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Any Disseminated Superficial Actinic Porokeratosis (DSAP)
Hello,
I’m an 82 year old senior with DSAP diagnosed in my early 30’s.
“DSAP is a non- contagious skin condition with apparent genetic origin in the SART 3 gene. It most often occurs in sun-exposed area of the body”
Over the years I have tried a multiple treatment modalities to no avail including the extremely expensive Lovastatin 2% plus cholesterol 2% (latest study suggests cholesterol may not be needed in the formulation) to no avail!
Have been using EFFUDEX 5% for years which has done nothing to mitigate multiple new lesions occurring resulting in extensive lesions on my extremities & back & to a lesser extent on my abdomen ,face & ears.
I would be very grateful to hear of any treatment that has worked for others in treating this condition
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My spots start out feeling an intense sting like sensation, then intense itch. Even slight scratching results in bleeding. I don’t think I’ve ever read anyone else who had it or saw pics like it. Which puzzles me that my dermatologist says it’s psoriasis. I use cortisone, but can’t say it helps. Sigh. I tend to have it in flares. Sometimes there are months with no problem.
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1 ReactionIf you have months where there are no problems then do not have DSAP (disseminating superficial actinic porokeratosis) 🙂as it is chronic & the spots never go away and there are always new ones
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1 ReactionThanks.
I too have tried Effudex (It burned my skin! Very uncomfortable and I discontinued using it) and cholesterol ointment...it felt like I was wearing Vaseline all over my body! Hated how it felt and it was expensive. I discontinued using that as well. I have told my dermatologist(s) that I do not want to use ANY cream/ointment etc. because 1. I do not think they really work 2. I was told you have to keep on using it forever 3. $$$ and 4. I don't want my skin to burn/hurt feel worse than it already is! I will live with the spots. They do not hurt me, they are just ugly. I use a very rich body cream morning and night (Cetaphil)
I have had DSAP for many many years. Seen multiple dermatologist. I have had some on my face bleed and become very bad. I have tried many different things to make it better. I alos have dry thin skin. I am 78 years old and grew up in the South. We didn't have sunscreen back then and instead put baby oil and iodine on our skin. I never had a tan because my skin burned. I wear long sleeves and long pants all year long. If I am going to be in the sun, I put sunscreen on all over. I always wear sunscreen on my face. I used moisturizing shower products for years which did not help. Recently I have found LaRoche-Posey shower oil to be much better for my skin. I also use Cerva moisturizer all over my skin. I have a compromised immune system and a stressful life that doesn't help.