fall asleep, then I slept for a maximum of two hours, woke up and the same thing over again. After 10 nights my sleep was back to normal again, the problem resolved spontaneously. The insomnia was a weird experience, the mind was completely awake but the body gradually got really tired over the sleepless week.
Insomnia is a known adverse effect of the vaccine, reported by the producer to be uncommon and happen in ≥ 1/1,000 to < 1/100. I find it biologically interesting that both the disease and the vaccine can give rise to insomnia and hope for research to clarify the mechanisms.

Have you seen any information whether the insomnia after Comirnaty can get worse with the second or third vaccination?

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Josanne, to discuss side effects of vaccination, please post your message to this discussion:
– Long Term Effects of COVID Vaccinations https://connect.mayoclinic.org/discussion/long-term-effects-of-covid-vaccinations/

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@juju5711979

Hello. Has this changed for you? I had Covid in April- had mild symptoms but debilitating insomnia. It’s been terrible and has greatly affected my life. I have never had insomnia before, and do not suffer from anxiety or depression. I have anxiety now due to not being able to sleep. Over the counter sleep meds do not work. I’m just never sleepy. Are you finally able to sleep?

Jump to this post

Today is 1 year since I tested positive for covid. Insomnia continues to plague me. Either I can not fall asleep or I wake after 2-3 hours and unable to fall back asleep for another 1-2 hours. I do not watch TV, play on my phone or laptop in bed. I have a routine of going to bed at the same time every night, cleaning teeth and face, change to pajamas, get in bed, only a bedside lamp is turned on, read a book (not magazine or news) 30-60 minutes, turn off the lamp without going to bed. I usually wind down with a tv show on the couch and the lights low for the hour prior to getting ready for bed. I don't drink caffiene past 3pm. BUT… Melatonin will help is I have more than 2 nights in a row with difficulty sleeping.

REPLY
@rinadbq

Today is 1 year since I tested positive for covid. Insomnia continues to plague me. Either I can not fall asleep or I wake after 2-3 hours and unable to fall back asleep for another 1-2 hours. I do not watch TV, play on my phone or laptop in bed. I have a routine of going to bed at the same time every night, cleaning teeth and face, change to pajamas, get in bed, only a bedside lamp is turned on, read a book (not magazine or news) 30-60 minutes, turn off the lamp without going to bed. I usually wind down with a tv show on the couch and the lights low for the hour prior to getting ready for bed. I don't drink caffiene past 3pm. BUT… Melatonin will help is I have more than 2 nights in a row with difficulty sleeping.

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correction: …..turn off the lamp without getting out of bed.

REPLY
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