1. < Epilepsy & Seizures

Am i Having Seizures

Posted by kyleew6783 @kyleew6783, May 26, 2023

Hi guys! I am 20 years old and i have Ehlers Danlos syndrome, Hashimoto's, fibromyalgia, Chronic migraines, pituitary tumor, a few months ago i would get a "tic" or spasm in my head, neck, shoulders maybe 5 times a month. now i get it that last few seconds- minutes multiple times a day. the odd part that i noticed once i started to track them is that i feel a tingle running from the front to the back of my head before it starts. Nothing triggers it. i also have been starring off for a few minutes but don't notice when im doing it. when i get out of it i feel very off. im not sure if that's like a silent seizure or something. my headache specialist is sending me to a seizure specialist to run an eeg. Just wondering if anyone experiences these or has any insights to what can be happening. Thanks! I have a video of whats going on. i will try to post it

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baa | @baa | Jun 9, 2023
In reply to @santosha "Hi @chefdecemberskye Happy to hear that. I good doctor who treats us as human beings makes..." + (show)
@santosha

Hi @chefdecemberskye
Happy to hear that. I good doctor who treats us as human beings makes an enormous difference. At least it was what I have experienced. After being treated by 8 different doctors who prescribed me medications I could not stand, I finally found an epileptologist that respects my nature and body. So, keep fighting!!!
I have recently joined a study by a neurologist on the relationship between the gut and brain in people with neurological disease as my seizures have reduced by 60% when I took gluten out of my diet. I am now on a Fodmap diet as I have been diagnosed with SIBO (small intestinal bacterial overgrowth) most probably caused by some medications I took in the past. As you also have gastro issues, worth investigating that profoundly with a gastro and treating it. It might have a great impact on your life and epilepsy
Keep walking, always!
Chris

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Hi Santosha! Please keep posted how the clinical study is progressing. So interesting and important. Hope all is well with you-

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Chris Gautier OR Santosha | @santosha | Jun 9, 2023

For sure @chefdecemberskye
I will keep you all updated.
Have a nice weekend!
Santosha

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1 reply
grammy82 | @grammy82 | Jun 9, 2023
In reply to @santosha "For sure @chefdecemberskye I will keep you all updated. Have a nice weekend! Santosha" + (show)
@santosha

For sure @chefdecemberskye
I will keep you all updated.
Have a nice weekend!
Santosha

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@santosha I'll be interested in hearing also. I, too have had gastro issues since I was about four. When I was 6, 7, 8, 9 and 10...I remember my mother reprimanding me and saying, "Stop rolling your eyes up." That was in the 1940s so...who knew!
Stay strong~!💞

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1 reply
Chris Gautier OR Santosha | @santosha | Jun 9, 2023
In reply to @grammy82 "@santosha I'll be interested in hearing also. I, too have had gastro issues since I was..." + (show)
@grammy82

@santosha I'll be interested in hearing also. I, too have had gastro issues since I was about four. When I was 6, 7, 8, 9 and 10...I remember my mother reprimanding me and saying, "Stop rolling your eyes up." That was in the 1940s so...who knew!
Stay strong~!💞

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Thank you @grammy82
Taking gluten out of a diet does make one feel much better. My husband does not have epilepsy and gastro issues, but followed me in my diet, continuing with it as he felt much better. Gluten as we know is highly inflammatory for the gut, swelling our bellies. Without gluten, my husband has not lost weight but could fit again in some trousers.
I have reduced my seizures by 60% just by removing gluten from my diet. This was easier than I thought as today there are many gluten-free products.
Give it a try for one month and see how you feel!
Have a nice weekend.
Santosha

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1 reply
grammy82 | @grammy82 | Jun 9, 2023
In reply to @santosha "Thank you @grammy82 Taking gluten out of a diet does make one feel much better. My..." + (show)
@santosha

Thank you @grammy82
Taking gluten out of a diet does make one feel much better. My husband does not have epilepsy and gastro issues, but followed me in my diet, continuing with it as he felt much better. Gluten as we know is highly inflammatory for the gut, swelling our bellies. Without gluten, my husband has not lost weight but could fit again in some trousers.
I have reduced my seizures by 60% just by removing gluten from my diet. This was easier than I thought as today there are many gluten-free products.
Give it a try for one month and see how you feel!
Have a nice weekend.
Santosha

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That was such a friendly response, @santosha I hope to be going on vacation from June 22 until July 11, but I will look into the diet on return. No use kidding myself about starting it now~!
I'm so pleased about the decrease you have accomplished...I'm sure I'd feel better~~I'd settle for fitting into a pair of old jeans.
A great weekend to you...you are an inspiration.💞

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1 reply
Chris Gautier OR Santosha | @santosha | Jun 10, 2023
In reply to @grammy82 "That was such a friendly response, @santosha I hope to be going on vacation from June..." + (show)
@grammy82

That was such a friendly response, @santosha I hope to be going on vacation from June 22 until July 11, but I will look into the diet on return. No use kidding myself about starting it now~!
I'm so pleased about the decrease you have accomplished...I'm sure I'd feel better~~I'd settle for fitting into a pair of old jeans.
A great weekend to you...you are an inspiration.💞

Jump to this post

Thank you @grammy82 for those lovely words!
Go into your holidays, relax and enjoy your time. Definitely, holidays are not the best time to start such a diet. After it, if you want some tips to make this diet an easy one, it will be a pleasure to share them.
Many hugs!
Santosha

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