Angioimmuneoblastic T-Cell Lymphoma???

Hi @thorsmom1959. Welcome to Connect! We are so glad you've joined our community. I'm sorry to hear about your diagnosis; I know that must be scary. How is chemo going? Chemo treatment is definitely a hard journey, so I hope you know this community is here for you and rooting for you! Please keep us updated on your progress.

I wasn't able to find any previous posts directly related to AITL but I am tagging @travelgirl, @bobc, @djzlady96 and @lacey who have posted about lymphoma in the past and may be able to provide some support and insight.

Also here's a list of non-Hodgkin's lymphoma (NHL) clinical trials open now at Mayo Clinic. These are the latest treatments under study. http://www.mayoclinic.org/diseases-conditions/non-hodgkins-lymphoma/care-at-mayo-clinic/clinical-trials/con-20027792

You may also want to read this thread and meet other members talking about NHL: https://connect.mayoclinic.org/discussion/non-hodgkins-lymphoma-2c0eb7/

@thorsmom1959 sorry you are here. I have follicular lymphoma diagnosed on 1/4/16. My lymphoma was found 2 weeks after being diagnosed with Cecum Colon Cancer stage 1, during a CT scan.
I am currently on a watch and wait treatment plan. As I do not have any symptoms. I just have a few enlarged lymph nodes near my aorta. Every 3 months I need a set of CT scans and blood work done. I return back to the DR in August for another set of scans and check up.
Mayo does have a lot of clinic trials ongoing. They also are conducting many lymphoma studies.
hugs my friend and wishing the best ..God Bless

My daughter, age 34, was just diagnosed this week with Angioimmunoblastic T-cell Lymphoma. Needless to say, we are terrified. How is your chemo going? Any insight on your short journey would help us immensely. Are you getting treatment at the Mayo? I apologize for all the questions my head is spinning.

Hi @kthomson, I'm tagging @thorsmom1959 to make sure that they saw your post about your dauther's recent diagnosis with angioimmunoblastic T-cell lymphoma. I can imagine you are both terrified. What treatment had been recommended for her? When does she start?

@kthomson
I was diagnosed with AITL in August of this year.
I am on round 5 of 6 BV-CHP and will have a autologous stem cell transplant in March.
PET shows I am in remission after rounds 3.

I am wondering how your daughter is doing? I know this is a very scary, rare disease and it is hard to find others who have AITL.
Thank you for any advice or suggestions.
Jennifer

I’ve just been through having a colonoscopy and CT scans,
Waiting for my results, I just went on my doctor notes and have seen it says suspicious for Tl lymphoma,
I’m terrified now ,