Anti-rejection medications: Do you use a Specialty Pharmacy?

Posted by future @future, Aug 11 11:30am

Hi All,
i am a kidney transplant for 1.5 years done at Mayo clinic Rochetr MN. so far so good. Since the beginning i received my anti-rejection meds through Mayo Clinic Specialty pharmacy to be delivered to my home in Arkansas. all went smooth. my Tacrolimus twice a day was changed to Envarsus XR once a day (version of tacrolimus) and all meds were delivered from same specialty pharmacy. The difference was that Envarsus XR is a brand name and copay coupon was provided by the manufacturer to me and was very helpful but either the coupon or the price of the medication made the refill on monthly basis and not three months. That caused some stress, but Mayo specialty pharmacy cooperated. Suddenly 2 weeks ago the pharmacy sent a massage addressed to all patients that these antirejection meds are no longer specialty meds and patients need to find alternative pharmacies. Just like that making obtaining these meds my responsibility, I searcher all local pharmacies, and must be in-network with my insurance. I came up with some options; all carry risk of receiving on time for the Envarsus XR due to its monthly refill.

Local pharmacies in nearby towns carry for 3 patients only so they don't stock or other one never dealt with but can order. The DIRDI pharmacy can deliver to home but takes 7-10 days to deliver or expedited 3-7 days to deliver at $25. Even that option is risky making me constantly worry about receiving on time. I need to decide fast on least risk! among these options.
I wonder what other patients do to get their meds; I am not the only one who was relying on Mayo specialty delivering the meds.
Thanks
Magda

Interested in more discussions like this? Go to the Transplants Support Group.

You might want to contact O'Steens Pharmacy in Jacksonville, FL. They can usually assist and they can ship to you. Their # 904-388-0514.

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