Angioimmuneoblastic T-Cell Lymphoma???

Posted by ThorsMom @thorsmom1959, Jun 11, 2016

Hi Everyone
I just joined the site/group as I’m trying to find anyone who has or knows someone who has had Angioimmuneoblastic T-Cell Lymphoma. I was diagnosed 7 weeks ago and I’m just finishing up my 2nd round of Chemo.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Hi @thorsmom1959. Welcome to Connect! We are so glad you’ve joined our community. I’m sorry to hear about your diagnosis; I know that must be scary. How is chemo going? Chemo treatment is definitely a hard journey, so I hope you know this community is here for you and rooting for you! Please keep us updated on your progress.

I wasn’t able to find any previous posts directly related to AITL but I am tagging @travelgirl, @bobc, @djzlady96 and @lacey who have posted about lymphoma in the past and may be able to provide some support and insight.

Also here’s a list of non-Hodgkin’s lymphoma (NHL) clinical trials open now at Mayo Clinic. These are the latest treatments under study.

You may also want to read this thread and meet other members talking about NHL:


@thorsmom1959 sorry you are here. I have follicular lymphoma diagnosed on 1/4/16. My lymphoma was found 2 weeks after being diagnosed with Cecum Colon Cancer stage 1, during a CT scan.
I am currently on a watch and wait treatment plan. As I do not have any symptoms. I just have a few enlarged lymph nodes near my aorta. Every 3 months I need a set of CT scans and blood work done. I return back to the DR in August for another set of scans and check up.
Mayo does have a lot of clinic trials ongoing. They also are conducting many lymphoma studies.
hugs my friend and wishing the best ..God Bless

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