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Angioimmuneoblastic T-Cell Lymphoma???

Posted by ThorsMom @thorsmom1959, Jun 11, 2016

Hi Everyone
I just joined the site/group as I'm trying to find anyone who has or knows someone who has had Angioimmuneoblastic T-Cell Lymphoma. I was diagnosed 7 weeks ago and I'm just finishing up my 2nd round of Chemo.

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thenester | @thenester | Jan 28 6:25pm
In reply to @bizzylizzy "@thenester So this is my advice… It is such good news that you get this second..." + (show)
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@thenester
So this is my advice…
It is such good news that you get this second go at life. Fantastic.
It will feel hard and as if it isn’t going to end, but you know what … morning, afternoon, evening, night … it will pass. Day 1, 2, 3 … it will soon be over and you’ll be enjoying good health.
You’ll look back and the really tough days will be forgotten.
Liz

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@bizzylizzy Hi Liz,
Thank you. I am forever grateful for modern medicine and this chance to beat this beast.
I hope to put this all behind me with each day getting easier. This has been a wild ride and I am ready to get off.
Thank you for your support. I will keep you up to date.
Jennifer ♡

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coloradored | @coloradored | Feb 3 12:45pm
In reply to @thenester "@coloradored Hi Jamie, Thank you for your response. I am in Phoenix the last 2 days..." + (show)
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@coloradored Hi Jamie,
Thank you for your response. I am in Phoenix the last 2 days for evaluation, testing and bone marrow biopsy. Everything looks great to move forward. Just waiting on the bone marrow biopsy results. Next week I will start my injections and collection. Admittance to the hospital is scheduled for Feb 10.
I have a lot of friends and family praying for me. It is such a wonderful feeling knowing the prayer warriors have my back.

I appreciate your support and willingness to answer questions. I will be back to give an update.
Jennifer ♡

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@thenester
Hello Jennifer! I'll be following your transplant journey. JuI found it so helpful to bring along a zip up or full button front hoodie since I was constantly cold while recovering in the hospital. I also wore a sleep cap continuously. A loved bed throw or favorite shawl is very comforting have handy. Please keep in touch & wishing you well on this journey.

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alxlo1 | @alxlo1 | Feb 4 8:05pm

My wife was diagnosed last August, 6 rounds of chemo, ( BV-CHP), unfortunately at the end of treatment the t-cell came back, so started two 4 week treatment with duv/romi. PET Scan yesterday showed no detectable sign of cancer, so tomorrow we start the process for a allogenic bone marrow transplant. She didn't have any bad side effects from the chemo, so we're hoping for good results moving forward. Keep a positive attitude and you'll get through this.

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