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Antiphospholipid and Lyme disease

Autoimmune Diseases | Last Active: Feb 29, 2020 | Replies (10)

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@colleenyoung

Welcome @soitis4590.
You're the second person in less than 24 hours to post about antiphospholipid syndrome. @lena999 also wrote about being diagnosed with it 2 years ago.

According to this article by Mayo Clinic http://mayocl.in/1YaYc5X "People with certain infections, including syphilis, HIV infection, hepatitis C and Lyme disease, among others, have a higher incidence of having antiphospholipid antibodies."

What symptoms of APLS do you have and how are you managing them today?

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Replies to "Welcome @soitis4590. You're the second person in less than 24 hours to post about antiphospholipid syndrome...."

Hello,
Thank you for he link!!
I'm not sure what my symptoms would be today from APLS. The stroke certainly left me with some problems which continue today. Because I am on Coumadin (and aspirin is that med really necessary?) there are many repercussions from that. I need the usual bloodwork every 10 days to 4 weeks, I bleed and bruise easily, I can't take many antibiotics, I restrict my diet some-so as not to have to deal with the vitamin K issue, surgeries which I have needed are complicated by Coumadin. All the usual Coumadin stuff. The major event from APLS was the stroke. And perhaps a second in 2011. I consider it a TIA if that. No testing was done to confirm one and after 48 hours all issues were resolved with no deficits. A new dtroke has not been seen on future MRIs.
My late stage Lyme/bartonella symptoms are the most challenging right now. Is there a discussion group on this website for Lyme?
Why is there little discussion about APLS and stroke? I think a number of people must have it with problems.