Any Disseminated Superficial Actinic Porokeratosis (DSAP)

Posted by midtownnana @midtownnana, Aug 15, 2024

Hello,
I’m an 82 year old senior with DSAP diagnosed in my early 30’s.
“DSAP is a non- contagious skin condition with apparent genetic origin in the SART 3 gene. It most often occurs in sun-exposed area of the body”
Over the years I have tried a multiple treatment modalities to no avail including the extremely expensive Lovastatin 2% plus cholesterol 2% (latest study suggests cholesterol may not be needed in the formulation) to no avail!
Have been using EFFUDEX 5% for years which has done nothing to mitigate multiple new lesions occurring resulting in extensive lesions on my extremities & back & to a lesser extent on my abdomen ,face & ears.
I would be very grateful to hear of any treatment that has worked for others in treating this condition

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First. DSAP certainly isn't at the top of the list for cure resolutions due to its genetic rarity. Second, like most meds or compounds, they never resolve the issue, they simply help you tolerate its existence. I'm sure there are many variations of the condition that a, "one type of application or med" will not be our future unless some researcher decides it may be worth another clinical trial.

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