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Any Disseminated Superficial Actinic Porokeratosis (DSAP)
Hello,
I’m an 82 year old senior with DSAP diagnosed in my early 30’s.
“DSAP is a non- contagious skin condition with apparent genetic origin in the SART 3 gene. It most often occurs in sun-exposed area of the body”
Over the years I have tried a multiple treatment modalities to no avail including the extremely expensive Lovastatin 2% plus cholesterol 2% (latest study suggests cholesterol may not be needed in the formulation) to no avail!
Have been using EFFUDEX 5% for years which has done nothing to mitigate multiple new lesions occurring resulting in extensive lesions on my extremities & back & to a lesser extent on my abdomen ,face & ears.
I would be very grateful to hear of any treatment that has worked for others in treating this condition
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I am 82 as well and have tried your cream without help. I hope someone has the best treatment.
Yes…me too! Would love to hear any success stories!
I can't believe someone else has DSAP! Found it over 40 years ago and never found a dermatologist that had any cure other than zapping them.
Creams aren't even helpful.
I agree .Very discouraging!
Can you describe your symptoms?
Multiple red, dry ,scaly rings , with raised edge, each measuring up to 1/2 inch across literally covering arms ,legs ,back& to a lesser extent face, ears, & trunk.
There is a lot of information & photos on line
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2 ReactionsI’ve taken a look at some photos. Were you diagnosed by a dermatologist? I’ve had something similar for many years, but my dermatologists have always said it was psoriasis. I do have psoriasis on my scalp in a small spot, but the spots are on my arms and legs and don’t look like psoriasis to me. Just curious. My spots ate extremely itchy. Is that common?
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1 ReactionHello, I have had it for at least 20 years with no issues. I use coconut butter, not oil, and take D3 10,000 iu, everyday. I also use a body polish/scrub, for over 20 yrs. All natural oils, and ingredients. Trilliumherbal.com. I may try a cbd oil too as I want to get rid of it. I wear sunscreen and stay out of the sun. I hope this helps
You.
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2 Reactions@flowergirl122: thank you for your post and sharing your regime. This DSAP seems to fit my profile too. The derm biopsy came back “psoriasis” with no real help offered. Have you noticed that intense stress increases outbreaks? I would love a “cure” but settle for control and see areas healing instead of spreading. The itch is annoying.
Thanks again!
Yes, I have had it confirmed by several dermatologists over the years. My spots aren’t generally itchy but if exposed inadvertently to sun (around my ankles) they can become itchy or sting From my research itchiness is common.. There are always new spots which sting a bit. If I don’t religiously use moisturizer they become rough & scaly . I see a dermatologist every 6 months to monitor the spots as in rare cases it can develop into squamous cell or basal cell carcinoma. At these visits the most severe spots are treated with cryotherapy
If you do have psoriasis at least there are effective treatments.
All the best!
I keep up on the research and most articles indicate that there is no effective treatment. I tend to concur having tried blue light
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