am I exercising too much with a 4.3 ascending aortic aneurysm?

Posted by kmailloux @kmailloux, Mar 15, 2023

I am a 60 year old female, who has been very active her whole life. I was a very competitive gymnast, then moved to triathlons, then to cycling and running, strength training has always supported these activities. I am a certified personal trainer, and the aneurysm is a new diagnosis as of Dec of 2022. it was shocking - I now have a heart condition. I ran a marathon 2 weeks after I turned 60. My Cradic surgeon has stated that I can train for a 50k (31 miles) race, as well as a 150 mile bike ride. I have a 50 lb lifting weight limit. My BP is low and I am on no medications. My questions are .. is the activity too much? I run 5-6 days a week plus strength training and biking. I have mild chest pain - all of this has been told to my doc. they keep telling me everything is ok - I am just so nervous about all of this - but want to keep doing what I love. Any input will be appreciated.

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Profile picture for lfaison @lfaison

Recently diagnosed with < 2.5 abdominal aneurysm, was a shock, third medical strike in 9 months

Been active for my 65 yrs, 6’ tall, 165lbs, gym rat, runner, skier - water & snow, but the medical issues are piling up, e.g. mild stenosis, weakening heart valve… Docs haven’t dictated changes in my athletic activities, I have started Rapatha, aspirin, weekday abstinence;

Docs say I Inherited bad genes, from maternal parent/grandparent…

Continue living life to the fullest

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@lfaison definitely “Live life purposefully…to the “Very Fullest”
I was diagnosed about 2016 with an aortic aneurysm. My doctors have watched it closely for its growth. Happy to say things have been behaving. I have to be mindful when seeing other Drs for other reasons, to mention the aneurysm so that they too are made knowledgeable of my condition.

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Profile picture for gamecock77 @gamecock77

@kmailloux With my Ca score of 2814 and a 4.2cm aortic aneurism I was pleased to hear my cardiologist schedule me for a CT angiogram with dye to pinpoint the plaque on my first visit. We will go from there and I'm worried but satisfied for now.

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@gamecock77 That is exactly what my Ca score is and my aneurism is. I am waiting for a CT angiogram to really pinpoint my plaque situation. LAD score was 2200 alone.

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Profile picture for kmailloux @kmailloux

Oh my goodness! I would be getting a second and third opinion as soon as possible. Number one that cardiac surgeon would have been fired! At least from my patient care. Mine had to go into an emergency surgery while I was there, which was totally understandable, I was not as high risk as you. And the PA had spent 45 minutes with me. I felt very confident that this was an emergency situation and I would be considering getting a new primary care physician as well. This is a serious condition. They should be calling you back they should be giving you guidance not walking out of the room!

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@kmailloux With my Ca score of 2814 and a 4.2cm aortic aneurism I was pleased to hear my cardiologist schedule me for a CT angiogram with dye to pinpoint the plaque on my first visit. We will go from there and I'm worried but satisfied for now.

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Profile picture for dew88 @dew88

@gladifoundthissite Same thing, diagnosed with a mitral valve prolapse 12 years now and no problem,. Also 1 year diagnosed with a ATAA 4.2 and so far no follow up recommended by my primary care doc. But will start looking for a cardiologist to determine what the status is on that currently. I am beginning to think that a lot of diagnosis'' are sounding a little like common medical cliche' For example; "due to your size, that is big" or keep up the exercise", etc. rather than ask what type of exercise do you do, then discuss his recommendations based on your answers. Why do they do that? Maybe its because they cannot be sued for issuing medical cliche' type answers.

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@dew88 see the below interview with Dr Prakash he talks about the issue and some of his efforts to share that knowledge

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Profile picture for dew88 @dew88

@gladifoundthissite Same thing, diagnosed with a mitral valve prolapse 12 years now and no problem,. Also 1 year diagnosed with a ATAA 4.2 and so far no follow up recommended by my primary care doc. But will start looking for a cardiologist to determine what the status is on that currently. I am beginning to think that a lot of diagnosis'' are sounding a little like common medical cliche' For example; "due to your size, that is big" or keep up the exercise", etc. rather than ask what type of exercise do you do, then discuss his recommendations based on your answers. Why do they do that? Maybe its because they cannot be sued for issuing medical cliche' type answers.

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@dew88 unfortunately not all Drs are familiar with the latest in aortic research, you need a cardiologist who is an expert in aortic diseases and communicates with other researchers who study the effects of multiple factors on aneurysms ((like exercising) , hope you find one near you, it makes a difference

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Profile picture for gladifoundthissite @gladifoundthissite

I wonder the same thing, I’ve been diagnosed with a 4 cm ascending but also with 2 leaky heart valves, my mitral and tricuspid. I have always been very active but worry about pushing myself. I was told I can continue to exercise but not lift over 15 lbs . I have been noticing I’m a breath holder so trying to focus on breathing. I’m 120 lbs so he said 4 cm is big for my size 🤷🏻‍♀️

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@gladifoundthissite Same thing, diagnosed with a mitral valve prolapse 12 years now and no problem,. Also 1 year diagnosed with a ATAA 4.2 and so far no follow up recommended by my primary care doc. But will start looking for a cardiologist to determine what the status is on that currently. I am beginning to think that a lot of diagnosis'' are sounding a little like common medical cliche' For example; "due to your size, that is big" or keep up the exercise", etc. rather than ask what type of exercise do you do, then discuss his recommendations based on your answers. Why do they do that? Maybe its because they cannot be sued for issuing medical cliche' type answers.

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Recently diagnosed with < 2.5 abdominal aneurysm, was a shock, third medical strike in 9 months

Been active for my 65 yrs, 6’ tall, 165lbs, gym rat, runner, skier - water & snow, but the medical issues are piling up, e.g. mild stenosis, weakening heart valve… Docs haven’t dictated changes in my athletic activities, I have started Rapatha, aspirin, weekday abstinence;

Docs say I Inherited bad genes, from maternal parent/grandparent…

Continue living life to the fullest

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I wonder the same thing, I’ve been diagnosed with a 4 cm ascending but also with 2 leaky heart valves, my mitral and tricuspid. I have always been very active but worry about pushing myself. I was told I can continue to exercise but not lift over 15 lbs . I have been noticing I’m a breath holder so trying to focus on breathing. I’m 120 lbs so he said 4 cm is big for my size 🤷🏻‍♀️

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I can’t find a way to edit it, but my last sentence should have read: “Have others heard this”?

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I am like the original writter, Kmailloux and I always appreciate everyone’s comments like moonboy’s.

The only thing I’d like to add that hasn’t been addressed is the size of the person. Tall people having an advantage in that their Ascending aneurysms tend to either grow slower and their likelihood of an early dissection is better.

It is my understanding that at 5 foot one, I am more likely to require the open surgery sooner because of my height.

I’ve also heard that short people like myself may experience rapid expansion of the aneurysm just before surgery is a must.
Have others purpose this?
4.1 cm/Sara

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